Hilary Benn
MP for Leeds South · Labour · United Kingdom
“As the right hon. Gentleman knows, the Irish Government published on 8 June their legislative outline, entitled “The General Scheme of the Legacy of the Troubles Bill 2026”. That is intended to fulfil the commitment that the Irish Government gave in the joint framework to co-operate to the fullest extent possible with the commission.”
“Northern Ireland is a society, as the hon. Gentleman knows better than most, that has been undergoing profound change since the signing of the Good Friday agreement 28 years ago. As the famous lines go, we have a shared history, but not necessarily a shared memory.”
“The right hon. Gentleman raises a really important point, and I am grateful to him for his question. We all have a responsibility—political leaders have a responsibility to call out what was witnessed for what it is and not mince our words, and as I have already indicated, social media companies have a responsibility to ensure that such m…”
“I hope the hon. Lady will recognise that the common travel area, which is more than a century old, is of great benefit to the citizens of the United Kingdom and the Republic of Ireland. Many people in Northern Ireland live their lives across that border every single day.”
“I do agree with my hon. Friend. The attack on Mr Ogilvie was truly shocking, and there was no justification whatsoever for the racist thuggery we witnessed on the streets of Belfast in the days following.”
“That was, of course, an awful feature of what we saw. One of the things I learned in my discussions was that those from the far right had taken a list of houses in multiple occupation in Belfast—a list that, in the interests of openness, was properly available on the Belfast city council website; the council has now taken it down—and used…”
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“There are some voices in parts of the House and the wider community who appear to take that position, but the Government must disagree with that position too, because of the obligation we have—which the Government have always accepted—to ensure that the integrity of the single market in the Republic and beyond is respected, without unreasonably affecting the flow of goods between Northern Ireland and GB. Finally, if an agreement is reached—and I very much hope that it is—two things will have to happen that, apart from anything else, will render this Bill’s provisions no longer necessary.”
“I agree completely with the Chair of the Select Committee—I did not agree with the justification in the first place, but he makes an extremely powerful point, which I will return to briefly towards the end of my remarks. Indeed, I have asked Ministers why, if they have a problem with the protocol, they are not using the mechanism for dealing with disputes that they have negotiated—namely, article 16—as opposed to introducing the Bill. But, for reasons that still escape me, the Government decided that they were not going to go down that particular route. The reason I raise the European Court of Justice as an example is that, if there is anyone who says, “Unless the ECJ is completely written out of any agreement, we cannot back a deal”, I fundamentally disagree with them.”
“I was using the word in relation to any notion the Northern Ireland Protocol Bill would be continued. I accept absolutely the characterisation that the hon. Gentleman has put on what has been happening recently, which I find encouraging. The final thing I wanted to say—were it not for that change of personnel and approach, I do not think we would be, hopefully, fingers crossed, at the point of reaching an agreement—is to wish the negotiators well. I really do wish them well. They need the time to sort it out. The deal cannot come soon enough, not least because then we can turn our attention to other pressing matters to do with our relationship with the European Union that need urgently to be addressed.”
“I understand why the Foreign Office does not want to comment on this particular investigation, but the Minister will well know that this is not the first time that the authorities in India have undertaken such investigations into media organisations that are critical of the current Government. However, I do not think that stops the Government expressing a view, as the Minister just did, about the importance of media freedom in relation to the attempts to ban the viewing of the documentary. When we read that a spokesperson for the BJP actually described the BBC as the “most corrupt” organisation in the world, is it not incumbent upon the Government to stand up for the BBC and its integrity?”
“Does the Government’s commitment to look at helping blocks below 11 metres with cladding apply not only where that cladding is found to be dangerous and needs to be removed, but where lenders are still demanding EWS1 certificates, which cannot currently be provided?”
“Does he think it is better for the Government, or the police or the Home Office, to ask the social media companies to take such videos down, or does he think—given that there is a law against inciting racial hatred in the Public Order Act 1986—that the prosecuting authorities should look at the videos and decide whether the threshold for prosecution has been met?”
“The right hon. Gentleman will be well aware that there are people going around claiming to be journalists who are actually stirring up hatred and fear of asylum seekers. I watched one of their reports recently. It was directed at a building in my constituency which, it turns out, is not being used and will not be used to house asylum seekers. That broadcast was designed to create fear, and for the life of me I do not understand why it is still available on YouTube. Let me ask the Minister this question.”
