← LEADERSHIP TERMINAL

UK PARLIAMENT · SITTING

Dr Scott Arthur

MP for Edinburgh South West · Labour · United Kingdom

IN THEIR OWN WORDS

“There are similar issues at Edinburgh University, which is outside my constituency, but quite a lot of staff and students are based in Edinburgh South West. This situation cannot continue. We need the Scottish Government to bring together universities, staff, students and trade unions to agree a way forward.”

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“Members’ attention to my entry in the Register of Members’ Financial Interests: I am a member of UCU and have an ongoing connection with Heriot-Watt University. Because of the huge stresses on the sector, there is industrial action at, I think, six universities in Scotland right now.”

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“It is great to see our Prime Minister putting universities at the heart of the triple helix model that he talks about so often. In a debate in Westminster Hall 18 months ago, I quoted the then president of NUS Scotland, who warned that Scotland’s education system was “crumbling”.”

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“It is a pleasure to serve under you today, Ms Vaz. I thank my hon. Friend the Member for Sheffield Central (Abtisam Mohamed) for the way in which she introduced the debate.”

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“I am concerned that the Government are making it harder for both staff and students to come here. If we are serious about growing our economy, we have to recognise the benefits that universities provide, both nationally and locally in our towns and cities.”

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“I thank my hon. Friend for shedding light on those cases. It cannot be easy for the families to hear again what happened. The reason we are back here, I expect, is because the sentences are not a deterrent, and because the term “death by dangerous driving” completely underplays what happens, particularly in the cases my hon.”

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The complete record

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This is not an official version of UK Parliament proceedings. It reproduces the published record and links to it; the official version is the one UK Parliament publishes.

  1. “Of 5,000 streets in Edinburgh, an estimated 500 were going to be problematic, but within a few weeks of the ban being introduced, we were down to just 20 streets where there were outstanding issues. A year later, there are only around 20 streets where actual parking restrictions will have to be introduced to ensure that traffic can move freely. That has been completely transformative, particularly for people who have visual impairments, for people who are disabled, and for parents and grandparents pushing buggies. It has helped to create a more equal city.”

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  2. “It is a pleasure to serve under your chairship with a 90-second speech limit, Mrs Hobhouse. I thank the hon. Member for Epsom and Ewell (Helen Maguire) for securing this debate. In 2023, I met Elaine and her guide dog Tessy and she was able to show me first hand the impact that pavement parking was having on her life. I could see how she was terrified to pass parked cars on the pavement, and where she had to go on the road. She said she was absolutely terrified. I have to say that watching her, I felt absolutely ashamed. I think all of us are here to create a fairer and more equal country, no matter which party we are in. A pavement parking ban is an easy and simple way to make progress. In Edinburgh, I was proud to be part of a group of councillors who introduced a ban.”

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  3. “Each time I debate this issue, I fill myself with hope that we will get a positive announcement from the Secretary of State or the Minister. I hope that we get that in this debate.”

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  4. “I do not speak for RNIB Scotland or Guide Dogs Scotland but people with visual impairments leading isolated lives are a real concern for them. They want those people to be out working, meeting their friends, shopping and so on. Cars parked on the pavement are a barrier to that happening, so this issue is absolutely core to our wellbeing and to creating a more inclusive society. As the ban came into force in Edinburgh, we got quite a few emails from people who were concerned. The most common question was: “Well, where should I park my car?” I always say, “Look, just don’t park it on the pavement.” I think most people who parked on the pavement knew that it was the wrong thing to do. The ban was actually forcing them in the right direction, and creating a more equal community.”

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  5. “Often we are faced with a dilemma between driver convenience and the safety of pedestrians. I think the safety of pedestrians always has to come first. Parking on the pavement is not an alternative to blocking the road to emergency vehicles. You should not be blocking the road to emergency vehicles and you should not be parking on the pavement. Apologies.”

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  6. “The Government inherited bond yields higher than those in many other countries. Right now bond yields are going up in Japan, Germany and the United States. Is the Chancellor responsible for all that?”

