← LEADERSHIP TERMINAL

UK PARLIAMENT · SITTING

Sarah Owen

MP for Luton North · Labour · United Kingdom

IN THEIR OWN WORDS

In Marsh Farm, local residents will direct £20 million over the next decade through our Pride in Place neighbourhood board, led by our fantastic new chair Jackie Neufville. I visit businesses every week, and do a small business Saturday shout-out every weekend.

SIR DAVID AMESS SUMMER ADJOURNMENT · 2026-07-16 · READ IN HANSARD

That is not the sum of everything happening in Luton North—and I could go on for 30 minutes, rather than three—but I want to put those achievements on record. We are a strong, united, diverse part of the world, and long may that continue.

SIR DAVID AMESS SUMMER ADJOURNMENT · 2026-07-16 · READ IN HANSARD

I have awarded amazing students at Putteridge High alongside their committed head, David Graham, and I have said goodbye to the truly brilliant Sandra Clarke, who retires from Woodlands High this week. The love, care and community you feel when you walk into that school are amazing.

SIR DAVID AMESS SUMMER ADJOURNMENT · 2026-07-16 · READ IN HANSARD

As this debate is always oversubscribed—a fitting tribute to Sir David that I am sure he would have been proud of—I am going to keep my remarks short. I love Luton. It is my home, and my favourite part of my job is working with our wonderful, diverse, welcoming community.

SIR DAVID AMESS SUMMER ADJOURNMENT · 2026-07-16 · READ IN HANSARD

They say that good things come to those who wait. After years of campaigning for new noise limits on fireworks by a number of organisations, from veterans’ charities to animal charities, and even by Deputy Speakers, we should all thank the Government for hearing all our constituents—especially those in Luton North who are kept awake night…

BUSINESS OF THE HOUSE · 2026-07-16 · READ IN HANSARD

Before I start, I thank the Minister not only for his statement but for his robust response to the Opposition Front Bench, whose response was appalling. The E1 settlement plan deliberately cuts the west bank in two.

ISRAEL: E1 ZONE EXPANSION · 2026-07-01 · READ IN HANSARD

The complete record

Every one of 600 lines we hold for Sarah Owen, in date order, each linked to its source. Free to read, in full, without an account. Page 10 of 12.

  1. 83A(7)), That the following provisions shall apply to the Strikes (Minimum Service Levels) Bill for the purpose of supplementing the Order of 16 January 2023 (Strikes (Minimum Service Levels) Bill: Programme): (1) Proceedings on Consideration of Lords Amendments shall (so far as not previously concluded) be brought to a conclusion two hours after their commencement. (2) The Lords Amendments shall be considered in the following order: 1, 2, 4, 5, 6, 7, 3. Subsequent stages (3) Any further Message from the Lords may be considered forthwith without any Question being put. (4) The proceedings on any further Message from the Lords shall (so far as not previously concluded) be brought to a conclusion one hour after their commencement. —( Mike Wood .) Question agreed to.

    NON-DOMESTIC RATING BILL · 2023-05-22 · READ IN HANSARD

  2. I genuinely hope that that the small steps in the right direction made today can be built on and improved in the future by a Government of whatever political stripe—hopefully a red one. We must stem the decline of our high streets and tip the tax balance between digital and physical businesses. We cannot continue to see high street shops boarding up their windows while online giants get away without paying their fair share. Lastly, I thank every hon. Member who has spoken, including the Minister, I thank the Clerks and I thank the stakeholders, who have briefed well and lobbied fairly on behalf of their members’ interests. Question put and agreed to. Bill accordingly read the Third time and passed. Strikes (Minimum Service Levels) Bill (Programme) (No. 2) Motion made, and Question put forthwith (Standing Order No.

