Dame Siobhain McDonagh
MP for Mitcham and Morden · Labour · United Kingdom
“The cost of unsuitable temporary accommodation does not end with the council’s housing budget; it is felt in our schools, our NHS and other public services, through disrupted education, worsening health and the additional support that families so often need.”
House of Commons29 October 2026Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Between 2019 and 2025, 104 children died in cases where temporary accommodation was identified as a possible contributing factor to their vulnerability, ill health or death. Seventy-six of those children were babies under the age of one.”
House of Commons29 October 2026Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“But we cannot wait until 2027 to improve conditions for children living in temporary accommodation today. Every child deserves somewhere safe to sleep, somewhere to do their homework and somewhere their parents can prepare a proper meal. Those are not luxuries but the most basic requirements of a home.”
House of Commons29 October 2026Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“As chair of the all-party parliamentary group for households in temporary accommodation, I see the national picture and scale of the homelessness crisis we face, but as the MP for Mitcham and Morden, I see the faces behind those statistics week in, week out at my constituency advice surgery.”
House of Commons29 October 2026Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“I welcome the Chancellor’s Budget, particularly the additional £1.5 billion for social and affordable housing, taking the Government’s investment to more than £40 billion.”
House of Commons29 October 2026Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Is the hon. Member aware that while defence spending when Labour left office in 2010 was 2.5% of GDP, it fell below 2% under the Conservative Government and is now set to rise to 3.5%? Does he understand the correlation between Labour Governments and increased defence spending?”
House of Commons29 October 2026Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
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“The House will be interested to hear that Moderna has published an environmental, social and governance statement on its website that says it has “a responsibility to the multitude of patients our technology could help, regardless of whether they have a disease shared by millions, or one that is unique to them alone.” The statement says that Moderna “understand what our stakeholders expect from us as a sustainable responsible business and leader in mRNA medicines.” Those words are clearly meaningless. I do not mean to sound pessimistic, because some companies have been very supportive—I have had wonderful conversations with Roche—but where companies such as Moderna have the funds and the medicines but lack the will to find a cure for brain tumours, I think it is the Government’s duty to step in and legislate to ensure that they do.”
House of Commons28 February 2024Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“That is why, as policymakers, it is our job either to encourage or to force the pharmaceutical companies to provide the drugs for these trials. I will give just one example. In October, I met Moderna to ask if it could donate medicines for a clinical trial of 10 patients. I had hoped that it would give clinical access to its mRNA pipeline to help find a cure, but it refused. This company with annual sales of $4 billion refused to donate drugs for 10 people at a maximum cost of half a million pounds. These drugs could save thousands of lives each year, so Moderna’s refusal is shameful.”
House of Commons28 February 2024Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Having cared for someone with a brain tumour, I know how bad things are, and I know that if we try something different, we can give people diagnosed with this deadly disease some hope. This is my something different. No. 1 is the pharmaceutical industry. Dr Paul Mulholland is Europe’s leading medical oncologist in glioblastoma. He believes that we are on the cusp of a cure and he would like to run clinical trials so that he can turn that belief into a reality, but the pharmaceutical industry has refused to donate the drugs he needs for those trials to take place. That is because glioblastoma is a very small market for those companies. With only 3,200 people diagnosed each year, the investment is just not profitable —there is not much money in it, and the companies are not interested.”
House of Commons28 February 2024Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“When Margaret passed away on 24 June, it was left to me to take on that battle. Her mission is now my mission. The Government have left the disease in the “too difficult” pile for too long, and I am here to put finding a cure back on the Government’s agenda. The second reason I am making this speech is above us in the viewing Gallery: I am incredibly grateful that a number of patients’ families have come to the House to hear the speech, and their support is a reminder that 3,200 people are diagnosed with a glioblastoma brain tumour every year. It is not just Margaret who was forced to fly thousands of miles to access the treatment that should have been provided on the NHS, but families up and down the country who are being failed and who deserve better.”
