Dr Rupa Huq
MP for Ealing Central and Acton · Labour · United Kingdom
“Friend the Member for Stoke-on-Trent Central (Gareth Snell) said, after the adrenalin rush of the virtual queue, there is pressure when reaching the front to snap up what is left, if someone has had the time to get there, which leaves some fans with buyer’s remorse afterwards—“How much?”
“It allows tickets to be sold only at or below the original face-value price; it actually prohibits any increase. Every listing is checked manually to ensure that there is a real ticket behind it. It might not necessarily be a case of doing that.”
“My hon. Friend is correct. The most accessed site is YouTube, and it gets not a penny from that. I am guilty of listening to music on YouTube as well, watching old Top of the Pops episodes from the ’80s, and Runaround—that was a good show—and Swap Shop and so on. Anyway, my hon. Friend is right; we need to remunerate.”
“He even managed to negotiate free bus travel; in the Brennan review it says that transport is prohibited. I worry that we risk falling behind other advanced economies on this.”
“I am not against dynamic or surge pricing per se. It is seen as exploitative, but it could mean that pricing goes down. I once saw Elvis Costello at Hyde Park for free; the headliner was meant to be Elton John, but he cancelled, which was good for me as I am not an Elton fan.”
“As we speak, in Wembley, Bon Jovi are taking the stage. Yesterday, tickets were £80, but then there was this service charge fee of £17.06, making the whole thing £97.06. That 21.3% charge is a huge mark-up.”
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“I am arguing for simplification in cases in which drugs are already prescribed for limited use and there is a credible case for expanding their application to a generic treatment. We are halfway there; we just need to go that little bit further. Prostate Cancer UK estimates that 672 men die prematurely each year because we have no access to abiraterone. Each week that this continues, 13 men in England will die from a cancer that could have been treated cheaply had they lived in Scotland or Wales. Labour is the party of the NHS, and a Labour Government introduced the UK’s first dedicated cancer strategy; so let us go for this win-win for all, end the iniquitous, unjust postcode lottery, celebrate the best of British science, and widen access to abiraterone for all those who need it, not just those who can afford it.”
“I am doing this partly for Dad, who is watching from somewhere up above, but also for the black and minority ethnic men who are implicated here and now. This is the second time that you have been in the Chair, Madam Deputy Speaker, when I have been talking about health inequalities since Friday, when we discussed assisted dying. You have chaired both debates excellently. Fifthly, in the light of the lengthy approval process, will the Minister assess the adequacy of the funding formula model—we have NICE and we have the Medicines and Healthcare products Regulatory Agency, and it all seems a bit knotty—and consider whether novel pharmaceutical treatments could be produced cost-effectively, especially, as my hon. Friend the Member for Uxbridge and South Ruislip said, when they come off-patent.”
“Thirdly, given the complexity of NHS England’s decision-making processes in relation to the availability of abiraterone—which sound like a right old bureaucratic nightmare—as the functions of NHS England are transferred back to the Department of Health and Social Care, will the Minister take steps to ensure that all decisions about access to medicine, including abiraterone, are timely and transparent? I know that she has had a long career in the NHS, and as I have said, she is on the side of the angels. Fourthly, will the Minister commit to publishing an equality impact assessment, given the disturbingly disproportionate effect that prostate cancer is having on black men, who are more likely to develop it and to receive a late diagnosis, and less likely to receive the right treatment?”
“With the 10-year plan coming soon and the national cancer strategy due this autumn, we have a real chance to deliver significant improvements for people living with cancer, so as is customary, I have a list of questions for the Minister. I will incorporate those of my hon. Friends—I think we are all friends here, even if we sit on opposite sides of the Chamber. First, will the Minister commit to exploring ways of ensuring that additional NHS funding is used to make abiraterone available to all men who need it in England—and in Northern Ireland, as the hon. Member for Strangford (Jim Shannon) has pointed out? Secondly, will the Minister support the introduction of a national programme of screening for prostate cancer, like those that we have for comparable cancers in the United Kingdom?”