“First, given the immense scale of this terrible tragedy and the reports this morning that people are using their mobile phones while trapped under the rubble as they cry for help, do we have the capacity to send a further search and rescue team, because I think it seems, given the scale, that that would certainly assist? Secondly, does the Foreign Secretary expect the Disasters Emergency Committee to issue an appeal?”
“Further to that point, the impact assessment talks about the £2 billion to £4 billion maximum ceiling. Of course, we do not expect all those businesses to require support at the maximum level. Will the Minister clarify who is going to determine how much support an individual business gets? Is it according to a formula?”
“Far too many leaseholders are still living in properties that have not been remediated, including in my constituency at Cartier House, the Gateway, and the Drive, Saxton Gardens, which was turned down for building safety funding even though the cladding has recently failed a fire test. As a result, five and a half years after Grenfell, a waking watch has been put in place. This is not good enough, is it? When are they going to get sorted out?”
“The Minister appeared to say in answer to an earlier question that no one should be physically disconnected from their energy supply. If I heard that correctly, and if that is indeed the Government’s position, does that extend to people on prepayment meters who cannot connect themselves to their energy supply because they simply do not have the money to top up the meter? If that is the case, I would be interested to hear what further action he will take to prevent that happening in all cases.”
“What possible justification is there for forcing people to sit in the cold and the dark because they have been required to have a prepayment meter connected that they cannot afford to top up? Twenty-five years ago we had the same debate over water disconnections, and society decided it would no longer be lawful to deny any human being access to water. Have we not now got to the point where, similarly, our constituents should be entitled in all cases to light and to warmth?”
“There is bitter disappointment that the really good bid from Holbeck—one of the most deprived parts of my constituency, which is the 18th most deprived in the country—has received nothing. As the Chair of the Select Committee, my hon. Friend the Member for Sheffield South East (Mr Betts), said, huge efforts were put in and hopes were raised, only to be dashed when bids were unsuccessful. Since this is all about control, surely it is now time to devolve the money to local areas so that they can determine their own priorities according to their own decisions, rather than continuing to ask them to jump up and down at the whim of central Government.”
“This medieval misogyny—we ought to call it what it is—is doing huge damage to Afghanistan’s future. Does the Minister share the widespread concern that, since the Taliban have now closed universities to women, including banning them from studying medicine, and in some areas, have ordered that male doctors are not to treat female patients, we may get to the point where there are no women doctors left in Afghanistan to treat women who are ill?”
“The Minister argued in Committee: “Allowing outdated retained EU laws to languish on our statute book where they do not work in the best interests of the UK”— debate— “is irresponsible.” –– [ Official Report, Retained EU Law (Revocation and Reform) Public Bill Committee, 22 November 2022; c. 121.] I would argue that it is irresponsible to propose this legislation, which could cause laws to disappear simply by neglect, given that Ministers cannot even produce a list of the so-called outdated laws—I simply do not understand this idea that all these bits of legislation are dragging the nation down—let alone a full and complete list of all the pieces of retained EU law that come within scope of this Bill. Because of that, the amendment my hon. Friend will be moving is necessary.”
“They seek to give substance to what the Government claim, which is that they have no intention of sweeping away lots of environmental and consumer protection and workers’ rights laws; they just refuse to be specific about the ones they are going to keep. The amendments would make it clear beyond doubt which pieces of EU retained law will not be affected by sunsetting. I am also supporting the cross-party amendment—amendment 36—tabled by my hon. Friend the Member for Walthamstow (Stella Creasy) because, whatever differences of view there may be in the House about other aspects of the Bill, surely nobody would argue that it is acceptable to repeal legislation by accident. Nobody can argue for that—that a piece of retained EU law should suddenly disappear from the statute book in just over 11 months because no one noticed its existence.”
“The fundamental problem, as we have heard, is that the Government still do not seem to know what it is that they want to do. Here we are, six-and-a-half years after the referendum, and they cannot tell us precisely what they want to scrap, what they want to amend and what they want to save. They cannot tell us. For my sins, I read the Hansard of the Committee, and found that, despite being asked that question many times, the Minister could not or would not provide an answer. As yet, I describe this as a process without a purpose. In the meantime, as we have also heard, Ministers have created huge uncertainty for business. It is extraordinary, and that is why I am supporting the amendments that have been tabled by my hon. Friend the Member for Ellesmere Port and Neston (Justin Madders).”
“The Bill certainly has not improved with age; on the contrary, all of its flaws have become more exposed as the chorus of criticism on it has become louder and louder. We have heard Ministers blame misrepresentation a lot this afternoon. I think that they need to realise that they have brought this mess entirely on themselves. I wonder whether now, on reflection, they regret embarking on a process that has made opponents of so many people they did not need to anger. This morning, I listened to the chief executive of the Wildlife Trusts, who was absolutely scathing about the Bill. The Government have brought that upon themselves. Whatever Ministers think it is that they are doing, this is very bad politics—not that it is for me to advise them.”