House of Commons28 February 2024Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“The reason I am speaking again about this terrible disease is a personal one. It is why this campaign will always feel different from the other campaigns I take on. On 24 June 2023, I lost my wonderful sister Margaret to a glioblastoma brain tumour. As soon as Margaret received her diagnosis, we found out just how bad the treatment was, how the life expectancy was nine months and how there had not been a new treatment on the NHS for 30 years. We found out that families in the UK were left to crowdfund and sell their houses to fund private treatment, and that they would have to take their very sick family member on to a plane and fly thousands of miles to access healthcare in Germany or the United States. That is why Margaret started her final campaign: to find a cure for glioblastoma brain tumours.”
House of Commons28 February 2024Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“I beg to move, That leave be given to bring in a Bill to set a target for the number of glioblastoma patients who take part in clinical trials each year; to require training for medical oncologists to include training relating to brain cancers; to provide that any drug that has been licensed for use on tumours must be trialled on people with brain tumours; to make provision in relation to neuro-oncology multidisciplinary teams in the NHS, including a requirement that each such team must include a medical oncologist; to require manufacturers of drugs licensed to treat tumours to make those drugs available in specified circumstances for clinical trials relating to brain tumours; to make provision about the application of funding caps on funding for multi-drug treatments for glioblastoma brain tumours; to make provision about the processes for funding of drugs intended for the treatment of glioblastoma; to make provision about the management of drug trial data, for the purpose of increasing the quality of data relating to glioblastoma patients; to make provision about reviewing the allocation of existing funding for brain tumour research by the National Institute for Health and Care Research; to make provision about the direct referral of patients by optometrists to accident and emergency departments for the purpose of diagnosing brain tumours; and for connected purposes.”
House of Commons28 February 2024Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Journalists have revealed that the family of Asif Aziz, a landlord to my constituents in Britannia Point, Colliers Wood, manages a large property portfolio registered under dozens of companies on the Isle of Man. There is no beneficial owner listed, so complaints can never reach the landlord. We already have legislation that requires offshore companies that own properties to declare their owners on a register. Does my right hon. Friend agree that properly resourced enforcement is essential, and that having public registers of beneficial owners would make it much easier to identify and scrutinise the beneficial owners of offshore shell companies?”
House of Commons7 December 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Hundreds of thousands of people have still not been found and not one person has been prosecuted for committing a war crime; there are no more answers than there were before. Now is the time for the Foreign Office to decide whether it will carry on with its mealy-mouthed diplomacy, or whether it will use the laws Parliament has given it to take action against those who perpetrated war crimes. Our Foreign Secretary needs to come forward and be honest about his role in promoting the Chinese Government’s plan for a new port in Colombo. It does not bode well. Let us show Sri Lankans and Tamils something different. Let us take a different path and make some progress.”
House of Commons5 December 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“I congratulate the hon. Member for Linlithgow and East Falkirk (Martyn Day) on securing this debate. In Easter 2009, I spent my time out on Parliament Square watching London’s Tamil community beside itself with grief as it received news of relatives, friends, communities and hospitals being bombed. We heard of people lying on the beach, unable to be removed by family or community members because the democratically elected Sri Lankan Government were dropping cluster bombs on their own people. I spent my time taking London Tamil students to see the Foreign Secretary, David Miliband, to prevent some of them from taking drastic action and committing suicide. In the 13 years since then, how much has changed? There is an attitude of always negotiating, always talking, always being calm—and doing nothing. Negotiating for what?”
House of Commons5 December 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“I am sure that the Minister genuinely believes the speech that he is making, but the Foreign Office has for the last 13 years been beseeching the Sri Lankan Government for an independent truth and reconciliation process. To date, that has not happened. At what point will the Minister try something else?”
House of Commons5 December 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“5. Whether he has had discussions with the independent adviser on Ministers’ interests on declarations of interest by the Secretary of State for Foreign, Commonwealth and Development Affairs.”
House of Commons23 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Since the Foreign Secretary was last in office, he has been working for a Chinese state enterprise that was sanctioned by the US Government and blacklisted for bribery by the World Bank. The Foreign Secretary was paid by the Chinese company to promote the building of a port in Sri Lanka, a country which has itself been accused of war crimes and where, since the end of the civil war in 2009, tens of thousands of disappeared people have still not been found. Does the Minister agree that the British people have the right to know when their Foreign Secretary has been employed by the Chinese Government?”
