Sarah Hall
MP for Warrington South · Labour (Co-op) · United Kingdom
“It was the middle of the night when Jane, who was back home in Warrington, received the call that no parent should ever receive—that Lucy had been shot by her father and had not survived.”
“I want to use my contribution today to talk about my constituent Lucy Harrison. I warn Members that what follows will be painful to hear—painful because Lucy was deeply loved, because Lucy’s life was taken in circumstances that should never have happened, and because Lucy’s family and loved ones have had to carry the truth of that day eve…”
“The senior coroner found that Lucy had been unlawfully killed. The senior coroner for Cheshire told the court that Lucy’s father’s actions on the day of her death were “truly, exceptionally bad and reprehensible” so as to amount to her death. She rejected the account that the gun had simply gone off.”
“She was building a life with her partner Sam. Sam has described Lucy as the joy of his life. She meant everything to him. Boxing Day 2024 would be the last time that Jane saw her daughter alive. On 27 December 2024, Lucy and Sam travelled to Texas to visit Lucy’s father and his family—her father, a British citizen, now lives in Texas.”
“I implore the Government to use every channel that they have to press the relevant authorities in Texas to reopen or formally reconsider Lucy’s case and to stand alongside a British family and ensure that the findings of a British court are properly considered.”
“The senior coroner’s findings directly challenge the description of Lucy’s death as a tragic accident, and they raise serious questions about whether the original investigation followed the evidence with the rigour that the case demanded.”
The complete record
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“Thank you; it is a pleasure to serve under your chairmanship, Ms Furness. I am grateful to colleagues for securing a debate on this issue, because it is something that I am hearing more and more about in Warrington South. When people come to see me about it, they are usually exhausted and upset. Their home is supposed to be the safest place in their life, but instead they are living in chaos. Indeed, this is such a widespread problem that there are now entire TV programmes about cowboy builders, and newspapers and broadcasters regularly produce guides about how to spot and avoid them. One constituent came to me after doing everything that a sensible person would do. They found a firm on Checkatrade, read the reviews, checked the company’s details and were confident they had found a reputable business.”
“I welcome the steps that Warrington borough council is taking, with an article 4 direction for the central six wards, but that still leaves the rest of my constituency without the additional layer of protection. Local councils need the power to plan with purpose, not just to react after damage is done. A national framework and a change to the rules that respects local communities would give residents faith that development is something done with them and not to them. Yes, we need affordable rooms, but not at the cost of affordable homes. Fair rules, good homes and tidy streets— that is the foundation of trust that local communities deserve. Until planning rules catch up with the reality on our streets, communities like mine will keep paying the price. It is time the system worked for the people who call these streets home.”
“A new mum told me that she can no longer open her baby’s window at night because of the constant comings and goings next door. Another resident said they felt powerless, like they were watching their community disappear before their eyes. At the same time, young families are being priced out of the very homes that once offered their parents a start in life. These are not isolated frustrations; they are warning signs that planning rules have not kept pace with reality. Right now, a family home can be turned into a small HMO without the need for planning permission, and that loophole has left councils and residents powerless to manage overconcentration without entering a laborious process.”
“It is a pleasure to serve under your chairship, Mr Dowd. On roads where people have raised families for decades, homes are being bought up, divided and converted into HMOs, often in what feels like a matter of days, and often by scalpers from out of town who are looking to turn a quick profit. My constituents tell me that they wake up one morning to find a skip outside, walls being knocked down and new tenants moving in next door—with no consultation and no conversation. That is what happens when planning rules overlook communities. It should be about balance, respect and the right of communities to have a voice in the places they call home. People are worried about noise, parking, waste and antisocial behaviour, but they are also worried about something deeper: the fabric of their streets and communities.”
“In Warrington, Platform is transforming the former Unilever site where Surf and Persil were once produced into a next-generation modular data centre that will provide the capacity, resilience and connectivity needed to power the UK’s AI revolution. From Persil to pixels, Platform is taking a brownfield industrial site with more than a century of manufacturing heritage and bringing it into the 21st-century economy. Will the Secretary of State set out what more the Department can do to support home-grown, local companies such as Platform to deliver projects of this kind, which combine cutting-edge AI infrastructure, data sovereignty, regional growth and high-value skills for the future workforce?”
