Daniel Francis
MP for Bexleyheath and Crayford · Labour · United Kingdom
“As the Minister said, we were friends for many years in London local government prior to being elected to this place. I want to make two points. First, there is the issue of the Changing Places that have been provided in recent years and the amount of information out there about them.”
“As the Minister knows, I will hold her to account on this issue and continue to pursue it. I thank her very much for the commitments that she has given today that we can continue to pursue. I thank the hon. Members for Chester South and Eddisbury (Aphra Brandreth), for Bath (Wera Hobhouse) and for Strangford (Jim Shannon), my hon.”
“An expansion of capital funding for Changing Places toilets would lead to people with profound disabilities accessing more opportunities and more families and individuals contributing to our hospitality businesses, theme parks, leisure facilities and sports grounds—the list goes on. There was, of course, a previous fund.”
“I turn now to the importance of maintaining Changing Places toilets. I mentioned last year that, in Bexleyheath town centre, we had to close a Changing Places toilet because of the vandalism it was receiving, with people living in it and dealing drugs in it.”
“Although I acknowledge that changes to building regulations ensure that facilities continue to be installed in new buildings, I retain concerns that older buildings would greatly benefit from having a Changing Places toilet installed.”
“One said: “Without access to an appropriate facility, I am left with impossible choices: ending outings early, avoiding certain venues altogether, or changing my daughter on the floor of an accessible toilet, which is neither hygienic, safe nor dignified.” I have read through the responses to the survey, and there was a lot of appreciatio…”
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“St Paulinus church in Crayford and Christ church in Bexleyheath are both grade II listed churches that are desperately in need of investment to restore their buildings. In line with previous questions, I ask my hon. Friend to outline what further news we might have on future capital funding schemes to help to support churches like these.”
“There are the ones at the National Portrait Gallery and the National Gallery down the road; there is the one in IKEA in Oxford Street, which I had to work very hard for and lobby to get its standard up to spec; and, just yesterday, the one at St Paul’s cathedral finally opened. Those places, where visitors are welcome to access the history and culture of our amazing city, do have such facilities, yet this place does not. We need those facilities both in Portcullis House and, to a more modern standard, in the Palace itself. I thank the Committee for its work. I will continue to press on these areas, including in my role as a member of the Modernisation Committee, but while other workplaces have brought themselves into the 21st century, we must acknowledge that there is work that we still need to do.”
“Friend and colleagues across the House know, I will continue to lobby to have one of a modern standard in Portcullis House and equally for the existing toilet to be of a modern standard. As I said in my Changing Places debate last year, we have seen great improvements. My daughter, who has quadriplegic cerebral palsy, will be 13 this year, and I remember how few Changing Places toilets there were in this part of London 10 years ago. There has been great progress, including under the previous Government, in making sure that local railway stations and tourist destinations have Changing Places toilets.”
“We have the issue that, when wheelchair users who attend the all-party groups I chair come to Portcullis House, there is no Changing Places toilet there. The Changing Places toilet we have is in the Lower Waiting Hall, and I would say it is to the original Changing Places standard of about 20 years ago. I have used it with my own daughter, and the hoist is a mobile hoist. The ceiling is very low, and an adult trying to get on it will most probably hit their head on the ceiling. It does not have a moveable sink to get a wheelchair underneath. It is not to the current standards we would expect of a Changing Places toilet. It is the one place where the people who attend the all-party groups I chair can use the toilet, yet it still is not to modern standards. As my hon.”
“We clearly always need to look at those formats, and ask whether our information is available in an easy read format for them in the way it would be for any other visitors, and whether we can have the same discussions with those users. Although she is not here today, I want to pay particular tribute to my hon. Friend the Member for Penistone and Stocksbridge (Dr Tidball) for her valuable work since her election to make this building far more accessible. From her viewpoint, the building certainly was not in such a place. Lastly, I want to refer to Changing Places toilets. A few months ago, my hon. Friend the Member for Blaenau Gwent and Rhymney and I wandered down to the National Portrait Gallery to see what a more modern, accessible Changing Places toilet looks like.”