House of Commons23 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Does my hon. Friend agree that this issue is putting huge strains on local authorities, which are being forced to pick up so many homeless families at a time when social housing unit availability is at its lowest and it is difficult to find any form of temporary accommodation that is half-decent?”
House of Commons21 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Has my hon. Friend had the same experience that I have had? I see an ever-growing number of constituents over 60 who face section 21 eviction. In the 26 years that I have been the MP for Mitcham and Morden and in the previous 18 years that I was a councillor, or when I worked for Wandsworth local authority or the Battersea Churches Housing Trust, I have never seen that. It is a very new development.”
House of Commons21 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“The guidance code on dealing with homeless families suggests that priority for local temporary accommodation should be given to children in their exam years. That is a great aspiration, but it is not being realised on the ground because local authorities cannot find accommodation, particularly for larger families.”
House of Commons21 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“The rush for the door is distressing for the people involved, but has the knock-on effect of causing huge problems for local authorities attempting to assist people who are in priority need in terms of homelessness. We are all seeing many more people than usual being evicted via section 21. That has enormous consequences in so many ways.”
House of Commons21 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“I ask the Minister to consider the law of unintended consequences. If the Government delay implementation of the clauses that end section 21 evictions, they could find that landlords who are worried about their ability to evict tenants or have choices will rush for a clause 21 eviction, because they know that at some point section 21 evictions will be ended. The longer it takes the courts to be reformed, in whatever undisclosed way we are considering, the greater that concern will be. As I said, I see a lot of older long-term assured shorthold tenants being evicted, their landlord rushing them toward the door because they do not want a tenant who has limited means of paying increased rent in the future, and because they are concerned about the news that it will be difficult to evict anyone.”
House of Commons21 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Does my hon. Friend agree that it causes another problem for those families, because hard-pressed councils might find them intentionally homeless? Generally, if someone is evicted for rent arrears, they are found intentionally homeless. Although reference has to be made to particular circumstances, I imagine that a court order with that result would lead to no landlord taking them on and to the council not helping them. There are then families floating around the system, with social services ultimately taking children into care.”
House of Commons21 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Does my hon. Friend agree that one of the groups of people for whom it is most difficult to get housing benefit or universal credit correct is self-employed minicab drivers, because of the difficulties in assessing the costs involved in being self-employed? They regularly get a decision on their benefit claim only to have it change and have money taken back, while they remain on exactly the same income.”
House of Commons21 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“My frustration here is not about parks, hills or areas of environmental protection, but the scrappy plots of land in towns and cities, surrounding railway stations, that no one in their right mind would see as attractive. I am talking about the car wash in Tottenham Hale, the scrubland in Ealing, the waste plant in Hillingdon and the concrete airfield in Wisley—sites that no one in their right mind would recognise as green belt if it were not for their designation. I issue a plea to the Government: build on the grey belt to give my constituents the homes they deserve and give children a cot, because they desperately need one.”
House of Commons15 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“The all-party group on households in temporary accommodation will be leading a campaign in the coming Session to provide a cot to every family with a child under two living in temporary accommodation. Whether or not the Government provide desperate families with a cot, we will still need the plans and the policies to build more houses. That is why I was delighted to hear my right hon. and learned Friend the Leader of the Opposition raise in his conference speech the issue that I and many others have worked on in the past few years with Professor Paul Cheshire of the London School of Economics: building on the grey belt. Within London’s green belt alone there are enough non-green sites surrounding train stations for more than 1 million new homes.”
House of Commons15 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“The quality of temporary accommodation is almost universally poor and, shockingly, there is not even a requirement that families with children under two should have access to a cot. That is important because, after reading the data from the national child mortality database, we know that 34 homeless children died between 2019 and 2021 as a result of the temporary accommodation they were housed in—most of them were under one. The most likely cause of death is sudden infant death syndrome because of a lack of safe sleeping provision, such as cots. In the fifth largest economy in the world, children are dying due to a lack of access to a cot. Surely there was room in the King’s Speech for a commitment to ending that shameful statistic.”