“According to NHS data, while the number of people waiting for an autism assessment is levelling out, the time they are waiting is rocketing; the average wait time is 200 days more than it was a year ago. In order to reduce waiting times, integrated care boards should follow the NHS England national framework and operational guidance, and provide a standardised autism assessment process, but in many cases that clearly is not happening. Will the Leader of the House ask the relevant Health Minister to arrange a meeting with me to discuss which ICBs are struggling to implement the framework, and the action being taken to support them to ensure that they have the resources needed to follow the framework?”
“The third is to protect the classroom and make it a safe and stable place, especially during times of pressure. Teachers need time, training and trust to nurture as well as teach. These are simple, practical steps that would lift wellbeing and achievement. If we get this right, we will have a system that works for children, parents and teachers—one that finally gives every child the space to do their best and thrive.”
“Through my work as chair of the inclusion and nurture in education all-party parliamentary group, I am working closely with Nurture UK, the charity leading this work, to explore how we can make these approaches part of everyday practice in schools. If we want higher standards, we need to give every child the right conditions to meet them. Emotional and social development should be recognised as part of learning, not left to chance. I have three asks for the Minister. The first is to make sure that schools can assess pupils’ social and emotional development alongside their academic progress so that we understand what is helping or holding back learning. The second is to strengthen support around exams and results. Those moments can be overwhelming, so pupils need guidance and reassurance to get through them.”
“It is a low-cost, evidence-based way for schools to understand how pupils are coping and step in early when they need to. Schools that embed nurture approaches see improved attendance, better behaviour, fewer exclusions and stronger progress. Just ask James Roach, CEO of the Inclusive Multi Academy Trust, who says that “the impact of this approach is evident in the significant improvements we’ve seen in attendance, behaviour, and a reduction in exclusions.” It is a simple truth: when we invest in children’s emotional and social wellbeing, academic outcomes rise. That is what we should be building into assessment reform.”
“Our current system focuses on what children know without fully understanding what helps them learn. If we want to improve attainment, we have to look at the emotional, social and behavioural foundations that sit underneath it. When a child feels safe, calm and supported, they achieve more. That is what Nurture UK has been showing for over 50 years. It works with schools across the country helping teachers to assess and support children’s social and emotional development through tools such as the Boxall Profile assessment tool and interventions based on the six principles of nurture. These are rooted in the importance of supporting children to build secure attachments as a basis for lasting resilience and happiness in school.”
“It is a pleasure to serve under your chairship, Ms Lewell. I thank my hon. Friend the Member for Hertford and Stortford (Josh Dean) for securing this crucial debate. Teachers and parents alike tell me the same thing: there is too much pressure and not enough time to focus on children as people. We all want an assessment system that raises standards and helps children reach their full potential. Right now, the pressure it creates is doing the opposite. It is piling stress on pupils, parents and teachers, affecting confidence, wellbeing and learning and leaving too many children feeling like they are being judged and not supported. Too often schools feel like a conveyor belt, moving children along whether or not they are ready and sorting them by how well they cope—not by what they can do.”
“Families must have confidence that when their child needs support, it will arrive without unnecessary barriers, without a postcode lottery, and without their having to beg for what they are entitled to. Families are not asking for the world. They are asking for the basics—that the law is upheld and that support arrives when it is needed. Our job is to make sure that children with SEND and their families are at the heart of any reforms, shaping change through their lived experience, because every child deserves the right support at the right time to reach their full potential and thrive in the classroom.”
“As someone who has ADHD, I know how much difference the right support makes. For me, this issue is simple. Support in education is not a favour—it is a legal right, yet too many families have to battle to get what the law already promises. That includes families like that of my constituent, Vicky James, who not only fights for her own child, but gives up her time to help others through the maze of forms, delays and appeals. The SEND system should not have to depend on a parent’s stamina. Families want to know that their rights will be kept. They want the 20-week duty to mean something and not be a best-case scenario. They want to know that when deadlines are missed, their child will not be left without support in the meantime.”
“To row back now, or to create uncertainty about people’s status, would not only harm families who have already sold their homes, invested their savings and enrolled their children in British schools; it would also damage Britain’s credibility. Our word must mean something. Trust, once broken, is hard to rebuild.”
“I think of Rose and Wilson, who moved to Great Sankey to give their children a simpler and less pressured life; Renata, who set up a play café near Bridge Foot; Cheryl, who started a bakery on Buttermarket Street; Taki and the wonderful team at Warrington Hongkongers, who have created a supportive resource for Hongkongers arriving locally; and, finally, Oscar, a young man who spent time in my office on work experience, showing that this new generation are already part of the fabric of Warrington. They are here because Britain offered sanctuary when freedoms in Hong Kong were stripped away. We responded with the BNO visa route, because that was the right thing to do.”
