Linsey Farnsworth
MP for Amber Valley · Labour · United Kingdom
“Local Amber Valley leaders and I support devolution, but we are incredibly concerned about the decision to split Amber Valley between two unitary authorities, particularly because the option selected was not subject to public consultation.”
“This week, I attended an informative roundtable discussion with experts, including from the Alzheimer’s Society, Alzheimer’s Research UK and Dementia UK. I spoke about my dad, who is living with late-stage dementia. This is a pivotal moment for action on dementia, particularly given the advances in research in this field.”
“Businesses in Amber Valley are doing brilliant work to improve health outcomes for children and young people. Ferrero in Alfreton is encouraging children to be more active through its “Joy of Moving” programme, while SC Johnson, headquartered in Denby, is launching a hand-hygiene pilot in schools to reduce absences.”
“Denby Pottery has many legacies, ranging from the nationally significant to the deeply personal: its heritage, its skilled and committed workforce and the pottery itself—treasured, gifted at weddings and passed down through generations.”
“Throughout its 217 years, the pottery has remained committed to local craftsmanship, even as its competitors offshored production to mass-produce goods more cheaply. That commitment has inspired extraordinary loyalty, with many in the local area having worked there for decades and even generations.”
“It is a pleasure to serve under your chairmanship, Dr Murrison. I congratulate my hon. Friend the Member for Lichfield (Dave Robertson) on presenting this debate, and my constituent Hayley who brought the petition. I draw attention to my declaration in the Register of Members’ Financial Interests that I am a member of GMB.”
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“Sadly, the referee seemed to forget that in the infamous 1986 world cup quarter-final between Argentina and England, in which Maradona produced his “hand of God” moment. The introduction of the video assistant referee means that today, such a goal would rightly be ruled out—not that us England fans are bitter. As these examples show, football is in a constant state of change and evolution. It is not only right that as the sport evolves and progresses, the regulations around it adapt to reflect and facilitate those changes—it is paramount. That brings me to my Bill, which considers the issue of unauthorised entry to football matches from a fan safety perspective. It aims to ensure that proper legislation is in place to protect fans and prevent overcrowding in stadiums.”
“I live in hope that Everton can follow suit and get their hands on some silverware at our new ground next season. Football has a rich and impressive history. It bridges communities and brings people together, cutting across generational, gender-based, geographical, cultural and class divides. It is a sport of opportunity and hope that sees girls and boys who began by playing on the streets of their home towns becoming superstars and role models with platforms from which they can enact real change, as we saw during covid with Marcus Rashford’s free school meals campaign. The rules of modern football are thought to have been drawn up in 1863, not far from this place at the Freemasons’ Tavern in London. There, among other things, the somewhat important rule that carrying the ball with hands is not allowed was agreed on.”
“I beg to move, That the Bill be now read the Third time. It is an honour to stand in the Chamber today and present this Bill for its Third Reading, particularly as a lifelong football fan. I put on record that I am a proud Everton supporter—my staff have all too gleefully reminded me that this may be the nearest thing to football-related success that I experience for a long time. Our men’s team last won a major trophy in 1995, and the women’s in 2010, so I am sure Members can imagine my delight when I saw the Amber Valley Codnor Sapphires girls under-10s team win the plate in a tournament in Heanor last Sunday. I am told that two other teams from my constituency, Sleetmoor under-13s ladies and Heanor Junior Hawks, also won trophies that day.”
“I will make some progress, thank you. Staff at Wembley also had concerns about upcoming sold-out music events. It is clear that unauthorised entry and overcrowding could pose security and safety risks beyond football, and I hope that Parliament will consider legislation that expands the logic of the Bill to address those other areas, including other big music and sport events, on another occasion.”
“I thank Baroness Casey for her report and the important work she has done around fan safety, and I thank my staff, who provide continued guidance and support. I must also extend my thanks to Lord Brennan, whose work as the original promoter of the Bill has been invaluable. Football is a game of two halves. At the risk of creating an overstretched analogy, I believe it is fitting that the second half of this Bill and its journey should be played out under Lord Brennan’s capable guidance and captaincy in the other place, should it pass today. If the Bill passes, I will happily pass the armband to him. Question put and agreed to. Bill accordingly read the Third time and passed.”