House of Commons15 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“After 13 years of Tory governance, we heard a King’s Speech that ignored the real problems that many of my constituents face every day. The problem I hear about more than any other in my weekly advice surgery is the chronic lack of social housing. I see numbers of constituents evicted and placed in temporary accommodation outside London, hundreds of miles from their home. Merton may have the lowest number of families in temporary accommodation, standing at between 400 and 500 families, but that is 400% more than the norm. It is small in comparison with the neighbouring boroughs of Croydon, which has 4,000 families in temporary accommodation, and Wandsworth, which has more than 3,500. Councils across the country are threatened with bankruptcy because they simply cannot afford the temporary accommodation bill.”
House of Commons15 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“In the time between the King’s Speech last Tuesday and today’s debate, we have had not only a former Prime Minister parachuted into a new Cabinet job, but yet another Housing Minister. That is 15 Housing Ministers in the last 10 years, four more than the number of Chelsea managers over the same period. It is simply not possible to build the houses we need with that level of chop and change, and when the average life expectancy of a Housing Minister is less than nine months. What can our new Housing Minister look forward to in the next parliamentary Session? We have finally had sight of the Renters (Reform) Bill, but whether it means we will see an end to section 21 no-fault evictions is anybody’s guess, as that depends on reforming the courts.”
House of Commons15 November 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Einstein famously said, “The definition of insanity is doing the same thing over and over again and expecting different results.” That is what we have been doing for the past 30 years with the treatment of glioblastoma. We can do better, and Margaret’s legacy demands nothing less.”
House of Commons18 October 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“The reason why there is nobody on those wards or in the research infrastructure is because nobody is required to do the training. Who can apply for the research funds if there is nobody in the field? If we do those four things, we have a chance of some hope. I have not just whisked up this four-point plan; it is the result of meeting experts in the field, including none other than Dr Paul Mulholland, Europe’s leading brain tumour oncologist. If we carry out those four steps, experts think we can drastically improve treatment for everyone diagnosed with a glioblastoma. Some have even said that we could find a cure for glioblastoma within 10 years.”
House of Commons18 October 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Thirdly, the NHS should ensure that every neuro-oncology multidisciplinary team has a medical oncologist who is a core member and is required to attend meetings to discuss patients, so that brain tumour patients are not left in a corner of the ward because there is no specialist arguing for them. Unless a neuro-oncologist is in the room, we will not benefit from their ideas or expertise. Fourthly, the NHS should require that every doctor training to be a medical oncologist should go through a mandatory course on brain tumours. At the moment, the Royal College of Physicians requires no compulsory training. Doctors have to take two courses on bowel cancer as part of their training, but not a single course on brain tumours.”
House of Commons18 October 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Secondly, the NHS should take every drug that has already been licensed to deal with other tumours and apply them to clinical trials on glioblastoma brain tumours. That has not yet happened because glioblastoma is a very small target market for the pharmaceutical industry, and such investment is not very profitable. The Government must either encourage or force the pharmaceutical companies to provide the drugs for these trials. Applying those existing drugs would be a cheap way to make a huge difference. It is sometimes the only way that makes a difference. Universities should act as partners in these trials. They should be snapping up the opportunity to carry out research in this area, instead of leaving the field untouched.”
House of Commons18 October 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Member for Colchester (Will Quince), and the shadow Secretary of State for Health, my hon. Friend the Member for Ilford North (Wes Streeting). I have also met clinicians, charities, families and universities, and last week I met representatives of the top pharmaceutical companies in the UK to discuss why we are where we are. Having built up a clearer picture of where we are, I know that if we try something different, we can give people diagnosed with this deadly disease some hope. So here is something different. First, we need a target of getting 200 glioblastoma patients each year into clinical trials on drugs that have the potential to change the course of the disease. That would be 1,000 patients over the lifetime of a Parliament. With those trials, we could begin to understand what works and what does not.”