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  7. “Thank you, Madam Deputy Speaker; I had forgotten how much I enjoyed bobbing. We all want to be proud of the UK’s asylum system, but because of the mess we inherited from the previous Government, none of us are there right now; that is just a fact. I thank the Home Secretary for the methodical work that she is doing to get a grip of the situation and get the system back on track. It really pains me, though, that some of the people who are behind this mess are now sitting on the Opposition Benches and seeking to weaponise it, rather than apologising to the country. Does the Home Secretary share my hope that extending the Ukrainian visa scheme and the refugee student scheme, bringing Gaza students here and supporting injured Gazan children will provide a chance to show the UK immigration system at its best?”

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  8. “I thank my hon. Friend for this debate. A few days ago, in my office, I met relatives of people who died on the Suez Maru, which was lost in similar circumstances, with about 550 prisoners of war on it, a great number of whom were machinegunned in the water by members of the imperial Japanese navy. The fight of the relatives I met was not for a memorial; it was for an answer from the Government about why a war crimes trial did not take place. All these years later, it is an emotive subject for them, and one of the relatives was crying in my office. That is a reminder that although years have passed—that ship was lost in 1943—people can still feel raw and emotional. It is right that we remember such losses.”

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  9. “I thank the Minister for his statement, and particularly for the news that there will be a thorough investigation. I have two quick questions. First, are the reports correct that the previous Government did not meet representatives of the sector for 13 years? I know the Minister said that he had met them recently. Secondly, families will be in crisis when they hear this news, and they will struggle to deal with it. Does he agree that the owner, who I understand is not short of money, has an absolute moral obligation to ensure that those families are supported? Statutory payments are welcome, but the moral obligation has to be made clear.”

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  10. “I thank the police for how they have dealt with the violent disorder that we have seen from a minority of people in recent days. I would much rather that the police were investigating the crimes that are allegedly behind the incidents. I also thank the Minister for showing zero tolerance to the minority of people in our asylum system who break the law—it is right that we do that. She mentions that the number of asylum hotels has come down. Has the bill also come down?”

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  11. “I congratulate the Secretary of State on the scale of ambition he has shown today. Although there are many issues in the water sector in Scotland—not least the combined sewer overflow discharges into the Water of Leith at Colinton Dell—one thing we understand is that to reduce CSO spills, we have to reduce the amount of rainfall going into our combined pipes, which is done through planning in Scotland. The Cunliffe report makes clear that it is time to enact schedule 3 to the Flood and Water Management Act 2010, which would do the same in England. Will the Secretary of State take that recommendation forward?”

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  12. “I welcome this announcement, and I can only speculate about why the Conservatives did not decide to clean up party funding when they were in Government. I want to echo some of the comments about proportional representation. Personally, I feel that it is at the heart of many of the problems the country has faced in recent times. I absolutely accept that proportional representation is not part of the Government’s proposals, but will the Minister keep an open mind and look at how other strong democracies around the world have been able to use PR to both strengthen their democracy and create a more collaborative political culture?”

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  13. “Will she also wish them well for the summer holiday, which is under way already in Scotland, and for their coming academic year in primary 5?”

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  14. “I thank the Leader of the House for her statement, and for the good humour and patience that she has brought to the Dispatch Box over the last year. Last week Mike and Clare, two climate activists from Edinburgh South West, brought to this place dozens of climate change posters created by children in primary 4 at Bonaly primary school in my constituency. The posters were absolutely fantastic, covering everything from supporting bees and planting trees to encouraging their parents to drive less and perhaps install solar panels. Will the Leader of the House join me in congratulating the children for the leadership they are showing? They are not waiting for us to take action but are demanding that we do so.”

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  15. “That is really important work, because fashion designers—I am not sure how many of them we have in the Chamber—can use it when selecting fabrics for their designs, to understand how likely it is that those small fibres will fall off. We know that clothing is not the only problem. Global plastic production is set to triple over the next three decades, as we have heard, but our waste management structures are ill prepared to deal with that looming threat. It is therefore right that we take the plastics treaty seriously.”