“The foundation has done wonderful work, providing opportunities and inspiring young girls and women in football, including sponsoring local teams to ensure that the next generation of footballers is equipped to face the world in the fierce, determined and spirited manner that Maddy faced it. I encourage Members, in their own time, to look into the wonderful work that the foundation is doing. I thank the Football Association and the Football Association of Wales, which have both supported this Bill; the Clerks and civil servants who helped to draft it and offered support throughout the process; the Members who took it through Committee; and my hon. Friends the Members for Uxbridge and South Ruislip (Danny Beales) and for Hartlepool (Mr Brash), who co-sponsored the Bill.”
“With the leave of the House, I associate myself with the tribute to the Ibrox victims given so movingly by my hon. Friend the Member for Cumbernauld and Kirkintilloch (Katrina Murray). There are many people I would like to thank for helping to get the Bill to this stage, but first I will speak about footballer, vice-captain and much-loved daughter and sister Maddy Cusack, who lived in my constituency in Horsley and passed away tragically in September 2023. I dedicate this Bill to her, with the knowledge that she would approve of its contents, given her love for the game and for the safety of the fans who came to watch her light up the pitch week in, week out. The Maddy Cusack Foundation has been set up in her honour, with the aim of continuing her legacy.”
“I congratulate my hon. Friend on securing this important debate, and we can see how many people this issue affects across the country. On speeding in our communities, does he agree with my sentiments, from my time as a borough councillor in Amber Valley for Kilburn, Denby, Holbrook and Horsley, about the fantastic work parish councils do through the speed watch scheme? That can be integral to ensuring that county councils or unitary councils listen and collect data, which can be so important when making changes in our local communities to speed limits and to important road safety measures.”
“At the UEFA champions league final at Wembley stadium on 1 June 2024, there were around 1,000 tailgating attempts and three mass entry attempts by around 300 to 400 people. At present, people gaining entry without a ticket are likely to be ejected but not to face any other consequences. Those attempting to gain entry are moved on, but will often try again and again to get in. There is no specific offence of entering a football match without a ticket. The Bill seeks to remedy that. Clause 1 will create a specific offence of unauthorised entry to premises for the purpose of attending a designated football match, by inserting a new offence into the Football (Offences) Act 1991. The offence aims to deter people from attempting to enter stadiums without a valid ticket.”
“We went straight to our seats which we were able to reclaim from the people occupying them at the time and the rows were overfilled and the stairways were full of people…The place was clearly filled way past capacity…Overall I found it to be unpleasant and a potentially dangerous environment…It has put me off…attending England games and I haven’t been to one since.” That is from an avid sports fan. Following the 2020 final, Baroness Louise Casey was commissioned to conduct an independent review. Her report found: “Unauthorised entry to football grounds does not attract specific enforcement measures and is unlikely to have long-term consequences sufficient to deter repetition or emulation.” Baroness Casey’s report was, sadly, prescient.”
“Siobhan told me: “We arrived Wembley around an hour before kick off…it was obvious that things were not as they should be…I felt very uneasy about the atmosphere…We went to the turnstiles, which were still very busy and there were people there without a ticket who had managed to get through the first ticket check and were asking people to let them push through with them…I’ve been to many events at Wembley that are sold out and have never seen it in such a mess.”
“Members may recall the disorder at Wembley stadium on 11 July 2021, during the UEFA Euro 2020 final, when an estimated 1,900 so-called fans entered without a ticket. Between 1,200 and 1,300 managed to get into the inner areas of the ground, creating further danger. Of course, unauthorised fans do not have allocated seating, and their entry to the ground, particularly when it occurs in large numbers, creates problems of overcrowding and blocking of gangways and staircases. For me, this is of personal significance. My friends Ross and Siobhan were at the game that day. They are avid sports fans who attend many sporting events across the world. Despite usually feeling at ease in those surroundings, it was a frightening experience that day.”
“Such behaviour presents a danger not only to the stewards and security staff who seek to apprehend them, often leading to a scuffle, but to the safety and enjoyment of the fans, who should be free to enjoy the build-up to the game without the worry that this sort of incident brings. With the increased popularity of the women’s game, under the fantastic stewardship of the Lionesses, we see more and more families attending matches. In one tailgating scuffle that I witnessed, a young boy was knocked into. It is time that we take steps to safeguard fans from this sort of behaviour. At worst, unauthorised entry takes the form of mass entry, where large crowds seek to push their way into the ground.”