House of Commons18 October 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“In 2010, 83% of people diagnosed with breast cancer survived for five years. By 2020, 86% got to live for five years. In 2010, 58% of people diagnosed with bowel cancer survived for five years. In 2020, we managed to bring that figure up to 60%. However, for people diagnosed with a glioblastoma, there has been no progress and no hope that things will get better. In 2010, the five-year survival rate for people diagnosed with a glioblastoma was 11.9%. Ten years later, in 2020, the survival rate was almost identical: just 12.9%. Although the treatment and life expectancy of people diagnosed with a glioblastoma has not changed in 30 years, I feel more hopeful today because, since I made this speech in March, I have met the Minister for Health and Secondary Care, the hon.”
House of Commons18 October 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Universities have ignored glioblastoma for years, too. Glioblastoma is not even on the research agenda. Many universities are focusing their resources on trials on mice, neglecting the 3,200 real people who are crying out for new research and clinical trials. It is a pretty grim landscape, but it has not been like this for people diagnosed with many other cancers. People with breast, bowel and lung cancers have had the hope of research, clinical trials and funding promises being kept. The Government, universities and pharmaceutical companies have come together to make a concerted effort to change things, and they did. Just look at what we have done for people with lung cancer. In 2010, only one in 10 people diagnosed with lung cancer survived for five years. By 2020, life expectancy had doubled.”
House of Commons18 October 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Those who have the money travel abroad for private treatment, safe in the knowledge that the NHS has nothing to offer them. Those who have a support network but who are not rich enough, are forced to crowdfund and to fly thousands of miles to access treatment. The rest, sadly, have to accept their fate. There is no hope. They just have to wait. If they are lucky, they get to nine months. In March, when I made my first speech about glioblastoma, I felt the same way that I have always felt. I was filled with hopelessness, appalled that the disease has been ignored for so long and left at the bottom of the “too difficult” pile for 30 years. The Government have not touched the sides of the £40 million they allocated for research into glioblastoma. After five years, they have spent just £12 million, a quarter of the amount promised.”
House of Commons18 October 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“In fact, I will make this speech over and over again until we have turned a corner. My speech today is about glioblastoma brain tumours. It is the deadly disease that my wonderful sister, Margaret, suffered from for 18 months, and it is a deadly disease with which over 3,200 people are diagnosed every year. For every one of those 3,200 people, there was a time when a doctor sat them down in a room and gave them the bad news—the worst news. I can talk about that because, sadly, I have been in that room with Margaret. What they tell people is that there is no hope. The life expectancy for someone diagnosed with a glioblastoma is, on average, nine months and, after a basic course of treatment, the NHS leaves them to die.”
House of Commons18 October 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“I beg to move, That leave be given to bring in a Bill to set a target for the number of glioblastoma patients who take part in clinical trials each year; to require training for medical oncologists to include training relating to brain cancers; to provide that any drug that has been licensed for use on tumours must be trialled on people with brain tumours; to make provision in relation to neuro-oncology multidisciplinary teams in the NHS, including a requirement that each such team must include a medical oncologist; to require manufacturers of drugs licensed to treat tumours to make those drugs available in specified circumstances for clinical trials relating to brain tumours; and for connected purposes. I hope the House will hear me today, because I have made this speech before and have absolutely no doubt that I will make it again.”
House of Commons18 October 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“But it is not going to happen on its own, and it is certainly not going to happen if we carry on trying the same things we have been trying for the last 30 years. Einstein famously said: “The definition of insanity is doing the same thing over and over again and expecting different results.” I think we are getting to that point with the treatment of glioblastoma. It is time to break the mould, take a risk and try something different. Margaret’s life requires nothing less.”
House of Commons19 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Unless a neuro-oncologist is in the room, we will not benefit from their ideas or expertise. Fourthly, the NHS should require that every doctor training to be a medical oncologist should go through a mandatory course on brain tumours. At the moment, the Royal College of Physicians requires no compulsory training. Doctors have to take two courses on bowel cancer as part of their training, but nothing on brain tumours—believe me, they do not take the brain tumour option. The reason why there is nobody on those wards and the research infrastructure is not there is that nobody is being trained or is excited to do the job. If we can do those four things, we can have some hope. I have spoken to Dr Paul Mulholland, the fantastic oncologist at University College Hospital, and he feels that he could find a cure within seven years.”