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  16. “They estimated that the human intake of microplastics from mussel ingestion ranged from 9,000 to 12,000 microplastic items per person per year. Mark was also part of a team that identified microplastics in seagrass in the Deerness Sound area of the constituency of the right hon. Member for Orkney and Shetland. It was found adhering to the blades of the seagrass in some cases. Elsewhere in Heriot-Watt University, a small team headed by Dr Lisa Macintyre, an associate professor of textiles at the university’s school of textiles and design in Galashiels in the constituency of the hon. Member for Berwickshire, Roxburgh and Selkirk (John Lamont), who is also in his place, has overseen painstaking research to co-develop the world’s first visual fibre fragmentation scale.”

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  17. “I make my comments in the context of my declaration in the Register of Members’ Financial Interests. I thank the right hon. Member for Orkney and Shetland (Mr Carmichael) for securing the debate. It is on an issue that resonates strongly with many residents in Edinburgh South West—it is not an overstatement to say that I was inundated with emails on it. Plastics are everywhere. As we have already heard, they are in construction, healthcare, clothing and furniture. It is estimated that about 14 million tonnes of microplastics are lying on the ocean floor right now, and the fashion industry is among the biggest sources. My former colleague at Heriot-Watt University in my constituency, Dr Mark Hartl, was part of a team who found microplastics in green mussels sold in traditional seafood markets in Jakarta.”

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  18. “I recently spent an afternoon touring one such venture called The Forge, a pop-up community maker space, based in renovated shipping containers on a site in Fountainbridge, next to the canal and just along from my office. It provides tools, facilities and training to people from all walks of life, including students, artists, do-it-yourself enthusiasts and homeless people. When I visited, there was a young man making a hat block. I thought it was for him to store his hat on, but he intended to make a pirate hat for a pirate festival, of all things. I tried to google where the pirate festival was, but it turns out that pirate festivals are quite common, so it could have been almost anywhere.”

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  19. “That is clearly not sustainable, but it seems that we have become all too comfortable recycling being a matter of “out of sight, out of mind.” We have to remember that once we lose sight of our waste, in many cases we also lose control of what is happening to it. Many residents write to me about that. Even if we were to develop the processing capacity at home, dealing with plastics will always be a problem so long as our consumption remains high, so a much stronger focus needs to be placed on reuse and developing a circular economy, as we heard earlier, not just in Scotland but throughout the UK. In my constituency, I am proud to say that I have several organisations that promote reuse, ranging from sharing libraries to repair and reuse charities.”

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  20. “I agree with my hon. Friend. I know that it is important to his constituency, because I can remember how people were really concerned about plastic cotton buds getting washed up on Portobello beach. Thankfully, through changes, that is now much rarer, but it is still an issue. In Scotland alone it is estimated that we generate around 300,000 tonnes of plastic packaging items annually and, as of 2021, we were recycling only about 4,500 tonnes of that. Each month, Scotland exports about 100 tonnes of waste to different parts of the UK and right across the world. That is an export that I am not proud of. Poor planning on the part of the Scottish Government means that, by the start of next year, 100 tonnes of waste a day will be moving from Scotland to England to be processed.”

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  21. “Some may see that as a compromise that lets major polluters off the hook, but I believe that international co-operation is vital, and similar models have worked well in getting those nations signed up to some kind of baseline target. It would help break the deadlock, and allow high-ambition states like, I hope, the UK to set and hit bolder targets, leading by example. Something is better than nothing. We must make progress on this issue, and a global treaty is essential if we want to protect our planet and the health of future generations.”

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  22. “At the UN talks held in South Korea last year, we supported a draft text on legally binding global reductions in plastic production, and on phasing out certain harmful chemicals and single-use plastics. Unfortunately, a consensus could not be reached, largely due to the usual suspects—China and Russia among them—all pushing back against those targets. The negotiations will remain highly contentious as long as those countries, whose economies are heavily reliant on plastic, want to hang on to it. Having read Dr Lindner’s evidence to the Environment, Food and Rural Affairs Committee earlier this week, I think an inclusive two-tier model could go some way towards resolving those disagreements, if we cannot get those countries to be as bold and ambitious as I hope the UK is.”