“Unauthorised entry commonly occurs when a person pushes through the turnstiles, often behind an unsuspecting, ticket-holding fan, which is known as tailgating, or colloquially as piggybacking or jibbing. There are often around 600 tailgating attempts per match for major events at Wembley stadium. I recently attended the Carabao cup final with the Minister for Policing and Crime Prevention, who I am pleased is responding on behalf of the Government this morning. We were taken down to the turnstiles and within around 30 seconds we witnessed our first tailgater, with several more thereafter in the short period for which we there.”
“It is a great pleasure to serve under your chairmanship, Mr Vickers. Following your guidance, I intend to speak to the whole Bill in my remarks. I thank everybody for coming along this morning; I hope that, with Members’ agreement, this former prosecutor can place a new offence on the statute books. As the title suggests, the Bill is designed to address the issue of unauthorised entry to football matches. It creates a specific offence of entering, or attempting to enter, a designated football match in England and Wales without a ticket that the person is eligible to use. The Football Association reports that unauthorised entry to football matches causes significant operational, safety and security problems for major events at Wembley stadium, as well as football matches at other grounds across the country.”
“Currently, those are matches in the premier league, the championship, leagues one and two, the national league, the women’s super league and championship, the Cymru premier league, and international fixtures held in England and Wales.”
“The offence in the Bill is summary only, and the maximum sentence is a £1,000 fine; it can therefore be tried only in the magistrates court. The offence strikes a balance by ensuring a sufficient deterrent against tailgating and mass entry while not adding to the court backlog. The stronger deterrent, however, is that a conviction for an offence is likely to lead to a court-imposed football banning order, which would prevent a person from attending football matches for between three and five years, with a potential prison sentence if the banning order is not obeyed. The Bill encompasses the designated matches set out in orders made under section 1 of the Football (Offences) Act 1991.”
“I am grateful to my hon. Friend for the intervention, and I commiserate with him on his choice of football team—I put on record that Everton are a much more preferable team to follow. As Siobhan described, at the Wembley incident, fans managed to get through the first ticket check. Many stadiums, including Wembley, have a wider perimeter cordon that protects fans. The use of “premises” rather than “stadium” would allow arrests to be made and prosecutions to be brought if someone went through that first cordon, before there is danger in the stadium itself. As a member of the Justice Committee and former Crown prosecutor, I am only too aware of the extensive court backlogs, particularly in the Crown court.”
“There is a defence for that, because in those circumstances there would be a reserved seat, so the safety issue is not fair. Again, that demonstrates that the Bill is about the safety and safeguarding of football fans.”
“A defendant can show that he or she had lawful excuse or authority to enter or attempt to enter the premises for a specific purpose. That would cover, for example, employees, journalists and emergency workers at the ground. It is also a defence if a person entered through an entry point normally used for spectators while believing that they had a ticket for the match when they did not. In other words, it is a defence to show that that person unwittingly held a counterfeit ticket. The Bill is not about villainising football fans, and this defence acknowledges that fans are sadly sometimes duped by unscrupulous ticket fraudsters. The final defence is using a ticket that the defendant was not entitled to, for example, an adult using a child’s ticket.”
“The staff at Wembley voiced concerns about some of the upcoming sold-out gigs; I will not mention the band in question, but if I could get tickets, I would—but I will not be tailgating at that event. I served on the Public Bill Committee for the Terrorism (Protection of Premises) Act 2025—commonly known as Martin’s law—which received Royal Assent on 3 April this year. Although that Act deals with a different type of threat to the public, and is a different type of safety measure, it is clear that this Government are keen on keeping members of the public safe at all kinds of events. I hope that Parliament considers whether the Bill could be the start of greater protections at other events, as suggested by my hon. Friend the Member for Portsmouth North. Clause 1 provides a number of defences.”
“I thank my hon. Friend for her attendance today; she is a real champion for her football team and her constituency, and I am sure that they will be grateful for her attendance. She raises a valid point: this offence could apply to other sporting events. Sadly, there have also been tragic incidents at music festivals, such as at the O2 Academy. However, the legislation is being introduced as a private Member’s Bill, and in order to effectively change the law through this mechanism it needs to be quite contained in nature. When I went to Wembley and spoke to the police and staff there, they indicated that football was a type of event where this regularly happens. That is where the risk lies, particularly at the most competitive games. It could equally apply to other types of event if the Government saw fit.”