House of Commons19 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Secondly, the NHS should repurpose every drug already licensed to deal with other tumours for clinical trials on brain tumours. That has not happened yet, because glioblastoma is a very small target market for the pharmaceutical industry. The Government must either encourage or ultimately force the pharmaceutical companies to provide the drugs for these trials. Repurposing those drugs would be a cheap way to make a huge difference. It is the only way that we can make a difference. Thirdly, the NHS should ensure that every neuro-oncology multidisciplinary team has a medical oncologist who is a core member and is required to attend meetings to discuss patients, so that brain tumour patients are not left in a corner of the ward because there is no specialist arguing for them.”
House of Commons19 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“I promise that this speech will get a bit brighter. I said earlier that the biggest insight I have gained through this process is that the treatment of brain tumours on the NHS has not improved in 30 years. The next thing I learned is equally important: it does not have to be this way; there are solutions, we just need to try something new. And here is my something new: my four-point plan to transform the outcomes of people diagnosed with a glioblastoma. First, we need a target of getting 200 glioblastoma patients into clinical trials each year on a drug that has the potential to change the course of the disease. That would be 1,000 patients over the lifetime of a Parliament. With those trials, we can begin to understand what works and what does not.”
House of Commons19 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“You can imagine the irony with which I read that text. But it is not the same for all cancers. We know that great things have been done. For lung cancer, in 2010 the five-year survival rate was 10.3%, not dissimilar to the survival rate for glioblastoma; the difference, however, is that by 2020 the five-year survival rate for lung cancer had doubled to 21%. In 2020, the five-year survival rate for breast cancer was 85.9%. There has been a concerted effort by clinicians, charities, the Government and families to make sure that people with breast, lung and bowel cancer live longer, as they should. The sad truth is that brain cancer has been forgotten about, and because only 3,200 people are diagnosed each year it is not profitable for the pharmaceutical industry to invest in it and find a cure.”
House of Commons19 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“In my case, I took a very ill Margaret on a plane to Germany every month. Over the last decades, we have seen a transformation in hope and life expectancy in relation to some cancers, but absolutely zero progress for brain tumours. Members do not need to take my word for it; they just need to check the facts at a glance. The average life expectancy for the 3,200 people who will be diagnosed with a glioblastoma in the next year is nine months. The five-year survival rate is only 12.9%. The sad facts speak for themselves: nothing has changed; nothing has improved; and if we keep carrying on down the same path, nothing will ever improve. On Friday, I received an unsolicited text from Cancer Research UK, which told me that together we are beating cancer and powering progress, and I was to see how far we have come.”
House of Commons19 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“When a person is diagnosed with a glioblastoma, they get eight weeks’ radiotherapy, followed by as much chemotherapy with temozolomide as they can manage. That drug was introduced in 2005, and it is called the gold-standard treatment in our NHS. I can tell you that it is not gold standard; it is not even plastic standard. It does not cure anyone; it extends the life of very few people. Margaret could take only four to six weeks of it before her kidneys collapsed. What else are you offered? A lifetime of paying your taxes, working hard, doing your best, and there are no drug trials; there are no alternatives; there is no hope. Perhaps the unspoken advice is just to go home, lay down and wait to die. The only hope that does exist is in other countries. Families crowdfund and spend their life savings travelling all over the world.”
House of Commons19 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“It is now 12 weeks since my sister Margaret died of a glioblastoma brain tumour. May I thank you, Madam Deputy Speaker, for attending her funeral? Since her death, I have made it my mission to make sure that glioblastoma has a cure. I would not wish Margaret’s experience on my worst enemy. Through caring for Margaret for 19 months, I have learned a few things. Through Margaret’s treatment and campaigning on this issue, I have met industry experts, trade bodies, Ministers, charities and scientists. It is a topic that I know far more about than I would ever have wished to. And the biggest insight I have gained is this: the treatment of brain tumours in the NHS has not improved in 30 years.”