“It is a pleasure to serve under your chairmanship, Sir Jeremy. In recent years, many Hong Kong families have made the brave decision to uproot their lives and move halfway around the world to Britain. They came here on the strength of our word—a clear promise that if they held BNO status, they would have a route to settle here and be able to build a future. More than 2,400 residents in Warrington South have signed this petition. That is the highest number anywhere in the country, which tells me just how deeply this issue matters to the people I represent. It matters because those arriving from Hong Kong are no longer just headlines or statistics; they are our neighbours. They are parents at the school gate, new business owners on our high streets, and young people starting out in education and work.”
“Every day, I see the contribution that Hongkongers make to Warrington South. What they need now is reassurance, not uncertainty. We must keep the five-plus-one route intact for Hongkongers, and in doing so show that Britain is a country whose promises can be trusted and whose Government stand by those who put their faith in us.”
“I absolutely agree with my hon. Friend, and I thank her for that intervention. Fairness and the rule of law cut both ways. These families played by the rules, paid the fees and came here legally. They have every right to expect that the path to settlement and citizenship remains exactly as was set out. Every day in Warrington, I see how Hongkongers contribute to our economy, our schools and our community life. They came because they believe in the same values of fairness, freedom, dignity and democracy that we do. I know that colleagues across the House share a cross-party pride in the BNO scheme; it said something good about who we are and what we are willing to stand up for. Let us not unpick it. Instead, let us fix what needs fixing in our border system without unravelling a promise that families have bet their lives on.”
“In Warrington South, too many children entitled to free school meals are missing out because of avoidable administrative barriers. No child should have to sit in a classroom hungry; every child deserves a full stomach and a fair chance. A simple change would make a big difference and ensure that every eligible child got the support that they are entitled to. It would ease pressure on families, help to reduce child poverty, and give schools confidence that pupils are ready to learn. Will the Minister commit to strengthening data sharing with not only local authorities, but the Department for Education, so that automatic enrolment for free school meals can be introduced?”
“Residents of Sankey Bridges, Penketh, Dallam and Bewsey know all too well what it means to live with the constant risk of flooding. That is why I have worked hard to secure over £2 million in additional funding to move the Sankey brook flood risk management scheme into its design phase, and why I will keep fighting for that important scheme. As Parliament rises for the summer, the work continues. For me, being an MP is not just about what happens in this Chamber, but about the conversations on the doorstep, the support we offer in moments of crisis, and the changes we fight for every single day. I will keep showing up, listening and doing everything I can to make sure that Warrington South gets the future it deserves.”
“The focus on practical, local solutions does not stop with the hospital; it carries through to the everyday support being delivered in our neighbourhoods. Just down the road, the Bread and Butter Thing at Dallam continues to support families with dignity and care, and in Bewsey, the community shop, which I helped to open, has become a lifeline, offering affordable food and a welcoming space at the heart of the neighbourhood. Flooding causes real worry in parts of Warrington South. On new year’s day, I was out supporting residents, directly helping people find alternative accommodation, delivering hot meals when the power was out, and launching a fundraiser to support families. The impact of the flooding was devastating, and for many, the recovery is ongoing.”
“At the same time, we have a duty to act now to tackle the immediate pressures facing our local health services, and to make a difference where we can. That is why, a few months ago, at Prime Minister’s questions, I made the case for a new urgent treatment centre in Warrington. Since then, I have had a meeting with the Health Secretary to set out just how transformational that project could be for our town. The plan is practical and ready to go, and has been designed to ease pressure on A&E and improve access to urgent care for residents. It is now with NHS England. I thank everyone involved, especially our brilliant NHS teams, including Nik and Lucy, for their vision, dedication and tireless commitment to improving healthcare in Warrington.”
“When it comes to services and infrastructure, our local hospital matters, but after 14 years of under-investment, my constituents are being let down by a system that is struggling to keep up with demand. In the past, false promises were made. I refuse to do that; I want to be honest with my constituents about the situation we find ourselves in. Securing a brand-new hospital is a complex, long-term challenge. Many of the hospitals in the Government’s new hospital programme that are ahead of us in the queue are not expected to be completed until well into the next decade, so it is clear that this problem will not be solved overnight. Warrington deserves a new hospital; that is why my hon. Friend the Member for Warrington North (Charlotte Nichols) and I will keep campaigning to make that a reality.”