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  23. “That is why I fully support a deposit return scheme that covers the entirety of the UK; I look forward to its introduction in 2027. That may not be quick enough for some people, and I respect that, but we have to balance the pressing need for change with the economic reality for small businesses, which will have to adapt to the new regulations. As others have said, if hon. Members want to see how not to do this, they should just look to the Scottish Government. Its scheme was an absolute embarrassment. Proper consultation is important, and I think Scotland has shown that. On a global level, I am proud that the Government have fully recognised the importance of tackling plastic pollution through internationally binding treaties.”

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  24. “Thank you. As well as the hat block, I also saw tables, chests of drawers and even kitchen utensils being made. We could drastically cut our overreliance on plastics if we had more such initiatives; they empower us to create our own long-lasting alternatives, reusing materials and developing lifelong skills in the process. Another charity in Edinburgh South West—one that is under a little bit of pressure just now—is Four Square’s Edinburgh Furniture Initiative. It largely sells used furniture and household items, and it uses its income—a non-trivial amount of money—to help solve Edinburgh’s housing crisis. It is an absolutely fantastic project. As I noted, the plastic consumption and processing economies operate across borders, making this an issue that requires a truly joined-up approach.”

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  25. “For some while, it was going to be much longer than three years, and all of us want it to be much shorter, but that was the compromise we reached—it was like “Goldilocks and the Three Bears”. We reached that compromise together, so I urge the hon. Member to respect our negotiations on that issue.”

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  26. “That covers amendments 1 and 2. Amendment 5 is about the definition of a rare cancer, which is an aspect of the Bill that I have not spoken about in any great detail, so it is worth touching on here. The Bill sets the definition of a rare cancer in statute and aligns it with the definition of a rare disease, which is a useful simplification. In future, let us hope that some conditions fall out of that “rare” specification and need less emphasis, and let us also hope that people in the Department look at the treatments that are being developed inside and outside the UK. It is right that there should be a bit of flexibility at the edges of what the Department considers a rare cancer. The timeline of the review is three years. Again, we spent a great deal of time talking about that.”

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  27. “Member suggested; there is a whole coalition of people who have different opinions about the Bill, and I do not think any one person has a right to change it in that way, including me. That would be hugely disrespectful and a disappointment to that coalition, but I understand the hon. Member’s points. The Minister will go through the amendments in turn, so I will focus on three key ones. The review of orphan drugs was one of the hardest-fought things in the negotiations with the Department and charities, but we found a point that we could all agree on. I appreciate that the hon. Member wants it to go further, and perhaps we could speculate about the outcome and better prepare for it, but it is much awaited by the charities and they are grateful for it. I do not want to speak on their behalf, but that is what I have heard from them.”

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  28. “I rise to oppose the amendments, but I thank the hon. Member for Christchurch (Sir Christopher Chope) for tabling them, for engaging with the Bill and for our conversation yesterday, which I really appreciated. I understand the stated intent of the proposals, although I am not minded to support them. Over the last 10 months, I have held dozens of meetings with families, survivors, sufferers, charities, clinicians and legal experts, all with the aim of delivering meaningful change in this field. Those meetings were not so that I could tell people about the Bill, but so that those people could shape the Bill. I fear that if we were to pass these amendments, they would upset the delicate balance of hopes and aspirations that underpins the Bill. It is not just about the Minister, as the hon.”

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  29. “I regret not inviting him to take part in the Bill Committee—we would have benefited from some of these comments at that stage—but some of the points that have been raised were discussed in Committee. It was a reasonably long discussion; it did not last for hours, but it was not as short as some. I remain committed to working constructively with colleagues as the Bill progresses beyond today—let us hope it gets beyond today—but I respectfully ask, in the strongest possible terms, that these amendments are not pressed. If they are, I hope Members will oppose them.”