“Lord Darzi’s independent investigations into the NHS found that the UK had higher cancer mortality rates than other comparable countries, and sadly, progress in diagnosing cancer at stages 1 and 2 is flatlining. Just over half of prostate cancers are caught at an early stage. That falls well short of the NHS target of 75%. I appreciate that Labour has just come into power after 14 years of the Conservative party, so it will take time to fix our health system, but we need it to be more responsive—to act early and rapidly, to use all the tools it can, and to offer preventive rather than after-the-fact care in every case. Abiraterone exemplifies all those things. I welcome the Chancellor’s 3% real-terms increase in NHS spending to deliver the exciting plan to build an NHS fit for the future.”
“As we have heard, only people who can fork out up front for private treatment or private medical insurance currently have that option, and again, our NHS was not meant to be for private profiteering or big pharma drug pushers. People are seeing their pensions and life savings evaporate, and we are in a cost of living crisis. This drug should be universally available. It took less than one year for abiraterone to be approved for men with non-metastatic prostate cancer in Scotland and Wales. In England, it is now three years and counting, and we still have not had a concrete resolution. Right now, abiraterone is the cheapest and most cost-effective it has ever been, and as the excellent Prostate Cancer UK put it, the postcode lottery must end.”
“We should look long-term, at the remissions, and at the cost of chemotherapy, hospital appointments and other associated things. Those costs add up. University College London found that abiraterone would pay for itself if it were £11 a day. Do Members know what the NHS is actually paying? Does anyone want to hazard a guess? Oh, we are not doing call and response. Abiraterone costs £2.75 a day, now that it is off patent and has come down in price. That is less than three measly quid to avoid costly relapses, scans, chemo, hospital appointments and everything else—less than three little round ones to improve lives and reduce deaths.”
“Friend the Minister knows well, there is a complicated, convoluted process involved in getting it approved for non-metastatic cases. There is no question about the effectiveness of abiraterone. It has had one of the biggest trials known to mankind, a genuinely world-beating trial. When NHS England’s own clinical priorities advisory group plotted the clinical benefit against the net cost, abiraterone scored highest in that tabulation. It is calculated that two years of abiraterone treatment would halve the death rate for men with locally advanced prostate cancer, but we hear about budgetary challenges. I have written to the Minister and tabled questions, and have been told that NHS England has not identified the recurrent budget to support provision of the drug.”
“He was under NHS monitoring for 20 years because he had heightened prostate-specific antigen levels, although he was never actually offered an MRI or ultrasound scan. Last year, his cancer came back, and he was told that he would need hormone and radiation therapy; abiraterone was not offered. Peter is one of the one in three people who get the devastating news that their cancer has come back, and has been denied access to a treatment that could save or extend his life. The first time I heard of abiraterone was when I met Peter, because as my hon. Friend the Member for Uxbridge and South Ruislip (Danny Beales) said, in my dad’s day, it would not have been cost-efficient. However, it is now a generic drug—it has gone off patent—but it is licensed only for metastatic cases. As my hon.”
“I totally agree. West London needs the same as the west of Scotland, the west of Wales, and all the other bits of those other nations. Men can access abiraterone on the NHS in Scotland and Wales, but not in England, even with an identical diagnosis. It seems at best anomalous that their postcode, not their prognosis, is determining their treatment, and we all know that the NHS is meant to be free at the point of need. I would give anything to have had longer with my dad. I was reminded of him when, like the hon. Member for Harrogate and Knaresborough (Tom Gordon), I had someone come to see me: Peter Treadgold, who came to my advice surgery and pointed out that he is falling between the cracks. He had a long-standing diagnosis, with remission, and he diligently followed all the advice.”
“Ealing has long had a big Iranian diaspora. In 1978, when England did not qualify in the world cup and Iran did, a lot of my classmates were supporting the latter; now, they are my adult constituents, and they have been caught up in all this. Could my right hon. Friend tell me what steps he is taking to ensure the safe passage of our constituents back home, including one of my constituents, who needs to resume her cancer treatment and wants urgently to come back to England?”