“Inclusion does not end at the school gate; it extends to places where communities come together, such as our local leisure centres. Broomfields in Appleton is a much-loved facility that plays a vital role in keeping people active, connected and healthy, but it is ageing and needs serious investment. If we are serious about public health, we must invest in the everyday spaces that make it possible, and repair and refurbish leisure centres like Broomfields. We have seen what is possible when local facilities get the investment they need. In Bewsey and Dallam, we now have a proper community hub—a space that I was proud to help bring forward. Let me be clear: places like Broomfields deserve that same level of care, investment and attention.”
“At the heart of everything I do is the simple belief that every child, every family and every constituent should feel safe, seen and supported. That is why I have backed the Government’s plan to expand free school meals to every child whose family receives universal credit—a change that will support thousands of families across Warrington South. With new, free breakfast clubs on the way for every primary school, we are taking real steps to ensure that no child starts the day hungry. That is practical, compassionate and reflects something I hear time and again from parents and teachers alike: children learn best when they are fed, focused and ready to learn. While I am glad to see the Government moving in the right direction, there is still a way to go. I will keep fighting for a system that works for every child, not just the lucky few.”
“That means making sure that children with additional needs can access the right support early, and that specialist child and adolescent mental health services are not a postcode lottery. As chair of the all-party parliamentary group on inclusion and nurture in education, and as an officer of the APPG on attention deficit hyperactivity disorder, I see the national picture. In Warrington, I see the issues every day in the families I speak to, the schools I visit, and the casework that comes through my inbox. I hear from families who are doing everything they can, and teachers who are going the extra mile, but too often they do not have the right support or specialist provision for their young people.”
“As we rise for the summer recess, I want to take a moment to reflect on the real work happening back home in Warrington South in our schools, our community spaces, our hospitals and our homes. Parliament may not be sitting much longer, but that does not stop the work at home to deliver the change that our communities voted for last year. In recent weeks, I have visited schools and education programmes for children and young people, including Evelyn Street and Willow Green, and I have had the pleasure of welcoming pupils from St Philip and Barrow Hall to Parliament. Every conversation I have had with teachers, parents and education staff comes back to the same message: we need to get inclusive education right from the start.”
“Warrington South is home to brilliant businesses such as Gourmand!, an award-winning French café, Mamars, a wonderful artisan bakery and deli, Hideout, which serves the best piña colada in Warrington —apparently—and the soon-to-open Zak’s Shack, a new parent and child-focused café in Stockton Heath. Such businesses are the beating heart of our town, built by local entrepreneurs who serve the community they love. However, set-up costs, business rates and other barriers make it harder for them to operate. Will the Minister outline how the Department specifically supports the independent hospitality and food retail sector?”
“It means investing in the west coast main line and our rail network, not just patching it up; giving northern communities more than warm words and waiting rooms; and treating places like Warrington, Crewe, Liverpool and Manchester as the backbone of the country’s economy. If the west coast main line fails, the north falls further behind. That is not just bad transport policy but bad economic policy. At the start of this month, I asked the Chancellor what steps her Department was taking to improve the oversight and delivery of major infrastructure projects. The response noted reforms, the streamlining of approvals, the strengthening of assurance and publishing business cases, all of which are welcome. But let us be clear: better paperwork does not build railways.”
“Cancelling the northern stretch has not just cancelled a rail line; it has cancelled opportunity for towns like Warrington. It has pushed the bottleneck further north and left our communities behind once again. The Public Accounts Committee, on which I serve, has called this out. The DFT still does not have a credible plan to manage capacity on the line post HS2, there is no clear strategy for the land now left dormant, and there is no timeline for improving resilience. This is not what good infrastructure delivery looks like and it is not what northern towns were promised. If the Government are serious about bringing growth to all parts of the country, this is where it starts.”
“The Office of Rail and Road has been crystal clear: the southern portion of the west coast main line has no room for new services. Virgin; Wrexham, Shropshire & Midlands Railway; and Lumo all had their applications rejected because performance on the line is already stretched to its limits. The Department for Transport estimates that the west coast main line will reach full capacity by the mid-2030s—just 10 years from now—and right now there is no plan. Let us be honest: the current system is not built for the demand it is trying to serve, and without new, adequate infrastructure it will only get worse. HS2 was supposed to change things. It was meant to unlock capacity not just for shiny high-speed trains but for more local services, more freight and better reliability.”