“Reluctantly, we then had to dismantle the podium in front of all the wheelchair users, because it was clearly a completely inappropriate layout for how the wheelchair users in question needed to address the event. As my hon. Friend is aware, and as I said in the Modernisation Committee when we considered this report recently, there continue to be external accessibility changes we need to make in the House. I note the recommendations in the report on accessible formats. I was really glad when my hon. Friend the Member for East Thanet (Ms Billington) had her East Kent Mencap group visit the building recently, and a number of Members with experience of this went to speak to them about their experiences—I was very privileged to do so.”
“The Chair of the Administration Committee, my hon. Friend the Member for Blaenau Gwent and Rhymney (Nick Smith), is very aware of this—we have written and spoken to each other about it at length—but under the booking system’s current procedures, the APPG cannot be given priority over others, which proves very difficult when only a very small number of rooms are available. It also proves very difficult when we try to provisionally book a room, and the only room our users can use is booked by somebody else. We do need, through the Administration Committee, to look at our booking system procedures. My hon. Friend is also aware that the APPG for wheelchair users held an event last month at which the majority of speakers were wheelchair users, yet we managed to set up a podium for the speakers to give their speeches from.”
“I was very lucky, because I had an accessibility tour, but I will continue to say that those routes are not easily defined for staff or visitors. For visitors, what are the most accessible routes around the building to get from A to B? We need to continue to look at that. If a Member is arranging an event, what are the main access routes for somebody who is a wheelchair user or who has different access needs? In the report—I was not a member of the Modernisation Committee when the report was undertaken, but I am now—there are recommendations about external accessibility. In my role as chair of both groups, but particularly as chair of the APPG for wheelchair users, we continue to have problems. A significant number of wheelchair users attend our meetings, but there is only a very small number of rooms in this building that we can book.”
“I declare my interest as a member of the Modernisation Committee, but also as the chair of both the all-party parliamentary group for wheelchair users and the APPG on access to disability equipment. I come at this issue from that perspective. As many Members know, I am the parent of a wheelchair user and have campaigned on both accessibility and Changing Places toilets, and I will refer to those during my contribution. Shortly after my election to this place, I asked a series of questions. I have twin daughters, one of whom can access the building, but the other cannot access it in the way that we all can. What if she were to come here, and what are the most easily defined routes around the building?”
“My constituent Harley Harris is 15. He has spondylocarpotarsal synostosis syndrome, which has caused his spine to curve 120° and damaged his lungs, leaving him with significantly reduced lung function and in continual pain. Harley needs lifesaving surgery, but his family have been unable to get a referral to have it performed in the UK. Will the Minister commit to urgently reviewing Harley’s case to ascertain what support can be provided to him and his family?”
“We have heard about the issue of standardised provision. I turn to my hon. Friend the Member for Thurrock (Jen Craft), whose daughter’s needs are very different from my daughter’s needs. Within that issue, we need to look at the fact that some people need to be in mainstream education and some people need to be in a special school. We wonder why one in eight young people are not in education, employment or training, and why we have had the debate over welfare, but we isolate so many young people and then question why they are not available and ready to work. The Minister knows that there are three issues that I think we can get right but about which I still have concerns: transition, getting those health aspects right, and support for professionals in the sector.”
“Friend the Member for Chelsea and Fulham (Ben Coleman) says about the health aspects—there are things we still need to get right there. Three years ago, my local authority ended up with an Ofsted judgment of systemic failings in our SEND system, and there was no way of holding our local NHS provision to account on those matters. We have to get that right. With Experts at Hand and that early intervention, there are things that we can do. We have heard about the individual support plans. I have to ask why on earth we are making young people wait a year or two until their EHCP is updated, particularly for some young people whose plans do not have the complexity that my daughter’s has. We could get that early intervention much more quickly and provide that support at a much earlier stage.”