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  30. “I thank the hon. Member for that question. Of course, the review will not start on day one after passing the Bill. It will take time to get up and running. The existing workload of those staff members will have to be reallocated, and I hope and expect there to be some initial engagement with the sector—both charities and pharmaceutical companies—so a bit of flexibility is required. To be honest, I would love more money to be spent on that review so that we can get more depth and it can have a greater impact. I am sure other hon. Members present would agree. I hope the hon. Member for Christchurch understands my position and recognises the strength of cross-party and sector-wide support that has brought the Bill this far.”

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  31. “It sounded exciting, and I was looking forward to getting my picture taken next to it, but it is actually a very ordinary piece of instrumentation. I got my picture taken in the end, but I do not think I used it. It is a fantastic piece of equipment, and it is coupled with a supercomputer. It does what would previously have been a lifetime of analysis in just a few days. It is fantastic that in this House, we have all agreed that Edinburgh University should get a new supercomputer. Analysis that used to take a few days will take just a few hours, moving us closer to finding cures. The United States has shown how investment in this area can stimulate growth through its cancers Act. It would offer a real step change in the UK if we could do the same. I will draw to a conclusion, because I know others want to speak.”

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  32. “She said: “Your Bill will make a significant difference, helping tens of thousands who desperately need more research to find a cure.” No pressure, therefore, for me or us in the Chamber today. There is also a strong economic argument for introducing this legislation. By creating the conditions for more rare cancer trials to take place in the UK, we can attract investment, stimulate innovation and create new jobs in research, science and healthcare. This is an opportunity to give British science and institutions a global leadership role in tackling some of the most challenging diseases of our time. I recently had the pleasure of visiting Edinburgh University researchers based in an NHS hospital, the Western general in Edinburgh. I was invited along to see a thing called a robotic microscope.”

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  33. “Another helpful charity, Brain Tumour Research, said that the Bill “could significantly improve research and treatment pathways for patients.” Pancreatic Cancer UK, which has been at the core of what we are doing—and, it turns out, has been in correspondence with the hon. Member for Christchurch (Sir Christopher Chope)—says that if the Bill “becomes law, it has the potential to improve survival rates for pancreatic cancer and other cancers that have been left behind.” I know the hon. Member for Witney (Charlie Maynard) wanted to be here today but could not be. Instead, his sister Georgie left a message on my social media. She lives with glioblastoma and is a fantastic campaigner in this field.”

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  34. “Lastly, the Bill will trigger a Government review into orphan drugs—I really dislike that phrase; this is about rare conditions—to explore new pathways to incentivise pharmaceutical companies to trial repurposed and innovative treatments for rare cancers. Together, those steps will reduce the barriers to research and attract more trials to the UK, and ultimately lead to faster and fairer access to lifesaving treatments. I am a humble person, and do not want to be accused of overstating the impact of the Bill, so I will take the liberty of quoting others, if Members do not mind. The Brain Tumour Charity, which has been so helpful, says that the Bill will be transformative and help to “improve access to clinical trials for people living with rare and less common cancers”.”

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  35. “It will achieve that by placing a duty on the Secretary of State to promote research into rare cancers, including appointing a national specialty lead to co-ordinate efforts across the sector. If anybody doubts the need for that, I am sure my hon. Friend the Member for Mitcham and Morden can talk about what has been happening in recent years. The Bill will also increase patient access to clinical trials by strengthening and streamlining the Be Part of Research registry and building a central database of willing patients to help researchers to find trial participants more easily. That is key to attracting trials to the UK.”

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  36. “For far too long, rare cancer patients have been left behind—as medical science makes significant progress in many other complex fields, we have not seen enough progress in this one—but they feel this piece of legislation could mark a meaningful shift for many and turn out to be life-altering, perhaps even lifesaving, for some. There is one statistic that I often mention: rare cancers are not really rare, as they account for 47% of all cancer diagnoses in the UK each year. That equates to 180,000 people. If you are one of those 47%, two things are true: you are more likely to face outdated treatments and you are more likely to die. The Bill is about justice and creating a more level playing field for those patients and their families.”