“Clearly, as we have heard, there is disagreement about the process contained within the legislation that the Scottish Parliament has passed. Will the Secretary of State clarify something? Whether or not one agrees with that, the net result is that someone would be issued with a gender recognition certificate. In evoking section 35, the Secretary of State argues that this would have serious adverse impacts on the operation of the Equality Act. Can he explain why the same certificate issued under the Equality Act 2004 does not have those adverse impacts?”
“I thank the Foreign Secretary for what he has said about the brutal murder of Mr Akbari. The sad truth, however, is that the Iranian regime does such things because it can. There are voices that have called for the joint comprehensive plan of action process to be abandoned, and I would be grateful if the right hon. Gentleman could tell the House what his current view is. I caution him, however, because in absence of that process, what other means would we have of preventing Iran from acquiring a nuclear weapon, which, given its current behaviour, is surely unthinkable?”
“Night after night, the Russians continue to fire missiles at the Ukrainian civilian population. We saw at the weekend the attack on the residential block in Dnipro, which has so far claimed at least 20 lives. Just before Christmas, the United States announced it would provide the Patriot missile system to Ukraine. What assessment has the Defence Secretary made of the impact that that will have on Ukraine’s ability to defend itself against those missiles, and what further capability could Ukraine use to mitigate further the effect of those frequent attacks, which are intended to destabilise the country and cut off the energy supply?”
“Following this morning’s shocking report from Citizens Advice that more and more people are being disconnected from their gas and electricity because they have been moved on to prepayment meters, often without their knowledge, and cannot afford to top them up, when will we have a statement from the Government about their intention to ban this practice so that our constituents do not lose their right to light and warmth?”
“I join others in congratulating the hon. Member on securing this debate. In joining others in applauding the courage of those protesting in Iran, standing up for freedom, justice and the right of women to dress as they wish, does the hon. Member agree that it is a sign of the threat that this brutal regime perceives that it is going to such lengths to murder people who have protested, to hold dual nationals hostage as a matter of state policy and to threaten journalists for simply wanting to do their job, which is to tell the world about what is going on in Iran at the moment?”
“Just before Christmas, a constituent of mine received a service charge bill in respect of her leasehold flat for fire-stopping works. Leaseholders rightly believe they should not have to pay to fix fire safety defects, and they think the Building Safety Act 2022 protects them from having to do so. Can the Minister therefore set out for the House in what circumstances it is still lawful for the owner of a building to charge leaseholders to fix fire safety defects?”
“There appears to be some confusion about the difference between an insufficiency of stocks and supply difficulties. Just for absolute clarity, given that the Minister has reported to the House today that demand has gone up five or six times, are there currently sufficient or insufficient stocks in the country to meet that increased demand?”
“Can the Home Secretary assure the House that if someone arrives on the shores at Dover to claim asylum in order to be able to join a child, a spouse or an elderly parent here in the United Kingdom under the right to family life, that individual will not be put on a plane to Rwanda and separated from his or her family for the rest of their lives?”
“I join the Secretary of State and others in the House in welcoming this important agreement, but it only means something if countries do what they have signed up to do. Can she tell us when she intends to bring forward any proposals that may be required to ensure that we in the UK match the very ambitious targets that have just been agreed in Montreal?”
“I join the Home Secretary and colleagues in expressing my profound sadness at the terrible loss of life and my thanks to those involved in the rescue, but the House needs to ask itself why mothers and fathers are getting in those boats with their children to seek to come to the United Kingdom. It is because they know that, until they are in the country, they cannot claim asylum. I know the Home Secretary is absolutely committed to ending this illegal trade, but let us start with family reunion: one of the reasons that people may want to not stay in France but come to the UK is that they have a family member here, as we would if our families were separated in that way. Does she not recognise that we need to address that and provide safe and legal routes?”
“The explanatory memorandum states that the High Court held that the ability to self-authorise was “incompatible with retained European Union law.” Will the Minister identify which part of retained European law was the cause of the problem and confirm that the regulations solve the problem in its entirety? In other words, do there need to be any other changes to retained EU law in order to deal with the difficulties identified? If he wants to write to me afterwards, I would be happy to receive a letter.”