“I declare my normal interests: my wife is a special needs co-ordinator in our local authority, the London borough of Bexley, and one of our children is in receipt of an EHCP. I know this journey; like other Members in the Chamber, I know the battles of being a parent in that position. I am the parent of twins and, as I have said before, I have had to battle for every single aspect of one child’s education and for no aspects of my other child’s education. We have heard lots of criticism of what might be coming, and lots of criticism of the current system. Let us be frank: the current system is totally and utterly broken. I support the proposals because there are issues that we can put right, such as with Experts at Hand. I hear what my hon.”
“I was leader of the opposition on the council and my wife was actually employed by the authority as a special needs co-ordinator, and if a family like mine could not get through the system, how on earth can any parent expect to get through the system? That is why I do support these changes. We need to get the early intervention right. We wonder why we have inherited the system we have today for children with disabilities and special educational needs, but we saw the loss of Sure Start, and many other changes happened in those long 14 years. I thank the Minister, and I will continue to challenge her, but I do support these changes.”
“I agree with my hon. Friend and constituency neighbour about those issues. We can get this right—I do genuinely believe that. I thank the Minister for the engagement she has had with the sector and Back Benchers like myself through this process so that we can get right both the consultation and legislative changes. We need to accept that we are dealing with a system that is totally broken. Like my hon. Friend, I held my own consultation. I will not go into detail on it, but I heard long and hard from those parents. My borough has gone through many things—the Ofsted judgment, the safety valve, which was a ticking time bomb for so many of our families and their provision. I was a councillor for 20 years in the London borough of Bexley, and I saw the system change fundamentally.”
“After months of struggling to spend the £895,000 given to Conservative-controlled Bexley council by this Government, the council is finally in a rush to resurface roads like Belmont Road in Northumberland Heath by the end of the financial year. Will the Minister confirm how much funding the Government will provide to my local council in future years to restore the condition of our roads across Bexleyheath and Crayford?”
“Like my hon. Friend the Member for Brentford and Isleworth, I welcome the consideration of the inclusive transport strategy; I would like to see the Government develop that. I support what my hon. Friend the Member for Battersea (Marsha De Cordova) said about floating bus stops and experiences on the bus. In my constituency, a passenger banged their shopping trolley against my leg for an entire journey because she was so angry that my daughter’s wheelchair had taken up the space she wanted to use for her shopping trolley. There remains a great deal to do on education.”
“I accept that this is a cross-departmental responsibility, but there is a great deal more to do. We need to push for more funding for changing places. We have seen the outcome of the report by the aviation accessibility task and finish group—my private Member’s Bill on this is sitting in a long queue—whose first anniversary will be this summer. On that first anniversary, I would welcome the Government bringing forward findings on how we may move forward, and setting out whether issues remain that will require legislation. At the moment, the Civil Aviation Authority probably does not have enough powers, in particular with regard to the compensation level, which I think is around £1,500. Many people’s wheelchairs are worth far more than that, and if they are damaged, they cannot receive the compensation required to replace them.”
“I was the cabinet member for transport in my borough of Bexley 20 years ago, and was latterly on the board of London Travelwatch, so I have had a long interest in these issues, but it was only when I became the parent of somebody who has a complex set of disabilities—a wheelchair user who needs constant care and support—that I understood some of the complexities of travel. I turn first to toilets. The Select Committee report and the Government’s response look at changing places. There has been a sea change in the availability of changing places toilets, both in motorway service stations and at railway stations, in the last 10 years or so, which is warmly welcomed. If I am driving on the motorway, we have to plan for that. I also hope to see one more at Charing Cross in the very near future.”