“The hon. Member is absolutely correct that in the modern day not many people have paper tickets. The Bill will apply equally to the electronic version, so I am grateful to him for allowing me to clarify.”
“It is fitting to end with the remarks of Lord Brennan in a previous debate: “By allowing the Bill to be reported, we can send a resounding message that such conduct as was seen at the Euro 2020 final will not be tolerated, emphasising the importance of ensuring safety and security when attending football matches. The legislation reaffirms our dedication to the wellbeing and integrity of football, and restores our collective duty to tackle the challenges confronting the sport. It upholds the role of the sport as a unifying force in our society. I urge hon. Members to endorse the Bill, including the amendment, thereby contributing to the enhancement, safety and enjoyment of football matches for all.” –– [ Official Report, Unauthorised Entry to Football Matches Public Bill Committee, 8 May 2024; c. 6.] I could not have said it better myself.”
“I extend my thanks to Lord Brennan of Canton, the former Member for Cardiff West, whose version of the Bill ran out of time at the last general election. The work he did as the original sponsor to get the Bill through this place in the last Parliament has undoubtedly made my job much easier. If the Bill moves beyond Committee stage today and passes Third Reading in this House, we both hope that he will be able to oversee its passage through the House of Lords, in what I am advised could be a unique parliamentary example of starting a Bill in one House and finishing in another.”
“Proposed new section 1A(4) of the 1991 Act says: “‘match ticket’ means a ticket or other thing (whether in physical or electronic form),” so I think that is expressed in the Bill, but I am grateful to the hon. Member. Baroness Louise Casey, in her report following the Euro 2020 final, concluded that the events of that day could have resulted in a tragic loss of life. Given that England, Wales, Scotland, Northern Ireland and the Republic of Ireland are set to jointly host the Euro 2028 competition, the time for this Bill to pass is now. I urge the Committee to support the Bill, which is backed by major football bodies, such as the English Football Association and the Football Association of Wales. I thank both bodies for their assistance. The Bill is also supported by His Majesty’s official Opposition and the Government.”
“I think I have got to the bottom of it. The Bill that has been printed for the Committee today is the old Bill, which has since been slightly amended to deal with that very point. That is why there is confusion, because I have a copy of the new version of the Bill.”
“A ticket that has already been used? I am trying to remember; I think it goes back to the purpose of this change in the law and the desired effect of increased safety. If there is a valid ticket, there is a reserved seat, which is what I think the defence is getting at. The offence is being introduced to prevent overcrowding.”
“Thank you, Mr Vickers. I thank all Members for their contributions today, as well as the Minister and the shadow Minister. I will return to the comments that the Minister kindly made about members of staff—”
“I am grateful to the hon. Gentleman, and I will look into that. I remember discussing the changes to proposed new section 1A(3) with the advisers here, and I remember being satisfied that there was good reason for them. I am very sorry that I cannot bring those reasons to mind at the moment, but I will commit to looking at that during the remaining stages of the Bill’s passage.”
“I think that there is already provision for those hopefully rare circumstances. What we are trying to do with the Bill is provide a summary-only offence, with the deterrent of the football banning order, to deal with offences that are committed in much bigger volumes, while not clogging up the court system. I think the Bill strikes that balance, and there are those provisions for the prosecution of members and staff, as and when that happens. I think that is everything I wanted to cover. Question put and agreed to. Clause 1 accordingly ordered to stand part of the Bill. Clause 2 ordered to stand part of the Bill. Bill to be reported, without amendment.”
“I am grateful to the hon. Gentlemen for their contributions. I will commit to looking at that issue again and tabling any necessary amendments on Report, perhaps in conjunction with the Minister. Going back to the Minister’s comments on the Fraud Act and the Theft Act, it is correct that members of staff can be charged under those offences, if the evidence allows and if the Crown Prosecution Service’s public interest test is met. With a member of staff, there is a level of trust and a duty of care to members of the public coming into the stadium. Because of that duty of care, it is more likely that an either-way offence, which takes up more time and resource in the court, would meet the public interest test than a member of the public turning up without a ticket.”