“I saw how non-native English-speaking pensioners—I am not talking about Welsh speakers—have their agency denied, perhaps unconsciously, by health professionals in a stretched system. My mum’s GP had a clear contempt for her accented words. At every appointment she would say to her, “One question only”. As my mum grew frailer and began to lose the power of speech, she reverted to her mother tongue and was seen by hospital teams as an annoyance, a time waster, and bed blocker. Similarly, the disabled are often written off. People cannot see beyond the wheelchair or the non-verbal. Amendment 34 would place a duty on the chief medical officer to provide information at every step of the way”
“I rise to support amendments 34 to 36 and new clause 6, tabled by my right hon. Friend the Member for Walsall and Bloxwich (Valerie Vaz), who sadly cannot be here today. Health inequality shapes life expectancy and outcomes —covid deaths illuminated that—but it is absent from the Bill. A younger me would have been 100% behind this Bill. I am very pro body autonomy when it comes to abortion, but 10 years of being an MP has exposed me to coercion, duress, the billionaire price of London property, and elder abuse. It is no coincidence that, like me, the majority of London MPs and of black and minority ethnic MPs oppose the Bill. Let us look at amendment 34. The experience of my aged parents—now no longer with us—opened my eyes to a world of pills, incontinence pads, hoists, power of attorney, key safe boxes and carer worries.”
“BAME communities have lower disposable household incomes than standard households, and during a cost of living and housing crisis, it is possible to imagine relatives wanting to speed up granny or grandad’s probate—or naani maa or dadima, even—to get a foot on the ladder.”
“I totally agree. We know that Esther Rantzen and Jonathan Dimbleby want the Bill to be implemented, but our role is to be voices for the voiceless, so I totally agree with her. As opposed to the vague, ever-changing qualifying criteria that are held up as safeguards, at least these amendments would put ethnic minority people on the board: new clause 6 says that if they are on the ward, they should be on the board as well. The Bill seems to have neglected them altogether, so the new clause would provide real protections. We know that in a cost of living crisis, assisted dying could be quite attractive.”
“No, because I will not get any more time. Given the cost of care, people could convince themselves that elderly relatives would be better off out of the way, in order to get the younger generation on the ladder. We know from the experience of other places that once assisted dying is allowed, the scope broadens—depressed 12-year-olds in Holland can get it—and the incentive to fix palliative care will lessen. Why now, with the state of the NHS? What of Suicide Prevention Week? Yes, we know that public opinion is in favour of assisted dying, but public opinion also supports bringing back hanging.”
“They must be incorporated into any assisted dying legislation, but the best thing of all would be not to rush down this road with indecent haste in the first place, because it is so littered with obstacles.”
“No, I am not giving way. At my advice surgery, people have pointed out the unfairness of the £10,000 cost of Dignitas. We know that the status quo is imperfect, but let us not remedy it with something that will make things worse. We need to get this 100% right if we are going to do it all. Although well intentioned, the Bill has too much room for error, manipulation, misapplication and unintended consequences. Six months to live is impossible to predict and, with life and death, it is too late to change your mind after the latter has happened, is it not? This week, 1,000 doctors have argued that it will widen inequalities and it is simply not safe. These amendments strengthen the Bill by taking ethnic minorities into account, when hitherto they have been completely unacknowledged by it.”
“I will call Tim Farron to move the motion. As is the convention with 30-minute debates, only interventions are permitted, not whole speeches, because we need to allow time for the Minister to reply, as well as for all those lovely interventions that are coming.”
“Order. I think that someone will probably end up falling off the call list; there are people standing to speak who were not on the list and who were not standing at the beginning of the debate. Let us see how we go.”
“It is brilliant that the Brexit logjam that has cast a long shadow over this House for so many years has been smashed by this Prime Minister. Could he indicate when we might hear a bit more about the youth experience scheme that has been so yearned for and so welcomed by the universities and the English language teaching sector, and also by my staff, team and son, who were born too late to have a say in any of the mess that the Tories left behind?”
“The Minister, who is a good man, recognises that the 70-day aid blockade has made starvation widespread in Gaza. During the recess, I was on a delegation with the hon. Member for Strangford (Jim Shannon). We were nearby in Egypt, and we heard real fears that annexation of both Gaza and the west bank is near-inevitable. The Minister has told us what steps he has taken up until now, but there has been a clear escalation, so can he please give us some hope that there are further levers that can be pulled? We do not want to be on the wrong side of history.”
“T5. My constituent Charlie Vernon was happily benefiting from the Access to Work scheme until redundancy. He found a new job and did a fresh application last autumn, but since then, well beyond the 24-week timeframe, there has been nothing. Will my right hon. Friend look into these sorts of delays and have a more joined-up system, because assessors are apparently dealing with applications from August at the moment?”