“I thank my hon. Friend the Member for Brentford and Isleworth (Ruth Cadbury) for securing the debate. I place on record that I am chair of the all-party parliamentary group for wheelchair users, and the parent of a child who has a Motability vehicle, which I drive on her behalf, with a blue badge. I will refer to those issues. I welcome the Transport Committee’s report and the Government’s response. There are some access issues that I will talk about from first-hand experience.”
“Of all the places that I have travelled to with my daughter across Europe, TfL leads the way in supplying that information, and I hope that can be considered as we go forward. My final point is on ticketing. Clearly, more needs to be done in this area. Problems remain with the level of information that is available for blind passengers and wheelchair users. It is a great scheme, but more needs to be done to highlight those issues. I welcome this debate and look forward to the Minister’s comments later.”
“It means that a child cannot use their wheelchair if it is over 200kg. It means that if someone who has lost their driving licence for medical reasons, such as epilepsy, cannot use their wheelchair. I hope that we can resolve such issues following the consultation. I have also been involved in complaints processes through TravelWatch, and I hope the watchdog has the necessary powers to deal with the problems. We need to look again, as I have said, at the Civil Aviation Authority. In my mind, TfL leads the way on accessibility information. The TfL Go app shows the availability of level access, station accessibility, and where a lift may be out of order. GBR needs to follow that lead. We need a national transport accessibility app shows that information, as well as showing the locations of disabled toilets and changing places toilets.”
“I have two horror stories involving toilets at central London stations, where staff refused access to the changing places toilet, telling me my daughter could not use it—she needs a changing bench—and needed to go into the standard disabled toilet. That is the level of training still required. I completely support Great British Railways, but there will be issues in areas where it shares services with TfL. For example, Abbey Wood is very close to my constituency—TfL will manage that station even though both services operate from it. Denmark Hill will be a GBR station. We will have to see how those two services integrate. I welcome the consultation on micromobility. The issue remains whereby, if someone’s wheelchair is over 200 kg, they have to ride it in the road, as they are not allowed on the pavement. That is hugely discriminatory.”
“I welcome the hon. Member’s comments. Like my hon. Friend the Member for Battersea, I will continue to press the Government. I could take hon. Members to bus stops close to here that I think are a risk for blind passengers as well as for wheelchair passengers. We need to do more on this. I will not object to the measures on Motability in the Finance Bill, but there is ignorance in this place from some Members—many are not here today—on Motability, the issues around the scheme and how it continues to need to be supported, particularly for wheelchair users. On regulation and enforcement, there is training and a lot of great practice; I see some great practice of support for disabled people on my own Southeastern passenger service, but that needs to be expanded.”
“I thank the right hon. Member for his remarks about what I said. However, all the statistics show that the people who need Motability vehicles the most are the poorest and those who live in rural areas. The Conversative party policy on this matter will damage those people the most, quite frankly, by taking away those vehicles. Will he commit to go away to his colleagues and look at that policy, which will damage disabled people who live in rural communities more than anybody else?”
“Friend’s three asks, and I ask that guidance be published regarding tenancies and support. Doing so would mean that voluntary groups have increased agency over their future and are not left in the dark.”
“It is a valuable organisation in the sector and gives advice to charities. I know it is concerned about tenancies at will and the position that they put groups in: it has seen in recent years that tenancies at will have become increasingly popular with local authorities, which results in voluntary groups and charities being given unstable tenancies. Such tenancies offer flexibility on paper, but in reality they often create uncertainty for thousands of small voluntary groups and charities. Under a tenancy at will, groups can be asked to leave with little or no notice, as has been said. In many circumstances, charities are locked out without warning, resulting in activities being cancelled and voluntary groups unable to provide the services the communities rely on. I therefore support my hon.”
“Friend the Member for Chelsea and Fulham has said. It would be hugely useful for residents if guidance could be published for local authorities to ensure that community buildings are available across the entirety of the borough. If guidance relating to the relationship between the local authority and the charities existed, it would ensure that residents have access to a local centre or hub and could access the centres. I would welcome the Department publishing guidance on the rationale for the circumstances in which community buildings can be removed by local authorities, which would be beneficial in the case of Parkside. Like my hon. Friend, I know the Ethical Property Foundation well—I have known it for many years. I have had meetings on many occasions and have taken advice from it.”