“Does my hon. Friend agree that the lack of legal aid solicitors and barristers will only compound the problems of the court backlog? That is because cases will either have to be adjourned as a consequence of lack of legal counsel or they will take longer when defendants appear without legal counsel because those defendants will need more time and support from the court and other court services. Is my hon. Friend concerned about that?”
“Friend the Justice Secretary’s temporary early release scheme was a difficult but necessary decision to protect the justice system from breaking altogether, and to ensure that dangerous offenders were not turned away from the courts due to lack of space.”
“I, too, am a member of the Justice Committee. I am also a former prosecutor who worked in the criminal justice system. Today is an opportunity not only to examine the Ministry of Justice’s estimates for the coming year, but to assess whether our criminal justice system is being resourced to meet the scale of the challenges it faces and to make our communities safer. I want to talk about the sentencing review and its impact on resourcing, especially for the Probation Service. We inherited a system that was on the brink of collapse. The 2024 report on prison population growth revealed that England and Wales had the highest per capita prison population in western Europe. Our Government had to respond to that crisis immediately on entering into office. My right hon.”
“However, it is clear that the solution to overcrowding cannot simply be to build more prisons, but instead lies in breaking the cycle of reoffending.”
“We inherited a particularly drastic situation, which will not be turned around overnight. The Minister will speak on behalf of the Government, but I expect the Government to make these difficult decisions until we are in a better position. That may have to be reviewed in due course. I do not speak for the Government, but I trust them to ensure that the public are safe and that there are places available, by whatever means, so that dangerous criminals can be put in jail. We must move beyond crisis management. This mission-driven Labour Government are investing to deliver 14,000 new prison places by 2031. My hon. Friend the Member for Colchester (Pam Cox) was right to point out that that contrasts starkly with the 500 prison places that the previous Government created in 14 years.”
“They must be backed by proper sustained funding, particularly to support the Probation Service, which is at the heart of a functioning and fair justice system. That takes me back to a project in Nottingham that I was proud to be involved with in the early 2000s. It was the community justice initiative under the last Labour Government’s “respect” agenda—yes, I am that old, Madam Deputy Speaker.”
“I recognise that prison places were created, but we are talking in net terms, and net, there were 500 extra places. [Interruption.] We are certainly not happy with only 500 places, net, over 14 years. That is why this Government are taking action to increase prison places in real terms. We must sort out the cycle of reoffending, which places a massive strain on the system. Almost 60% of those receiving a prison sentence of 12 months or less reoffended within a year, and in those instances, focusing on what happens after a crime has been committed is the best way to prevent future offending. We do not need a justice system that is bigger; we need one that is fairer and more effective. Our ambition and reforms to make our streets safer cannot be achieved by enforcement alone.”
“The Ministry of Justice’s budget for 2025-26 shows other welcome increases, including nearly £800 million more for day-to-day spending, £523 million of which is allocated to prisons and probation, and a huge 32% increase in capital expenditure. The justice system has suffered from years of underfunding and under-resourcing, which has resulted in overcrowding and overburdening. Justice reform is about protecting communities, supporting victims, and giving offenders the opportunity to transform their life and reintegrate into society. If we are to avoid a return to the crisis we inherited, the Probation Service must receive the resources that it desperately needs.”
“I therefore wholeheartedly welcome the shift from short prison sentences, which are proven to do little to reduce reoffending, towards community sentences, which get to the root of the offending behaviour. I am pleased that we have a research-based sentencing review, through which we can work to reduce the problem and tackle the causes of crime, but that work must be financed in a sustained manner if it is to succeed. The Probation Service is at a crossroads, and its future will be decided by the adequacy of resourcing, staffing, and funding. The Government have promised that it will receive an increase by 2028-29 of up to £700 million to support the reforms set out in the independent sentencing review, and the Minister responsible for prisons, parole and probation has set a target to recruit 1,300 probation staff in the next year.”
“I do not have a crystal ball and do not claim to see into the future, but as we look ahead to the Ministry of Justice’s prescribed spending for the following year, it seems that, as ever, two possible scenarios are before us. In the first we learn from the past; in the second, we repeat its mistakes. Let me be clear: we cannot allow history to repeat itself, and we must not allow ourselves to return to crisis point because we are unable to resource initiatives that will help us to reform the justice system. As a prosecutor, I saw the same individuals pass through the courts again and again. I saw how the cycle of reoffending devastated lives, clogged up courts, and cost the taxpayer millions.”