    NON-DOMESTIC RATING BILL · 2023-05-22 · READ IN HANSARD

  3. This support is not only what small local businesses need, but what our high streets and towns are crying out for. I know that Small Business Saturday takes place just once a year nationally, but it is something I do in Luton North nearly every Saturday. I meet entrepreneurs, small businesses, innovators and creators in my town who are doing amazing things in our community, with our community and for the good of our community. Every Small Business Saturday shout-out that I do is to celebrate them and their contribution to our local economy. I know the very real difference it would make to them and to every small business across the country if we raised the threshold of business rates relief to £25,000 now, and ultimately if we did away with the outdated and unfair current business rates system altogether.

    NON-DOMESTIC RATING BILL · 2023-05-22 · READ IN HANSARD

  4. We will ensure that bricks and mortar businesses stay on our high street by making their tax contributions proportionate. Labour will make online tech giants finally pay their fair share of tax—something that Conservative Ministers have had neither the will nor the ability to do. By raising the digital services tax paid by the likes of Amazon, we will be able to raise the threshold for small business rates relief, helping more home-grown small and medium-sized businesses to thrive in our retail sector. Among the common-sense reforms that we put forward was to provide short-term support by raising the threshold for small business rates relief this financial year. As I have said previously, raising the threshold to £25,000 would save our high streets more than £1 billion.

    NON-DOMESTIC RATING BILL · 2023-05-22 · READ IN HANSARD

  5. The Federation of Small Businesses, the shopkeepers, the corner shops, the Association of Convenience Stores—the backbone of many of our urban and rural communities —have all voiced their concerns. Those concerns have been echoed by Members from all parts of the House, but have sadly fallen on the deaf ears of this Government. However, there has been some agreement in these debates—that the current outdated, dysfunctional business rates system is not fit for purpose. The only difference is that the Government continue to tinker around the edges while Labour would scrap it root and branch. That is what small and medium-sized enterprises have spent years lobbying for. Labour has a plan for British business. We will support entrepreneurs to turn their ideas into reality.

    NON-DOMESTIC RATING BILL · 2023-05-22 · READ IN HANSARD

  6. Throughout the condensed debate on this Bill, it has become clear that, although well meant, this was a missed opportunity to do better—to do more for businesses across the country. Yet again, the Government have managed to miss the point, despite multiple people, even from their own Benches, trying to guide this legislation into a better place. A step in the right direction could and should have been a leap. This was a chance to provide businesses with more than short-term sticking plaster fixes. Instead, we see small businesses worrying over the administrative burden of meeting the new duty to notify requirements and questioning what hefty punishments will be handed down for any genuine errors. The hon. Member for Waveney (Peter Aldous) quite rightly pointed out that they include even imprisonment.

    NON-DOMESTIC RATING BILL · 2023-05-22 · READ IN HANSARD

  7. After years of devastating cuts, any extra police officers are welcome, but it is not just about numbers; it is about quality and experience too. Can the Minister confirm how many new police officers are student officers, not yet qualified, such as the 300 in Bedfordshire? Does he agree that Luton, Bedford and Dunstable are clearly not rural areas? When will the farce of funding Bedfordshire police as a rural force end, so that the police finally have the resources to keep people safe in Luton?

    POLICE UPLIFT PROGRAMME · 2023-04-26 · READ IN HANSARD

  8. We know some improvements have been made and we will work towards further improvements in the next stages. What will not change between this version of the Bill and the next is that Labour remains the party of business. We are committed to ensuring that every business, every entrepreneur, every high street, every worker and every customer gets what they need from government to live well and see our economy thrive in return.

    NON-DOMESTIC RATING BILL · 2023-04-24 · READ IN HANSARD

  9. As I have raised with the Minister before, there is still no explanation from the Government on how they will support local authorities that have the huge task of processing tens of thousands of new business rate forms. Local authorities, as we all know and appreciate, are already understaffed and under-resourced. I do not need to remind the Minister that councils still do not have a long-term sustainable funding model, so each year brings more financial insecurity than the last. With yet another new administrative responsibility dumped on their desks, how does the Minister expect councils to be able to afford the time and staffing to adjust? Have the Government conducted any sort of consultation with local authority leaders to assist with the burden? We will not be voting against the Bill today.