“The council’s position is that it will support the building of a new centre and will either lease or sell the site to the community group, but the group must fully fund the building of the new centre itself. I am grateful to the 116 Barnehurst residents who completed my survey, which highlighted that 70% of respondents were unaware of the council’s plans not to directly build a new centre on the site; 85% of respondents’ households have previously used the centre; and 89% of respondents believe the council itself should build a new centre, rather than rely on a community group to fund the cost. We do not now have a local community centre in Barnehurst; residents have to drive to Slade Green and other centres, or attempt to find space in church halls that are a considerable walk from the site. I therefore second what my hon.”
“Our Conservative-controlled council in the London borough of Bexley had a lease arrangement where it allowed a charity to lease and manage the building, supporting a day nursery that my own children attended, a Brownies group, music groups and a fitness group, as well as being a hub for party hire and other activities. However, it appears the council’s condition survey of the building was a visual inspection and did not involve any intrusive inspections. It was then discovered, just over 18 months ago, that the roof was unsafe. The council, fearing the building would collapse, demolished the whole building. I have been gobsmacked by the council’s position regarding the future of the site. Following representations from constituents, I contacted the council about the site’s future.”
“Those cases highlight the issues faced by voluntary groups, which need to protect and secure their own buildings in such situations. Sendtivate is a group based in the constituency of the hon. Member for Old Bexley and Sidcup (Mr French), but it serves residents in both of our constituencies across the London borough of Bexley by supporting disabled children within the boundaries of the local authority. Sendtivate remains concerned as it has been informed that our local authority in Bexley will be disposing of the building it operates from, but there remains no long-term solution as to where it will be relocated. One issue consistently raised with me relates to the future of the Parkside community centre site in Barnehurst.”
“They host family support services, run food banks and provide warm spaces during the winter, to name just a few things. But many voluntary groups and charities do not have a dedicated space, such as a community centre, that they can use to deliver their services to the community. Over the last year I have been supporting a number of groups struggling with property issues. The 1st Erith Scouts group, based in Cheviot Close in Barnehurst, currently faces uncertainty, as the housing association that owns its land has submitted a planning application for housing with no planned replacement building for it. The 16th Erith Scouts group, based in Hurlingham Road in Bexleyheath, has been advised by the church that it plans to sell the land on which the hut is located.”
“It is a pleasure to serve under your chairship, Ms McVey. I thank my hon. Friend the Member for Chelsea and Fulham (Ben Coleman) for securing this important debate. I have previously served as a trustee of small charities managing buildings, and I know the challenges faced by staff and trustees. In my constituency there are good examples of that situation, with the buildings at Slade Green and St Michael’s in Welling being owned by the council but run by trustees. Across Bexleyheath and Crayford, we have a number of dedicated voluntary groups and charities that support communities and residents. For many they are a lifeline; they offer safe spaces for young people, allowing them to experience art, music and a variety of other services that schools and mainstream education do not always allow.”
“I welcome this debate and ask the Government to look again at some of these aspects, and particularly the issues that Mr Louch has raised. For him to fully understand what actually happened in what was, for him, a very traumatic case involving the murder of his nephew, the cost of £22,000 is extremely prohibitive.”
“With further correspondence, Mr Louch was advised that he could apply for a limited section of the transcripts to lower the costs, but his position is that he is unable to pick out any certain parts of a given day, and would therefore have to pay for the full day to be transcribed to access any aspect. There are several days that he wishes to have the transcripts of, and he says that it would be difficult to pinpoint the specific days that he would like. That is the position after much to-ing and fro-ing from both my predecessor in Bexleyheath and Crayford and myself. It remains the case that Mr Louch has not been able to access the transcripts due to the prohibitive costs involved. He continues trying to pursue the matter, and the aims of this petition.”