“It is a pleasure to serve under your chairship, Dr Murrison. I put on the record my thanks to my hon. Friend the Member for Crewe and Nantwich (Connor Naismith) for securing this important debate on a topic that very much affects my constituency. My constituents in Warrington South are not asking for the moon. They are asking for trains that turn up on time, seats they can find, journeys that do not involve standing room only, and carriages with working air conditioning that does not buckle under the summer heat. Even the basics, like getting food or drink on a six-hour journey from London to Glasgow, are not guaranteed. Warrington sits at the heart of the west coast main line, and we know the pressures on the network at first hand.”
“We should exploit any opportunities to improve access wherever possible. As I was saying, communities like Warrington do not just need more transparency. We need more capacity and we need delivery that lives up to the promises we have been given.”
“It is one thing to fund services, but it is another to ensure that they truly reach and uplift the children who need them the most.”
“The Royal College has given Ministers a road map, including shifting care closer to home to transform children’s community services, introducing a dedicated waiting times target for children’s services and establishing a children’s health investment standard. However, we cannot talk about children’s health in isolation from poverty. We know that poverty increases the risk of poor mental and physical health, missed developmental milestones and poorer outcomes in school. Without real investment in family incomes, housing and food security, we are simply papering over the cracks. If we are serious about giving every child a fair start, tackling poverty must be at the front and centre. That is why I was pleased to hear that Warrington will benefit from the Government’s new plans to fund the new family hub model in our town.”
“Sadly, health inequalities remain stubbornly persistent and are undeniably linked to the unacceptable levels of child poverty and deprivation. Children’s health outcomes have been allowed to decline for too long. We know that the children’s health workforce is working incredibly hard, but over the last 14 years it has been underfunded and undervalued. Children and young people are waiting significantly longer than adults for access to health services, with 21.5% waiting for more than 52 weeks, compared with 1.3% of adults. Those numbers represent a gap in provision. In my own integrated health board area of Cheshire and Merseyside, more than 11,000 children are waiting for the care they need. Some 44% of children are waiting between 18 and 52 weeks, and 25% of children have been waiting more than 52 weeks for treatment.”
“Families tell me that there are long waiting lists for CAMHS, and gaps in speech and language therapy and school-based special educational needs co-ordinator support. They tell me about narrow criteria that are limiting health and care support, and how those criteria do not reflect their child’s unique needs, resulting in families feeling lost in the system. The NHS was founded on the promise that care would be there when we need it, no matter our income or postcode, but for too many children and families, that promise is fraying. Infant mortality remains stubbornly high. Conditions such as asthma, obesity and dental decay are sending more children into hospital, and mental health needs are rising, with longer waiting lists for specialist services.”
“If we want to raise a generation of healthy, thriving children, we must stop treating children’s health as an afterthought. This week, I launched a new survey asking constituents to feed into my work, and I thank everyone who has responded. The responses have helped to shape my contribution to this debate today, along with my work as chair of the all-party parliamentary group on inclusion and nurture in education. The focus of the survey was children, their education and wellbeing. I heard from parents, carers and guardians about their child’s experiences in schools and in accessing health services; about their child’s mental health, and the anxiety and stress caused by an outdated education system; and about barriers to accessing education because of their child’s neurodiversity or disabilities.”
“The buses are compliant with the strictest emissions regulations, contributing to cleaner air. They are powered by renewable energy and designed to be as green and carbon neutral as possible. We have an electrified depot that ensures smooth operation of the fleet, and Warrington’s Own Buses has overhauled fleet management with the introduction of a new digital system.”
“It is a pleasure to serve under your chairmanship, Dame Siobhain. I will speak to the clause and from my experience of representing an area that already benefits from the use of zero emission vehicles. Warrington’s Own Buses, our municipal bus company, set out an ambition to replace its entire diesel fleet with a fleet of all-electric buses with the aim of reducing carbon emissions in the town and transforming bus travel in the borough, and it has delivered on that. The all-electric, bright yellow buses, including new double-decker buses, were introduced in 2024. I was delighted to attend the launch. The new zero emission fleet has many benefits. Noise operation is much reduced, minimising noise pollution and creating a more pleasant environment for passengers and passers-by along the routes.”
“To what extent is the Ministry of Defence working with other Government agencies to ensure a joined-up response to emerging threats to military equipment and infrastructure?”
“It is a pleasure to serve under your chairship, Sir Roger. I am a Warrington MP, and, as has been mentioned, the town has one of the country’s eight remaining municipal bus companies—the award-winning Warrington’s Own Buses. It is a trailblazer, and it is an example of what a municipal bus company can be and what can be achieved. For example, Warrington still has capped fares, and the bus company can still offer a flat fee of £2 for adults and £1 for under-22s. We have a pioneering all-electric fleet and a brand-new depot. Any profit goes back into the service, and we have free travel for care leavers. With a municipal bus company that understands our communities, we have been able to maintain the essential services that private providers would simply give up on and walk away from.”