    NON-DOMESTIC RATING BILL · 2023-04-24 · READ IN HANSARD

  10. UKHospitality has joined other business advocacy groups in questioning the new proposals regarding expanding the VOA’s remit and powers. What is the Minister’s response to businesses facing extensive administrative time and costs to provide the VOA with more information than it reasonably requires? We welcome the commitment to revaluate rates more frequently, but every three years is still not enough to keep up with the sudden changes that businesses can experience during economic turmoil. A Labour Government will introduce annual revaluations, delivering the up-to-date monitoring and support that businesses are crying out for.

    NON-DOMESTIC RATING BILL · 2023-04-24 · READ IN HANSARD

  11. Have Ministers carried out an equality impact assessment of the unintended consequences that these costs will have on the owners and, therefore, their customers? I would be grateful to know whether any such assessment has also investigated regional differences in the impact of the Bill. Recent analysis by Savills estate agents found strong disparity between the new rateable value for city centre retail units and those in small towns. Surely the Government are not proposing yet more policy that will make a mockery of their central promise to level up. The hospitality sector was at the sharp end of the pandemic restrictions and slow economic recovery. Most recently, it has suffered a severe workforce shortage due to post-Brexit limitations on migrant workers.

    NON-DOMESTIC RATING BILL · 2023-04-24 · READ IN HANSARD

  12. There are also valid fears that fines will be incurred through small businesses not knowing when or what to update the VOA with regarding changes to their premises. Can the Minister update me on what consultations the Government are conducting to bring clarity to that process? The Shopkeepers’ Campaign rightly notes that the clause allowing fines for retailers to notify the VOA within 60 days represents a “stealth tax”. Surely Ministers do not intend to find new ways to make small businesses worse off. Can they please commit to reviewing that policy? Many convenience stores are owned and frequented by first, second and third generation migrant communities and those on lower incomes.

    NON-DOMESTIC RATING BILL · 2023-04-24 · READ IN HANSARD

  13. Corner shops and cash and carries are essential staples of our neighbourhood and many families rely on them to meet daily need. Although some measures in the Bill have been welcomed by small shop owners, worry continues over the administrative burdens of meeting the new “duty to notify” requirements. The Association of Convenience Stores told me that, despite representations to Ministers, its concerns about clause 13 have not been addressed. Forcing ratepayers to submit taxpayer reference numbers to the Valuation Office Agency will create more work for all retailers, but have a particular impact on convenience store chains. Has the Minister considered the difficulties facing businesses in that situation: those that may need to spend more to safely report sensitive tax information for multiple sites?

    NON-DOMESTIC RATING BILL · 2023-04-24 · READ IN HANSARD

  14. Labour will make online tech giants finally pay their fair share of tax—something the Conservatives have never had the will to do. By raising the digital services tax paid by the likes of Amazon, we will be able to raise the threshold for small business rates relief, helping more homegrown small and medium-sized businesses to thrive in our retail sector. Sadly, among other common-sense reforms suggested by Labour, the Tories have refused to provide short-term support through raising the threshold for small business rates relief this financial year. Our estimates suggest that raising the threshold to £25,000 would save our high streets more than £1 billion. Instead, SMEs will continue to wade through bills and fight for their survival.

    NON-DOMESTIC RATING BILL · 2023-04-24 · READ IN HANSARD

  15. The Tories’ commitment to austerity policies has led to the death of a devastating number of high street businesses. They sat by and watched business after business go bust and the hearts of our high streets gutted. Office for National Statistics figures show that, even at the height of the recession, business deaths under the last Labour Government never rose above 277,000. In stark contrast, this Tory Government oversaw a staggering peak of 331,000 business deaths in 2017—years before the pandemic, before the war and any other factors that they may try to draw on. While the Tories tread water, Labour has a plan for British business. We will support entrepreneurs to turn their ideas into reality. We will ensure that bricks and mortar businesses stay on our high street by making their tax contributions proportionate.