House of Commons19 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“I thank the hon. Gentleman for his offer of help. I would love to accept that offer and any help he can give in finding a cure for glioblastoma. I appreciate the problems he must have in Peterborough, and I am sure many London councils are placing homeless families there. To put the situation in context, the reason for that happening is that there are currently 104,510 homeless families, in London including 131,370 homeless children. One in 50 Londoners is homeless, and one in 23 children in London is homeless—that is one in every class. The pressure for all London councils is how to meet their legal responsibilities and find homes for people on a temporary basis, and his town is feeling the impact of that.”
House of Commons19 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“As one of the largest contributors to international aid in Pakistan, Britain has a role to consider how that investment is used. It took me a long time to get to the bottom of the fact that FCDO money was being used to produce books in schools that discriminated against Ahmadis. Will the Minister address the nature of investment in international development in Pakistan? How can he ensure that it does nothing that encourages the discrimination that exists from birth to death? The hon. Member for Carshalton and Wallington explained how that affects all levels of civil life and the community. With that, I will sit down.”
House of Commons6 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“We know about the harassment and discrimination that Ahmadis experience in Pakistan and how that percolates to other countries, including, regrettably, our own. The APPG undertook an in-depth investigation into discrimination in Pakistan. The single most depressing fact that I took from all the evidence sessions was that Ahmadis are discriminated against more strongly by younger people than by older people. Liberalism is in reverse in Pakistan, and the discrimination that the community feels is likely to be of a long-standing nature. That is in part because the Government of Pakistan have withdrawn from the responsibility to educate their young people and given the responsibility to people who hold extreme views on religion.”
House of Commons6 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“I congratulate the hon. Member for Carshalton and Wallington (Elliot Colburn) on securing this debate, and I thank you, Mr Sharma, for chairing it. I do not wish to take too long because so many people want to contribute, which gives this debate great strength. We can be assured that Governments in Pakistan, both regional and national, will know of it; they will be watching it and it will have an impact. It is great that so many people from nearly all the parties represented in our Parliament have taken the time to be here today. I have the privilege of being chair of the all-party parliamentary group for the Ahmadiyya Muslim community. It is one of the easier tasks as an APPG officer; due to the incredible lobbying of the community, we are always quorate with very little effort.”
House of Commons6 September 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Laura highlighted that brain tumours are the greatest killer of people under the age of 40, who are being let down.”
House of Commons13 June 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“As of January, just £15 million of the promised £40 million had been awarded; the field is in such a dire situation that we cannot even spend the money that has been specifically allocated to brain tumours. This is about trying something different. I do not care whether it is Labour, the Conservatives, the Lib Dems, the DUP or the SNP—I will get behind anyone with the political will to make a change. Einstein famously said: “The definition of insanity is doing the same thing over and over again and expecting different results.” I think we are getting to that point with the treatment of glioblastoma. It is time to break the mould, take a risk and try something different.”
House of Commons13 June 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“Believe me, they do not take that option. The reason that there is nobody on those wards and the research infrastructure is not there is because nobody is required to do the course. Fantastic work is being done in the world of cancer. There are improvements in some areas with some fantastic successes, which we should celebrate. However, we should have our eyes wide open when we are not making any progress. We should be able to take stock and say, “This is not working; we need to try something new.” In 2018, after Tessa Jowell sadly passed away from a glioblastoma, £40 million of Government funding was promised to fund research into brain tumours, but the infrastructure of treating glioblastoma is so poor that there have not been enough bids to allocate that funding.”
House of Commons13 June 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗
“The reason for melanoma survival rates of 90% at five years is precisely that: the use of a drug licensed for another cancer purpose. Thirdly, the NHS should ensure that every neuro-oncology multidisciplinary team has a medical oncologist who is a core member and is required to attend meetings to discuss patients, so that brain tumour patients are not left in a corner of the ward because there is no specialist arguing for them. Unless a neuro-oncologist is in the room, we will not benefit from their ideas or expertise. Fourthly, the NHS should require that every young—or not so young—doctor, training to be a medical oncologist should go through a mandatory course on brain tumours. At the moment, there is no compulsory training. Doctors have to take two courses on bowel cancer as part of their training, but nothing on brain tumours.”
House of Commons13 June 2023Contains Parliamentary information licensed under the Open Parliament Licence v3.0Source ↗