“I thank the hon. Gentleman for his comments. I put it on record that Ben Wakerley, who heads up Warrington’s Own Buses, is fantastic. He has been a real asset for us. Experience is an important factor, but it is also about understanding the community that a company serves, and that does not take 30 or 40 years. It just means taking the time to know and understand the community. Ben has not been there for 30 or 40 years, but he has been leading the way with a lot of the delivery. Collaboration can be good, but my experience of Warrington’s Own Buses, and of how it has focused on services and delivered in the way that it has, shows how powerful that format can be. I encourage other areas to adopt the same thing, because it has put power back into the hands of the community, not private providers.”
“It delivers social value, environmental gains and a surplus back to the local authority. We must protect municipal bus companies that already serve their communities and give local authorities the freedom to use them as part of new franchising arrangements. I urge the Minister to ensure that the Bill and its guidance reflect the principle that where public ownership works, as it does in Warrington, we back it and build on it, because that is how we will reverse the long decline in our bus services under successive Conservative Governments and start to deliver the modern, affordable, low-carbon transport system that our communities deserve.”
“The Bill will restore, for the first time in decades, the power of local authorities across the country to create new, publicly owned municipal bus companies. When bus services are run in the public interest, they work better and they work for everyone. In Warrington South, we already know the difference that that can make. Warrington’s Own Buses is a fantastic example of what a publicly owned bus company operated under a Labour-run administration can achieve. It is rolling out a fully electric fleet and continues to offer a flat fare of £2 for adults and £1 for under-22s. It provides free travel for care leavers and maintains essential services that the private sector would walk away from. It is a bus company run for the public good, not for private profit. It is locally managed and accountable to the people it serves.”
“The Government have today announced best value updates for five local authorities, including Warrington borough council. The findings for Warrington have highlighted a number of serious conclusions that must be addressed. However, we should also recognise the pressures that local authorities faced under the last Government, with significant reductions to funding and increased demands on their services. Warrington council must now go further and faster to improve, restore trust and deliver best value for my constituents. Will the Leader of the House make time to debate the important topic of local government finance and the actions that the Government are taking to support local authorities?”
“Q11. I welcome the Government’s action to fix our NHS and deliver 2 million more appointments, which my constituents are already benefiting from. Together with Warrington and Halton NHS trust, I recently submitted a ready-to-go proposal for a new urgent treatment centre and out-patients facility in Warrington, which has over 200,000 residents but no urgent treatment centre. The proposal would reduce A&E waiting times and deliver 100,000 appointments every year. Will the Prime Minister or the Health Secretary agree to meet me and local health partners to discuss that transformational project?”
“They must always have access to a car, and theirs cannot be a one-car household. Every family decision, no matter how small, is shaped by proximity to emergency care. Their other children have also been drawn into the experience. They have learned how to spot signs of danger and been taught how to perform heel pricks. The whole family has stepped up to help keep their baby sister safe and well. It is clear that congenital hyperinsulinism is not just a medical diagnosis; it is a whole-life diagnosis.”
“Left undiagnosed or unmanaged, the consequences can be life altering, increasing the risk of long-term neurological complications and impaired neurodevelopment. The clinical challenges are complex and the emotional toll on families enormous. When I recently met Ibbie at one of my constituency surgeries, I met a bright, smiling two-year-old, full of life, but behind that smile is the reality her parents face every single day of managing risk, navigating a system that too often does not understand their daughter’s condition, and fighting for basic support. While the challenges Ibbie faces in living her life are many, her parents Gavin and Joanne are doing everything they can to help navigate them. Joanne and Gavin are both teachers—a maths teacher and an English teacher—but they cannot work. Ibbie’s needs mean they must always be close by.”
“I beg to move, That this House has considered the impact of congenital hyperinsulinism on patients and their families. It is a pleasure to serve under your chairship, Ms Butler. I dedicate my remarks to my constituents Joanne and Gavin and their daughter Ibbie, who is two years old. Ibbie lives with a rare and serious condition called congenital hyperinsulinism. This is a term many will not have come across, but one that has come to define every part of life for the families that it touches. CHI affects around 95 babies born in the UK each year, with just over 2,000 people currently living with the condition. It causes the body to produce too much insulin, leading to dangerously low blood sugar levels.”