    NON-DOMESTIC RATING BILL · 2023-04-24 · READ IN HANSARD

  16. The most glaring omission from the Bill continues to be the lack of any substantial improvements to our outdated, dysfunctional business rates system. Labour is committed to scrapping business rates root and branch, but the Government continue to tinker around the edges, buying time with short-term measures, rather than addressing the depth of the problems they have caused. The last thing businesses need is more short-term sticking-plaster fixes. Maybe they are waiting for a Labour Government in the next 18 months to come and fix it for good. Our proposed reforms to business rates are what small and medium-sized enterprises have spent years lobbying for. All of us will know a high street that was prosperous 15 years ago and is now in miserable decline, along with libraries, nurseries and leisure centres.

    NON-DOMESTIC RATING BILL · 2023-04-24 · READ IN HANSARD

  17. There is no getting around it: this has been an incredibly tough time for businesses across the UK. There was the pandemic, of course, but before and after it, they have had this Government’s mismanagement of Brexit to contend with, the Government’s failure to manage rising energy costs, the highest inflation for a generation and the unforgivable mess of the Government’s mini-Budget in October. With this Bill reaching its Second Reading still inadequate in many areas, business owners are concerned about what further challenges await them. While businesses have welcomed some elements of this legislation, it is clear across the board that supportive measures such as improvement relief are being delivered far too late.

    NON-DOMESTIC RATING BILL · 2023-04-24 · READ IN HANSARD

  18. Their generosity and compassion became most evident during the pandemic, when, alongside all people of faith and those of none, people relied on churches, mosques, synagogues, gurdwaras, mandirs and temples to get the message of public health and public safety out, to keep their communities fed and to meet a variety of other needs.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  19. Particular examples come to mind: the former Bishop of Kensington providing comfort to the traumatised survivors and relatives following the Grenfell tragedy, and providing leadership in challenging the injustices and continued injustices that have been exposed; the retired Bishop of Liverpool, who did not leave the side of those affected by the Hillsborough disaster throughout endless let-downs, setbacks and injustices; and Pastor Mick, who has used his life experiences of violence and addiction to set up the Church on the Street and serve vulnerable people in Burnley. We all know that, beneath those who make the headlines, many more Christians are working quietly and thanklessly on the ground, in all our constituencies, to support those who have fallen through the gaps of poverty and misfortune.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  20. As we approach Holy Week, when Christians across the UK and the world will reflect on both the sombre and the celebratory nature of the Easter story, it is right that we reflect, too, on their value in our society. They are moral guides, whether they are bishops leading on pressing ethical issues in the House of Lords or peacekeepers in struggling communities.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  21. In my constituency of Luton North, the interfaith community is long established and a source of cohesion and strength. The Luton Council of Faiths received an award from the late Queen for its important—vital—work on faith but, importantly, community cohesion as well. I mention this interfaith work because everybody has talked about their background and I grew up in not just a mixed ethnicity, race and heritage household, but a mixed faith household, both Buddhist and Christian. When I see scenes such as those that we saw last night at Manchester Cathedral, with more than 1,000 people of all faiths and none breaking fast and coming together, welcoming each other into the cathedral in much the same way as the hon. Member for Cleethorpes (Martin Vickers) talked about— opening the doors—it is to be welcomed and celebrated.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  22. It is a pleasure to see you in the Chair, Mr Mundell. I thank the hon. Member for Don Valley (Nick Fletcher) for his efforts in securing the debate. As I am shadow Minister for local Government and faith, it is my joy and privilege to praise and talk up the vital, meaningful work of the countless religious groups that we have across the UK, especially during this time of year, which is, as has been mentioned, a special, holy time for many religions. Easter is upon us. Last night, I joined the other members of the all-party parliamentary group on British Muslims as they broke fast in the Speaker’s House. I look forward next week to hearing more about and seeing Jewish traditions around the marking of Passover in the UK and across the world.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  23. This Easter, I will be celebrating the inspiring Christians around me in Luton North; the church leaders, their congregations and communities across the UK; and the charities working here and abroad to serve humanity. We can all be inspired and grateful for the hugely powerful impact that Christians have in our society, but we must never be ignorant of what they need from Government or overconfident that they will always be able to clean up our mistakes.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  24. After 13 years of Conservative Government, where does the Minister think our country would be without the safety net provided by Christians and other faith groups? If families, children, and those out of work or struggling with addiction had only the Government to rely on, what state would our economic and social health be in? She should ask herself, honestly, whether the Government have allowed themselves to become complacent in presuming that faith groups will always be able to step forward and make up for state neglect and failure. On the contributions of Christians to fighting global issues of injustice, will the Minister update us on efforts to return the level of overseas aid to 0.7%?