“He said that he was left with a number of questions at the trial, and that “at times it was difficult to hear and understand a lot of what was being communicated.” After several years, he would still like the transcripts to better understand the case proceedings and, ultimately, the judge’s decisions. The perpetrator was found guilty and given a minimum term of 21 years, but Mr Louch still wants to understand the full proceedings of the case. I have twice raised Mr Louch’s case with HMCTS. Initially, it said that external transcription companies set their own fees, that that is not the responsibility of the Ministry of Justice, and that bereaved families can access a free copy of the sentencing remarks. As I said, it is not just the sentencing remarks that Mr Louch wants, but the details of what was a very lengthy case.”
“It is a pleasure to serve under your chairship, Mr Pritchard, and I thank the hon. Member for Keighley and Ilkley (Robbie Moore) for his opening remarks. I want to touch on the experience of my constituent, Terry Louch, who was in contact with my predecessor prior to my election in 2024 and has been in contact with me since then. He has been trying to access the court records relating to his nephew, Mr Jay Sewell, who was murdered in December 2018. He applied to the Old Bailey for the transcripts and was told that the fee would be £22,000—£500 per day.”
“Although they appreciate the need to put right the failings of the past, my constituents continue to raise concerns about Thames Water’s price increase last year. Will the Minister assure them that Thames Water is being held to account and will provide information to customers about how local infrastructure will be improved?”
“May I share my condolences with the friends and families of the two young people who have very sadly lost their lives? Nine years ago, I saw my own daughter have a 42-minute seizure. Thanks to the work of the NHS and the drugs, she recovered from meningitis B, but I know exactly how terrifying that situation can be. For lots of families around the country, their children are currently at university and are hundreds of miles away. What advice can the Secretary of State give families about the conversations they should have with their young people in Canterbury about the health advice that they should seek and the symptoms that they should look for?”
“I recently visited the Bird & Barrel micropub in Barnehurst, which also operates the Bexley Brewery in Slade Green in my constituency. They informed me that, due to the number of tied tenants in the constituency, they have access to less than 8% of the local pub market across Bexleyheath and Crayford. They are pressing me, and I will be pressing, like my hon. Friend the Member for Carlisle (Ms Minns), to see the pubs code updated to support micropubs and breweries. Will my hon. Friend give some more detail about when we may see some more progress on that matter?”
“Last year, the Conservative-controlled council in the London borough of Bexley demolished the much-loved Parkside community centre in Barnehurst. The council has now said it will allow the centre to be rebuilt if a charity funds the rebuilding. I have conducted a survey of local residents, and 89% believe that the council should rebuild it, rather than a charity. Can time be made available for a debate on the importance of community buildings and the level of support available to voluntary groups who run them?”
“It is clear that the system needs change, and I would be grateful if the Minister would consider the APPG’s recommendations to introduce a national strategy for community equipment and wheelchair services in order to eliminate the postcode lottery in provision and provide proper national oversight and monitoring of services, and to introduce of a co-ordinated national plan to reduce delays in the provision of community equipment. The APPG will be meeting on 26 March, and the Minister and all other Members will be welcome, if they can find time in their busy diaries, to join us.”
“Maximum service timeframes should be aligned with the wheelchair service standard of 18 weeks to ensure consistent, accountable delivery. Equipment providers from across the country said that every authority works differently, with little alignment between local areas and very limited national oversight of how services are delivered. Our inquiry found that 33% of equipment users are still waiting to receive approved equipment, with one in five waiting more than two months. That highlights the real consequences these failures have for the people who rely on the support. Despite the scale and importance of this sector, there is no single Minister with clear responsibility for ensuring that services are working effectively for patients.”