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  37. “Rare cancer patients continually push back and advocate for the changes that they believe must happen—often fundraising or even setting up and running their own charities to help to achieve those goals. Thirdly, each and every story concludes with an offer of help. Rather than asking what I can do for them, because often rare cancer patients know that their options are limited, they want to know what they can do to help with the Bill, help others with the same condition, and help to make this legislation a reality. I believe that is a testament to the transformational role that the Bill could have, and I thank Members who have already made that point.”

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  38. “What is happening to people who face these conditions is quite incredible, so it is right that we seek to address them. It has been incredible to hear these stories, and when I reflect on them, I can see that there are three recurring themes. The first is frustration. As things stand, our NHS is ill equipped to deal with these patients. Awareness levels are often low among clinicians, which leads to the scourge of late diagnosis. I know that will be addressed in the cancer plan. Families and patients are also frustrated by the limited access to cutting-edge trials—I have already given an example of that. As a result, many rare cancer patients understandably feel like they have to battle not just against the cancer but for attention. The second key thing that unites these stories is perseverance.”

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  39. “Today, I also want to acknowledge the many people from across the UK—not just voters in Edinburgh South West—who have contacted me to voice their support and share their stories. One lady travelled quite far to meet me at my constituency surgery in July in Tesco in Colinton Mains. Her daughter was diagnosed with a sarcoma. In Tesco, next to the bleeping self-checkout aisles, she told me about the uncertainty she had faced after that diagnosis and how she had found it impossible even to understand which trials were available, let alone access them. I could see that she had felt powerless and had lost hope. The other reason she was in Edinburgh—perhaps the most important reason—was that she was meeting her ex-husband to scatter her daughter’s ashes in a local park.”

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  40. “The reality is that someone who was diagnosed that day with glioblastoma would more than likely be dead by now—that is how serious the condition is. They would face treatments that were out of date, and their future would be dominated by uncertainty. We should not forget why we are here: to change that reality for people and their families. This Bill has resonated with many Members of this House and with many people in my constituency. On Second Reading, I shared the tragic stories of a young constituent called Tilly, who passed away from neuroblastoma, and Kira, who has lived with the same condition for a decade—half of her life. I am proud to wear the Solving Kids’ Cancer badge, which Kira’s mother Aud gave me when I last met her.”

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  41. “I beg to move, That the Bill be now read the Third time. What a joy it is to say that! Madam Deputy Speaker, it has been 10 months since you pulled my little ping-pong ball out of the goldfish bowl and I started this journey. It is worth remembering that part of the reason behind this Bill was the death of my father-in-law to a rare cancer type called glioblastoma. I am forever grateful to my hon. Friend the Member for Mitcham and Morden (Dame Siobhain McDonagh) for the information she gave me about that condition and how it impacts so many people, because I had always just been focused on my father-in-law. When the ping-pong ball was pulled out of the goldfish bowl, I got so many emails, many of which were about glioblastoma.”

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  42. “First and foremost, I thank residents in Edinburgh South West for electing me and giving me the chance to bring the Bill forward. I did not know it at the time, but without their electing me, I would not be standing here to champion the Bill. I look forward to it receiving support today and to continuing to champion it as it moves to the other place. Question put and agreed to. Bill accordingly read the Third time and passed.”

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  43. “I must also thank Sonia from H/Advisors Cicero for her help in recent weeks as we approached Committee and as we have started to think about the transition to the Lords with some optimism. She and her husband Dan have been fantastic. I must also thank my team in my office for the support they have given me. I thank in particular Noel and Tommy but also Lucie, Hannah, Salim, Maisie, Joe, Xavier and Evie—that is quite a long list of names because we have a slightly complicated situation with our interns just now. I look forward to the Bill’s continued support. I hope that it will pass today. As has been outlined, when it—hopefully—reaches the House of Lords, it will be in the safe hands of a formidable woman; I have great confidence in her.”