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  25. Despite how needed and important their campaigns are, such organisations are struggling. The cost of living crisis has meant that, while demand is higher than ever for food, shelter and financial support, the public’s capacity to donate has declined. The fact that wages are falling far beneath inflation is forcing ordinary working people to cut back where they can. For many, that means reducing or ending charitable giving. This is where we need Government action. I ask the Minister to go back to her team and other Government Departments, and look at what more can be done to protect our churches and charities from further financial struggle. Stronger interventions on energy costs and business rates would be a very good place to start.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  26. That is just a brief selection of Christian charities working domestically. Globally, there are organisations fighting bravely for religious freedoms and human rights, and tackling poverty and famine. Colleagues will be aware of the fearless work of Open Doors, which works in some of the most dangerous regions of the world to serve persecuted Christians. Over Easter, we must keep in mind worshippers and believers in places such as North Korea, Nigeria, China, Hong Kong, Afghanistan and many more, who will risk their lives to worship God at this time. I pay tribute to International Justice Mission, which works internationally to end modern slavery; Tearfund, which has been providing disaster relief for over 50 years; and Christian Aid, which continues to lead progressive and powerful campaigns on the climate emergency.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  27. Members have mentioned and recommended books throughout the debate, and I would love to take the opportunity to recommend a book co-written by my dear friend and the chief executive of the Christian charity Jubilee+, Natalie Williams, entitled “The Myth of the Undeserving Poor”. We can add that to our reading list for the Easter recess. Vital support, including the debt services provided by organisations such as Christians Against Poverty, is long standing but has never been so needed as it is now. CAP partners with churches of all denominations around the UK to offer personal budgeting courses and employment support, helping people to break free from the paralysing chains of debt. I will never forget the personal testimony that I heard from CAP when it came to Parliament to speak to parliamentarians about the vital work it does.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  28. We all know about the food banks in our constituencies that are run from churches by Christian charities. As food prices climb, energy costs soar and wages fall, we cannot expect the need for food banks to diminish any time soon. There are also the night shelters. They are less typical at this time of year, but every winter Christian organisations go above and beyond to provide warmth and shelter for homeless people. They do so not because they have an abundance of money, space or resources, but because their faith compels them to do and give what they can. I note that hon.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  29. I thank the hon. Member for that intervention. It is always important to note where we share values—and that always plays to our strengths. My hon. Friend the Member for Reading East (Matt Rodda) made a powerful point about the vital support that churches and charities provide on a non-judgmental basis not just to Christians, but to their wider communities and everybody who needs support. Churches and Christian organisations have been stepping forward where the state has largely stepped back for over a decade, and I see examples of that in my constituency. When we had fires in tower blocks, St Luke’s in Leagrave provided warm banks, despite the fact that its bills are going through the roof. Christchurch Bushmead, which is at the centre of our community, has provided support for those in need.

    CHRISTIANITY IN SOCIETY · 2023-03-30 · READ IN HANSARD

  30. A total of 7,000 council jobs in Scotland are under threat from SNP cuts to local government. Council leaders across Scotland have written to the former First Minister warning of the devastating impact of those SNP cuts—huge job losses and vital local services across Scotland slashed. Can the Minister confirm what the impact of those job losses will be on people in Scotland, and can he say what the difference is between Tory and SNP cuts to councils, or are they just two sides of the same coin?