“Friend agree that the Parky charter to encourage more research into this terrible condition that afflicts so many, which Rory lobbies me quite often about, deserves Government funding? I hope that my hon. Friend the Minister on the Treasury Bench is also listening.”
“My hon. Friend is making a powerful speech about this very complex condition. He mentioned Rory Cellan-Jones, who is well known as a BBC technology correspondent and, as the person who houses Sophie from Romania, a famous dog lover. He is my constituent in Ealing. I totally agree with my hon. Friend; the “Movers and Shakers” podcast, which won the Broadcasting Press Guild’s best podcast of the year award, has shown with such humanity and warmth the ups and downs—a lot of downs—of this very sad condition, which is growing. I assure the 153,000 sufferers in this country and the 10 million worldwide that today’s attendance is a reflection not of the importance of this debate, but of electoral events outside this House. Does my hon.”
“The hon. Gentleman, who always speaks with such compassion and conviction, is making a powerful case. One of the worst examples is the detention of Armenian prisoners of war by Azerbaijan. They have not broken any criminal code, as he says; they are public servants held for political purposes, with no clear legal redress or access, or even clear grounds as to why they are being held. Does he agree that international law should dictate here, not domestic politics, with Governments marking their own homework? I praise my constituent Annette Moskofian, who represents Armenians in the UK. The Minister can be assured that I will write to her with some of Annette’s demands after the debate.”
“We do not know exactly. I think my 90 seconds will end any second, so let me just say that MPs and the Facebook group have been decisive, but it is not good enough. We need proper action, so I am glad the Government will introduce a new commonhold tenure to end the neo-feudal tenure of leasehold, which has been there too long. Western Circus is being run by clowns—it needs to stop.”
“When the company finally made contact, it was very half-arsed—sorry, that is not parliamentary language. I was on a Zoom call with residents, and it was very “Computer says no.” There was a reluctance to do anything about it, and I think that is shocking. People have talked about fleecehold. I have talked to many FirstPort victims: just the other day at my advice surgery, I spoke to a grieving father trying to sort out his son’s estate. He found all these unexpected charges, because FirstPort hoovers up ground rent and then springs all these nasties on people. Leasehold covers millions of dwellings and is particularly common in London. Reports from the CMA, the Resolution Foundation and Which? have found that people are disempowered and are charged unexpected, unfair fees. People are losing money hand over fist—for what?”
“Thank you, Mr Stuart. Residential estate management companies are middlemen who sort things out per the lease—or notorious scammers, as our constituents call them. A few weeks ago, residents in Western Circus in east Acton were left without running water—a basic human right—between Friday and Wednesday, so for nearly a week they could not flush the loo, change babies’ bottles, wash their hands or brush their chops. Who was the managing agent? The notorious FirstPort—a word that strikes fear into every MP’s heart. It did not contact residents for over 24 hours. The building is a new build—I remember going to the topping out ceremony in my hard hat and high-viz jacket. Those 329 flats with 400 residents were left without running water, and for 24 hours they were in complete limbo.”
“The Conservatives left legal aid in a mess, like so many other things, so I welcome the sums the Minister is announcing, but can she assure me that the money will reach Ealing? We have never even had a citizens advice bureau—not in the 10 years I have been the MP, and not in the 50 years I have been on the planet—to refer constituents to. Can she assure us that my constituents can get the access to justice they deserve?”
“My hon. Friend is making an excellent speech. Was it not one of the most heartbreaking things that all of us in the House have seen when Christmas was cancelled in Jesus’s birthplace last year? We have seen the persecution in Palestine, and in Gaza what has happened to some of the most sacred sites in Christianity, with the third-oldest church reduced to rubble. At times it is heartbreaking. My hon. Friend listed things such as Marxism and Islamism; does she agree that the situation in Palestine should draw our attention to Christians persecuted there, too?”
“I welcome the Chancellor’s “build, build, build” policy, but with temporary housing in London costing £4 million a day, soaring rents and a frozen local housing allowance, it is no wonder that London councils fear going bankrupt and having to rehouse people from outside the capital, where only 5% of homes are affordable. In the comprehensive spending review, will my right hon. Friend look into possibly uprating this stingy Tory legacy, so that Londoners are not forced out of London?”