“We heard that in the feedback we received for the report. The report highlighted the consistently long waits for assessments and equipment, which worsen conditions and increase costs. In fact, 74% of professionals and equipment providers said that they are aware of patients who have experienced delayed hospital discharge because essential equipment was unavailable at home. Not only do those delays increase the financial strain on the NHS and pressures on hospital beds and staff time, but they slow down elective care and place further strain on the social care system. One of the report’s key recommendations is to implement a co-ordinated national plan that includes clear targets, workforce investment and the streamlining of processes to reduce delays and prevent unnecessary hospital stays.”
“The APPG recommended that a national strategy should be overseen by a Minister, who would ensure that a national directive is issued to local authorities to clarify whose responsibility it is to provide equipment. That would ensure consistency and reduce confusion. The APPG heard evidence that the system responsible for delivering essential community equipment is fragmented, inconsistent and too often failing the people it exists to support. Responsibility is split between local authorities and integrated care boards, but in practice that joint responsibility—I know this at first hand—frequently leads to unclear accountability, variation in provision and what many families and professionals describe as a postcode lottery. Often, delays are such that families order equipment and then wait a year or two, by which time it is obsolete.”
“As has been said, our first report, “Barriers to Accessing Lifesaving Disability Equipment”, was published in October. The report resulted from our inquiry—our first inquiry, in fact—into the systemic barriers that prevent millions of disabled children and adults across the UK from accessing the medical and community equipment that they need to live safely and independently. I want to highlight some of the evidence that we heard. We found that 71% of people feel that the system providing hoists, grab rails and other essential medical equipment is not currently meeting their needs, and our first key recommendation was the implementation of a national strategy. Currently, there is no cohesive national strategy for community equipment and care provision, which has resulted in inconsistent experiences across the country.”
“Member for West Dorset (Edward Morello), the collapse of NRS Healthcare last summer has caused real issues across the country. My Bexleyheath and Crayford constituency borders Kent and I know that there have been issues there, as there have been for other local authorities, and I have been working with organisations to try to reduce them. However, recycling continues to be an issue, and it is addressed in the recommendations of the APPG’s report. As chair of the APPG for access to disability equipment, I am delighted to contribute to this debate, and I pay tribute to Newlife, the charity for disabled children, and the British Healthcare Trades Association for their dedication and hard work in advocating for users of disability equipment.”
“It is a pleasure to serve under your chairship, Mr Betts. I declare an interest as chair of the all-party parliamentary groups for access to disability equipment and for wheelchair users. It is also well known that one of my children has cerebral palsy and uses a wide range of equipment, from a wheelchair to postural seating for eating and for bathing and so on, so I have become a bit of an expert in some of these matters over the years. I pay tribute to the hon. Member for Aberdeenshire North and Moray East (Seamus Logan) for securing the debate. There will be a separate debate later this year, through the Backbench Business Committee, on wheelchair provision, which I will be sponsoring. On the point made by the hon.”
“However, as we know—and as the 2022 APPG report highlighted—the needs of local populations differ across the country, and the results from just eight ICBs are not enough to provide an accurate representation of the effectiveness of the framework. The existing postcode lottery of specialist support constrains the lives of adults with cerebral palsy and results in worse health outcomes, not to mention lower education and employment participation for individuals, with the subsequent substantial economic loss. Analysis from the Northern Ireland cerebral palsy register has shown that the prevalence of cerebral palsy in adults is comparable to that of multiple sclerosis or Parkinson’s disease.”
“It is therefore disappointing that the recommendations for adults outlined in the 2022 report, including the full implementation of NICE guidelines, have not been implemented for adult cerebral palsy in the NHS. In May 2025, NHS England published the commissioning framework for children and young people with cerebral palsy. The framework aims to simplify and summarise the existing guidance available. It also highlights best-practice care pathways that could be replicated by other systems and enables systems to identify population need through data. Over the past year, eight ICBs have been piloting that framework for children, which involves undertaking a baselining exercise to understand existing service provision and to identify service gaps for children with cerebral palsy.”