    INVESTMENT ZONE IN SCOTLAND · 2023-03-27 · READ IN HANSARD

  31. Every year since 2011, the number of children in temporary accommodation has risen—we are talking about well over 120,000 children without a home to call their own. It is a form of homelessness that is out of sight, out of mind and on the rise under this Tory Government—thousands of children stuck in bed and breakfasts for longer than the statutory maximum of six weeks. What do Ministers intend to do about the shocking numbers of homeless children in temporary accommodation, and when? May I remind the Minister that they are in charge of the parliamentary schedule for as long as they have left in government?

    HOMELESS CHILDREN: BED-AND-BREAKFAST ACCOMMODATION · 2023-03-27 · READ IN HANSARD

  32. Last week, Luton Sixth Form College celebrated its culture day, which was beautiful, exciting and harmonious. Those young people know that there is strength in diversity, not fear. That is true strength. What we hear today is fear, the only card that this clapped-out Conservative Government have left to play. As our faith communities, the generation that fought against division and hatred, and our young people all know, Britain is so much better than this Bill, and our country is so much better than the Conservative Government give it credit for.

    ILLEGAL MIGRATION BILL · 2023-03-13 · READ IN HANSARD

  33. Last June, all the bishops in the House of Lords signed a letter raising alarm about the Rwanda policy. Today, the Archbishop of York joined the Muslim Council of Britain and 350 other charities and faith organisations to condemn the Bill, saying it was “immoral and inept”. Normally, that level of criticism would make a Government stop and think, but we are not in ordinary times. Instead, we have yet another Prime Minister who is so desperate to stay in power and keep the Conservative party together that he is willing to tear a country apart. That is the base level of the Bill—the Government blaming others and reaching for unworkable, inhumane covers for their own wretched failure. My grandparents’ generation, which fought in the war, will not be fooled, and neither will generation Z.

    ILLEGAL MIGRATION BILL · 2023-03-13 · READ IN HANSARD

  34. Because of fear and failure —13 years of Tory failure, to be exact; a failure to provide any sense of international leadership or to negotiate workable deals with other countries. And at home, this Government are making 40% fewer asylum decisions a year than they were in 2015, leaving 160,000 people waiting in limbo for much longer and pushing up accommodation costs. This immigration Bill is based on fear—the fear of the Prime Minister and Home Secretary losing a grip on their own party. People of faith often speak about the opposite of fear—hope. And they have spoken out against the Bill. The Board of Deputies has shared its concerns and, earlier today, I met members of the Jain community, whose focus is on compassion for all living things, not on this.

    ILLEGAL MIGRATION BILL · 2023-03-13 · READ IN HANSARD

  35. We have heard a shamefully grim level of debate from some Government Members. The debate has lacked compassion and logic, but I want to start on a positive. Last night, something truly historic happened: Ke Huy Quan became the first east and south-east Asian actor to win an Oscar. He said: “My journey started on a boat. I ended up in a refugee camp….They say stories like this only happen in the movies…This is the American dream.” Why is that story of success not a British dream, especially when people such Mo Farah have had a similar experience, filling stadiums, smashing records and being wrapped in a Union flag? Why is that hope and aspiration crushed before it even starts?

    ILLEGAL MIGRATION BILL · 2023-03-13 · READ IN HANSARD

  36. I have listened intently to the debate, and it is an honour to be able serve alongside such fantastic female representatives on both sides of the House. The Minister is talking about eradicating sexual and domestic violence from society. Does she agree that we should not be rewarding, in any way, any perpetrators of that sort of abuse and violence?

    INTERNATIONAL WOMEN’S DAY · 2023-03-09 · READ IN HANSARD

  37. Finally—I hope that the Minister will say yes to this one, because it requires him to make not a spending commitment, only a commitment to spend time with Amani’s parents—will he meet me and my constituents, Khuram and Yasmin, to hear from them directly about the impact that brain tumours have had on their family and how the Government can deliver change to ensure that other families in their position do not have to suffer such a tragedy? I know that it will mean so much to them that the issue is being debated in the House, but I also know that empty words will not cut it. We need firm commitments and an explanation, because no family in Luton North or anywhere else should have to go through what they have.