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  44. “Friend the Member for Bury South (Christian Wakeford) for whipping us all on these Friday mornings and helping us along the way—just as he enters the Chamber. I must also thank the many charities who have been at the centre of this process. There are somewhere between 30 and 40 of them, and I mentioned the key ones earlier. Many hon. Members said—quite politely—that they had received quite a lot of emails over the last few days, perhaps stimulated by the submission of amendments to the Bill. I think that the charities sent about 120,000 emails this week, which is incredible. As hon. Members can imagine, my inbox is a bit of a mess just now, but that tells us how important the Bill is for them. They have waited a long time for this opportunity, and I really thank them for urging me along.”

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  45. “I thank the DHSC civil servants, some of whom are with us today, for their support throughout the Bill’s passage. I must also pay tribute to the Minister for his support, as well as the Under-Secretary of State for Health and Social Care, my hon. Friend the Member for West Lancashire (Ashley Dalton)—we all know who she is—for the comprehensive backing that she has provided throughout. I was at an event on Monday with both the pharmaceutical industry and some of the charities supporting the Bill, and they all have huge respect for the work she is doing. I really thank the hon. Member for Hinckley and Bosworth (Dr Evans) for his supportive comments on behalf of the Opposition, which went well beyond what I thought was reasonable. [ Interruption. ] I was trying to phrase that in the proper way. I also thank my hon.”

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  46. “With the leave of the House, I thank you, Madam Deputy Speaker, and hon. Members who have contributed to the debate. I will not thank them all as I want to keep an eye on the time, but I will single out my hon. Friend the Member for Mitcham and Morden (Dame Siobhain McDonagh) for helping me to start out on this journey. When I first met her, I thought she was driven by grief at the loss of her sister, but I now know that she is driven by her love for her sister. That is an important difference. I also thank the many people who used the debate to celebrate the life of Dr Susan Michaelis and who continue to support the lobular moonshot project that she left behind. We wish them well. I am sure that we will keep her family in our minds today.”

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  47. “I just want to make a gentle point to the hon. Member. He points out that the process feels rushed, but sitting here, I observe that there is not a lot of demand to speak from Members from any of the other parties on the Opposition Benches: just two Conservative MPs, no SNP MPs and no Reform MPs. Does he share my disappointment?”

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  48. “In that regard, I acknowledge the work of the hon. Member for South Antrim to ensure that Northern Ireland generally, and his constituents specifically, benefit from the Bill. Clause 5 will provide for commencement, which will occur two months after the Bill is passed, and clause 6 provides the short title for the Bill. I hope the Bill has real impact, because so many people in the charity sector and elsewhere are working so hard to raise often small amounts of money, which they hope will have a big impact. I hope the Bill amplifies their work and helps it to go further. I look forward to Committee members’ contributions to the discussion of this important Bill, and I commend the clauses to the Committee.”

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  49. “The twin benefits to enhanced data sharing are a greater access to clinical trials for patients, which could be lifesaving, and more higher-quality trials taking place in the UK as a result of a larger potential participant population for researchers. Clause 4 explains the territorial extent of the various clauses. Clauses 2 and 3 will extend to England and Wales only, while the remainder of the Bill extends to England, Wales, Scotland and Northern Ireland. Where the Bill does not extend to the entirety of the UK, we have been assured by the devolved Governments, which were consulted during the Bill’s formulation—I thank Department of Health and Social Care colleagues for that—that they will work alongside us to achieve the policy goals it outlines within the context of their unique legal landscapes.”

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  50. “Appointing a specific individual to hold that role will provide a structure for greater accountability and a more strategic approach for the delivery of rare cancer research across different organisations. Clause 3 will enable regulations to be made that will facilitate data sharing in the context of contacting and identifying potential participants in clinical trials that are focused on orphan medicinal products for the diagnosis, prevention and/or treatment of rare cancers. The clause does not authorise the processing of information that would contravene existing data protection legislation.”

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