“Indeed, Madam Deputy Speaker, and I am grateful for the fact that you did not; I am very conscious of my age myself. The community justice initiative brought the community into the justice process. It allowed community impact statements to be made for certain offences, such as antisocial behaviour, and took a holistic approach to sentencing. It aimed to tackle drivers of offending, including drug misuse, unemployment, and poor education. Although the initiative worked, it was unfortunately short-lived because it lacked the resources and funding that would have made it sustainable in the longer term. Just like the community justice initiative, the reforms set out in the first year of this Government offer enormous promise.”
“My constituents are people of common sense, and they tell me that they do not think millionaires should get the winter fuel allowance, but they did feel that the threshold was too low, so they will no doubt welcome today’s announcement. However, after 14 years of being let down by the Conservatives, they are wary of Government announcements, so can the Minister reassure my constituents that support for pensioners by way of the triple lock, pension credit and NHS investment will remain?”
“I am calling for mandatory training for social care staff, in line with the dementia training standards framework, which is absolutely essential, and I will continue to campaign for that. With the 10-year health plan for England due, this is a key moment. It is vital that improving dementia care is included in the NHS reforms, and I implore the Government not to pass up the opportunity to fix dementia care at long last.”
“Dementia UK is demanding that the Government commit ringfenced funding for a dementia specialist nurse service within each NHS acute trust, and Age UK is calling for urgent improvements to staff training in hospitals to ensure people with dementia have their needs fully met. I support both measures. My dad is now at home and is looked after by my step-mum Kate and my brother Bradd Farnsworth, supported by visiting carers. I recently asked whether they had had specialist training for caring for people with dementia. They had not, but said they would find it useful. They are not alone. Despite people living with dementia making up 70% of residents of older age residential care and 60% of people drawing on care at home, around 29% of social care staff have no record of dementia training.”
“Admiral and specialist dementia nurses can also be hospital-based, but they are few and far between. When my dad was hospitalised for an infection unrelated to his dementia, he was put on a general ward. He was so ill, we thought he would never get out of bed. Several weeks into his hospitalisation, I saw a nurse perform what seemed a miracle. He was able to get my dad to engage and even got him to stand up. Amazed, I asked how this could be. He explained that he usually worked on the dementia ward. It was his expert skills and knowledge rather than a miracle that made the difference, but the nurse was certainly an angel in my eyes.”
“For those people, Admiral nurses, employed by Dementia UK, can be a godsend. They provide an invaluable service to families confronting or navigating the reality of living with dementia. I recently had the pleasure of meeting Kath Hunt, who works at the Ripley branch of Nationwide building society. Nationwide has been partnering Dementia UK to offer free appointments with Admiral nurses in high street branches across the country, including in Ripley. Sadly, there are far too few Admiral nurses and, while I am thankful that the scheme exists, it should not fall to partnerships like this for families to get support. Dementia UK recommends that Admiral or specialist nurses should be core members of multidisciplinary neighbourhood health centres to provide vital care in the community. I wholeheartedly support that recommendation.”
“Dementia UK advocates for the Government to mandate every integrated care system to develop a young-onset dementia pathway to include providing timely and accurate diagnosis. I wholeheartedly support that. When my dad was diagnosed with dementia in 2018, my family and I were frightened. At the time I had a colleague, Sue, who had gone through this with her mother. She was kind enough to give me some advice: try not to focus on what you have lost; celebrate what you can still share and enjoy together. I remembered that advice recently when my step-mum, Kate, started the engine of my dad’s beloved classic car. His face lit up at the sound. Somewhere deep inside, he remembers the joy that restoring his Triumph Spitfire brought him over many years. Not everyone will have someone like Sue to talk to and living with dementia can be very lonely.”
“NHS statistics show that diagnosis rates, as of July 2024, were 65%, so a third of people living with dementia across the UK still do not have a diagnosis, meaning they are missing out on the vital care support and symptomatic treatment it can bring. The picture is particularly bad for the 70,800 people in the UK who are estimated to have young-onset dementia, where symptoms develop before the age of 65. Getting a diagnosis can take twice as long as for older people. My father-in-law, Michael Spare, was diagnosed with dementia at the age of 64. My mother-in-law, Yvonne, recalls how hard it was to get a diagnosis and to be taken seriously, despite them both knowing that there was a problem.”