    BRAIN TUMOUR RESEARCH FUNDING · 2023-03-09 · READ IN HANSARD

  38. Will the Government hear the calls that have been made today and focus on delivering a strategy for adequately resourced, targeted and funded discovery and clinical research, with a joined-up approach from basic science through to clinical trials? Will the Minister share with us where the remainder of the promised money is, and will there be some transparency about where and how the money has been allocated? My right hon. Friend the Member for Leeds Central (Hilary Benn) asked powerfully about where some of the successful bids have come from, why they have been successful and, importantly, why others have not been.

    BRAIN TUMOUR RESEARCH FUNDING · 2023-03-09 · READ IN HANSARD

  39. His family are left praying in hope and fundraising at one of the most distressing times of their lives. Should any family dealing with cancer or any health issue be spending their precious time and energy on fundraising for treatment? Another of the main issues identified in the APPG’s report was that the current funding system is unfit for purpose, because it functions in an insular manner. As a result, researchers are moving away from the field of brain tumour research towards other disease areas with more readily available and secure funding. I will move on to some specific questions to the Minister.

    BRAIN TUMOUR RESEARCH FUNDING · 2023-03-09 · READ IN HANSARD

  40. When it comes to brain tumours, why do family, friends and the wider community have to dip generously into their own pockets to ensure that people such as Amani have access to medical treatment and newly developed medicines in the hope of fighting their diagnosis? Tragically, as we have heard from many right hon. and hon. Members, the continued lack of funding for brain tumour research means that Amani’s story is not uncommon. We have heard that brain tumours remain the biggest cancer killer of children and adults under 40. Unlike most cancers, brain cancer incidences are rising, yet no new treatments have been brought forward and the five-year survival rate for patients is still just 12%. Another Luton resident fighting stage 4 glioblastoma is Moshin, a young father of three and husband.

    BRAIN TUMOUR RESEARCH FUNDING · 2023-03-09 · READ IN HANSARD

  41. When I spoke to Khuram and Yasmin, their biggest concern was that the funding that is so desperately needed has not materialised, despite the promises. We know that investment in research drives survival rates. As Khuram and Yasmin pointed out, the development and deployment of the covid-19 vaccine is a clear example that breakthroughs can happen in a very short time when funding is available and the political will is there. Importantly, why are patients and families told to be satisfied with a system where we see unequal levels of care depending on the disease or illness that a person has?

    BRAIN TUMOUR RESEARCH FUNDING · 2023-03-09 · READ IN HANSARD

  42. Her family were and are completely devastated, but have continued to campaign ever since in her memory. Amani’s story and her parents’ determination to honour her legacy cannot fail to move us. However, while the fundraising efforts of that family and every family like them are massive achievements individually, they are a drop in the ocean compared with what we know is needed to tackle brain tumours effectively. We are all aware of the Government funding promise made in May 2018—a total of £40 million made available by the National Institute for Health and Care Research—yet the recent report by the APPG on brain tumours found that, as of January 2023, just £15 million had been awarded from that pot, £6 million of which was not easily identifiable as relevant to brain tumours, as we have heard.

    BRAIN TUMOUR RESEARCH FUNDING · 2023-03-09 · READ IN HANSARD

  43. Thanks to the generosity of family, friends and strangers, more than £100,000 was quickly raised to help finance that, and her father Khuram took it upon himself to fly to Germany to purchase ONC201—a father who should have been by his daughter’s side, having to raise funds and travel to Germany to get the drug that she needed. Amani was a strong advocate for brain tumour research and campaigned tirelessly against the lack of funding to tackle this cruel disease. Throughout her ongoing battle, she was a true inspiration, launching a podcast to discuss her diagnosis, organising fundraising events in support of Brain Tumour Research and even receiving a master’s degree at her bedside. Despite her continued strength and determination, Amani lost her fight in February last year and died at the age of just 23.