“My hon. Friend makes a brilliant case for access to sport. I could challenge him on his last claim, but he is such a doughty champion for Harlow, and I thank my hon. Friend the Member for Stafford (Leigh Ingham), who brought us together for the debate. Does he agree that sometimes school sport can fall off when we talk about elitism, elite athletes, the Olympics and all that? Will he champion the Culture, Media and Sport Committee report that we are working on? We took evidence the other day. It is on community and school sport and the challenges facing sports clubs and under-represented groups. Schools are central to that, and as an ex-teacher, I know he will agree.”
“Since Hamas’s war crimes of 7 October, we have seen multiple flagrant breaches of the rules of the international order. This week, 15 Palestinian paramedic Red Crescent workers were found in a mass grave alongside their abandoned emergency vehicle. That comes on top of a four-week total aid blockade. What are our red lines about how this war without end, in which ceasefires and signed agreements can be tossed aside, is being conducted?”
“I welcome my right hon. Friend’s strong statement that blockading all aid into Gaza, including UK aid, is “appalling and unacceptable”. What discussions did he have with G7 colleagues about what can be done about this provocative action during Ramadan, and what consequences are there for what people are saying is a breach of international law?”
“From 5 am to 10 pm daily, the Patels’ newsagent, off licence and post office was an Acton staple—until Horizon slapped it with a £123,000 demand, and Mrs Patel had a series of mini-strokes. Will Ministers look into the fact that their compensation was rejected because Mr Patel was the postmaster, and show their love for high-street heroes everywhere by attending a tea organised by the all-party parliamentary group for ethnic minority business owners on 3 April? You are welcome too, Mr Speaker.”
“Instituting an aid blockade, while getting on for 50,000 Gazans have been killed and there is a polio epidemic, surely looks as if civilian deprivation is being used as a weapon of war. What are the Government doing about that, and to ensure that the entire fragile ceasefire does not fall apart and the hostages can come home?”
“It also says that Radley College, in Oxfordshire has a 20-acre solar farm and 40-acre woodland, and that Charterhouse in Surrey “built two boarding houses in 2021 and is developing a theatre and lecture theatre” Again, costs can come back for the big boys, but not for the little ones.”
“All the VAT on costs, which is now 20%, is recoverable when factoring in non-business use, so the policy will basically hand money back to schools such as Eton from Treasury coffers. Surely there is a loophole there—an unintended consequence—that needs to be addressed by my hon. Friend the Minister. There are long lists of such things. The Times says: “Eton spent more than £20 million on a sports centre in 2023 and Winchester College’s”— where I think our former Prime Minister went— “accounts from the same year said it spent £15 million on capital expenditure”.”
“My constituent also said: “you referred to a consultation…on the VAT proposals—yet like most government consultations, what was passed didn’t seem, in any significant way, different to what had been proposed.” Maybe that is a lesson in life for all of us: if we put something out for consultation, we should make it look like we listened, because he is saying that it came back exactly the same. The right hon Member for East Hampshire raised that elitist private schools such as Eton have actually done quite well out of this policy, because they can cash in on windfalls from the new VAT rules on independent schools—they can claim it back on capital projects, such as buildings and land acquisition, over the last 10 years.”
“One parent, Matthew, forwarded me a missive from the private school that his boys are at, which read: “For music lessons with peripatetic teachers employed by the School…VAT will need to be applied at 20%.” He continued: “Traditionally the tax system has been a way of discouraging people from picking up bad habits like smoking and drinking. Not from picking up a trombone”. It seems as though people are capitalising on the policy, and then other things are coming in through the back door. I have been replying and trying to sound sympathetic to these parents.”
“The problem is that the words “private school” imply a whole load of things—but they are not all Eton. Some of the comms around this policy have not been done very sensitively. I know that offence was taken at a comment about how they all have astroturf pitches, swimming pools and embossed stationery; that did not go down well with parents and heads in my constituency. They are not all like that. There are smaller SEND schools and smaller faith schools—what I am trying to say is that they are not all Eton, and some of the comms are based on a caricature. We should be careful about what we do in that regard.”