    BRAIN TUMOUR RESEARCH FUNDING · 2023-03-09 · READ IN HANSARD

  44. Last week, I met my constituents Khuram and Yasmin, who bravely shared their daughter Amani’s story with me, as I will share it in the House today, in an effort to bring about the change and progress that they and we all want to see. Amani was diagnosed with a grade 4 glioblastoma after collapsing on her 22nd birthday in April 2020. As we have heard, treatment options available in the UK for glioblastomas are very limited and the standard of care Amani received failed to stop the tumour growing. After discussions with Amani’s medical team, the family decided the best and only way forward would be to access a new trial drug, ONC201.

    BRAIN TUMOUR RESEARCH FUNDING · 2023-03-09 · READ IN HANSARD

  45. I thank the hon. Member for St Ives (Derek Thomas) for securing this important debate. It has truly been a privilege to sit here listening to the heartfelt, knowledgeable and personal speeches that we have heard today. I am sure that everyone will share my awe at the bravery of my hon. Friend the Member for Mitcham and Morden (Siobhain McDonagh). She spoke not only as a formidable MP, but as a formidable sister. I also pay tribute to the ongoing work of Brain Tumour Research and the APPG on brain tumours for their dedication to raising awareness of the issues facing the brain tumour community and their efforts to improve research, treatment, and care outcomes.

    BRAIN TUMOUR RESEARCH FUNDING · 2023-03-09 · READ IN HANSARD

  46. On a point of order, Mr Deputy Speaker. We understand that the Government have just announced huge delays to High Speed 2 and other road and active travel projects via written ministerial statement at nearly 5 o’clock on Thursday afternoon. That is an outrageous attempt to avoid scrutiny for what is a very significant announcement that should have been made to this House first. Tens of thousands of jobs and billions of pounds of economic growth depend on that project. The Secretary of State should have had the decency to come to the House and explain to Members why the Government are doing that. Have you been notified of any ministerial statement on this important topic?

    BRAIN TUMOUR RESEARCH FUNDING · 2023-03-09 · READ IN HANSARD

  47. Our nation’s older generation depends on them, and so will we when our time comes. I hope for everyone’s sake that they will still be there, and that this Government will not be.

    ADULT SOCIAL CARE · 2023-03-08 · READ IN HANSARD

  48. If the Minister can present anything to rival that, I would genuinely love to hear it. As a former care worker, and someone whose grandparents have wonderful carers, I would love to say that we could put politics aside and come to a solution for the good of our country, but I also question the likelihood of that, given the 13 years of failure that we have seen from this Government. I have mentioned some shocking figures, but I want to make it clear that social care is not about numbers—it is about people. It is about people in desperate need of care, who are often towards the end of life. It is about young disabled people, and families when they are at their most vulnerable. It is about the people providing that care through long hours, hard graft and low pay.

    ADULT SOCIAL CARE · 2023-03-08 · READ IN HANSARD

  49. He stated that Dorset Council’s spending on adult social care had risen by 15%, but that that was not touching the surface of the problem, and 83% of the council’s income was reliant on council tax. The problem lies with central Government and the lack of a sustainable funding model. Fortunately, one party has a plan for social care, and we will not be postponing it for years or decades when we are in power. A Labour Government will implement a 10-year plan for investment and reform in social care. We will increase access and prioritise prevention and early intervention with home care. We will present a new deal for care workers that delivers fair pay, training and working conditions to recruit staff and—most importantly—retain them. We will ensure that unpaid family carers are no longer overlooked or taken for granted.

    ADULT SOCIAL CARE · 2023-03-08 · READ IN HANSARD

  50. Council tax brings in vastly different amounts in different areas, depending on the demographic of residents. In some areas, particularly rural communities, funds coming in from council tax are heavily outweighed by the demand for social care. As the hon. Member for North Devon (Selaine Saxby) eloquently put it, there are many different barriers to accessing social care—and good care—within rural communities, and that is just one of them. The hon. Member for West Dorset (Chris Loder) also made it clear that that is an issue. In a debate in January, he argued against the funding model, with one third of his constituents aged over 65, compared with a national average of 19%, which presents a huge need for care.

    ADULT SOCIAL CARE · 2023-03-08 · READ IN HANSARD