“It is impossible to get one in west London. We have all taken on new wards in our boundaries, so now I do not only represent Ealing borough but a bit of Hammersmith and Fulham too. A head from one of primary schools was saying that they have a large percentage of special educational needs and disabilities pupils. The wards that I have inherited are from the north of the borough—Shepherd’s Bush way. Apparently, by the age that a child goes to school and those issues show up, it is kind of too late. A sharp-elbowed, middle-class parent from the south of the borough might have had their child assessed privately at a very young age, ensuring they have support all the way through, but by school age, there is a waiting list of many years to get the assessment and then it is potluck.”
“I completely appreciate that people, like my own parents at the time, make enormous sacrifices to send their children to independent schools, as my hon. Friend the Member for Paisley and Renfrewshire North (Alison Taylor) said. I have heard people say on the doorstep, “We have the worst car. We never go on holiday.” That was me in the ’80s. I want to point out some unintended consequences of the policy to the Minister aware. These are people who consider themselves to be working people. The strapline of the Labour manifesto was “No taxes on working people”. We should be careful with our rhetoric sometimes and not seek to—[Hon. Members: “Come over here!”] Hang on—let me carry on. The first unintended consequence—or commonly misstated thing—is that pupils with an education, health and care plan still remain eligible.”
“In some senses, they are people who I have grown up with and live alongside, and they do have genuine concerns. As a parent, I would never dream of going private, but I can understand and accept that people do. I went to school in the 80s—the dark days of Thatcherism—before the Labour Government reforms that made excellent state schools in my constituency. My parents chose to put me in the state sector for primary school, at Montpelier primary, and as a parent myself, I have benefited from Gordon Brown’s reforms. The child trust fund came to maturity for my son recently; it did go up in the end—it was the one that could go up as well as down. I have not used the private sector as a parent—as a child I did, but it was not my own choice.”
“In fact, if we look at the 650 constituencies across the land, the first one on the list is single digits; it is a seat in Wales starting with A—Aberconwy, or somewhere like that. This is not a phenomenon everywhere, but in west London it is not that unusual. The high school of the hon. Member for Farnham and Bordon (Gregory Stafford) was not very far from my high school in my constituency. I was a Notting Hill girl, and I know that he was a St Benedict’s pupil back in the day. The prep school of the Minister who is often sent to respond to this debate—my hon. Friend the Member for Ealing North (James Murray), who is my neighbouring MP—was Durston House, and it is in my seat of Ealing Central and Acton. We should not demonise these parents.”
“I also know that the policy polls very well. However, there is also that 6%, and 14 of those private schools are in the constituency of Ealing Central and Act; in 2023 there were 15, in fact, but one has closed its doors since then. I want to vocalise some of their concerns to my hon. Friend the Minister. Fourteen is a higher than average number of private schools in a constituency, and the petition was signed by 821 people in the constituency—although that is not even in the top 10. The heat map shows that the top 10 seats all have more than 1,000 signatories. I think two of those constituencies are in Surrey, but the remaining eight tend to have a W, NW or SW postcode. What I am trying to say is that the distribution of the signatures and the schools is a fairly west London-type phenomenon.”
“It is a pleasure to serve under your chairship, Mr Vickers, and to see the newly minted Minister in his place—I think it is the first time I have been in a debate with him. It is also a pleasure to follow the right hon. Member for East Hampshire (Damian Hinds), who was the Secretary of State; I sometimes see him on the District line, because we head the same way. I rise to speak on behalf of constituents who have contacted me about this issue—in my inbox, in person at the advice surgery I do every Friday, and on the doorsteps when meeting and greeting voters in the recent general election. This issue comes alongside an array of others raised by mums and dads. I am familiar with the arguments and have read the Government’s response; it contains very compelling figures—94% of schoolchildren in the UK, including my own, attend state schools.”
“I am not finished addressing the first point. Can we do this sequentially? I will respond to the hon. Member for Windsor (Jack Rankin) first and then I will take the hon. Lady’s intervention. It is interesting to learn that, but my point is that such schools are still going to be quids in after this.”
“Friend the Minister can assure me that nurseries and universities are off limits. We have heard all these things—that schools are going to close—and we have heard a lot of catastrophising, but it remains to be seen whether those things will come to pass. One of my schools went in 2023. My worry is that this policy will make an elitist system more elitist. The Government say in their response: “Ending tax breaks for private schools was a tough but necessary decision”, but when growth comes, is there a way of undoing it? It was a very clear policy in many manifestos, so I understand that it will not all be undone, but let us think a bit creatively.”