“I am grateful to the Foreign Secretary for that answer. It was reported recently that the Prime Minister has assured President Biden that an agreement will be reached with the EU in time for the 25th anniversary of the Good Friday agreement. We also read that the Northern Ireland Protocol Bill is on ice while the negotiations continue. Can the Foreign Secretary assure the House that if an agreement with the EU is reached—and we all hope that will happen—the Northern Ireland Protocol Bill will be dropped?”
“The new children’s hospital, the new adult building and the maternity centre at Leeds General Infirmary will bring much-needed new facilities to Leeds and the region, as well as wider economic benefits. It is unusual among the hospital building schemes. As the Secretary of State knows, the site is clear and the plans are ready, so may I urge him to give the go-ahead as soon as possible?”
“The Minister says that we are trying to understand what is going on and that Saudi Arabia is committed to reform. It is pretty clear what is going on: Mr al-Kheir was hung upside down and beaten on his hands, his stomach, his head and his face in order to extract a confession for which he is now at risk of execution. The Minister also knows that we have repeatedly heard how the Saudi authorities use torture in order to prove guilt. I have a very simple question that does not require the Minister to understand further what is going on: do the Government accept that Saudi Arabia uses torture, as all the international non-governmental organisations that have reported on the matter have said? If so, what do they propose to say about that?”
“I strongly support the measure. On a point of clarification, I looked at the two commodity codes: 2709 and 2710. Do they extend to products such as lubricating oils, which enable ship engines to operate?”
“Facing the worst drought in 40 years, tens of millions of people in east Africa are going hungry. Children are dying today of malnutrition and the United Nations expects a famine to be declared before the end of the year. Although the UK has already given humanitarian aid, does the Prime Minister recognise that the international community now needs to do more to save lives, not wait for the formal declaration of famine?”
“The hon. Member for Harrow East (Bob Blackman), who is no longer in his place, spoke for all of us when he described how our constituents are often told that they are somehow to blame for damp, condensation and mould. I very much welcome the clear statement the Secretary of State just made that that will no longer be acceptable from any landlord. Given that he has said that, we can tell our tenants that from today. Will he consider putting a time limit on the period in which the housing provider must fix a problem from when it is first raised? I do believe that that would concentrate the mind. In many cases—we will all be familiar with this—the problem goes back and forth and still does not get sorted out.”
“In September, I asked a then Home Office Minister why it is still legal for anyone aged 18 and over to walk into a shop and buy a machete. I was told, because the incidence of the use of machetes on our streets is increasing, that the serious weapons review is looking at this matter. Will this Minister tell us when that will be concluded and when the Government will act to ban the sale of machetes in this country?”
“The UK deputy permanent representative told the UN Security Council on 10 October that the UK supports MINUSMA—we should pay tribute to the bravery of those troops, given the losses to which my right hon. Friend the Member for Wentworth and Dearne (John Healey) referred—but said that there were questions about “whether and how the mission can maintain a viable presence in Mali.” Given the factors—political instability, the Wagner Group and others—that have led to withdrawal of French and UK troops and those of other nations, what is the Government’s view about the continued operation of MINUSMA in the circumstances in which it now finds itself?”
“The Minister will be aware that the Australia deal in particular has created quite a lot of concern among Britain’s farmers. For example, Jilly Greed of the Suckler Beef Producers Association has said: “This is an absolute betrayal…this is Christmas all over for Australia”. The former chief economist of the National Farmers Union has said: “Agriculture will bear a disproportionate cost. So desperate are the Government to do deals, they are preparing to slim down agriculture”. How would the Minister respond to those allegations?”
“They include early onset dementia; difficulty concentrating; lapses of memory; cognitive decline; depression; anxiety; obsessive disorders; psychosis; stumbling and clumsiness; involuntary jerking or fidgety movements of the limbs and body; difficulty moving; mood swings; personality changes; irritability; apathy; disinhibition; problems swallowing, speaking and breathing; fatigue; loss of weight; incontinence; and sexual dysfunction. In the later stages, full-time nursing care is needed.”
“A once reserved man has turned catatonic; a wry observer of others has become angrily anti-social; a discerning critic is now profoundly negative about almost every activity and person, including his own personal and work history and, too frequently, his loved ones. There are days when he resembles his old self but these periods are briefer and more spread out than they were.” That is what sufferers and their families have to live with. The symptoms of Huntington’s are many, and the list I am about to give is by no means exhaustive.”
“It is very hard fully to convey what this means, so let me quote a letter I have received from someone who writes of “being forced to witness the agonisingly slow degeneration of someone you have known and loved for nearly forty years, and how hard it is to keep remembering the person that they once were. That man—a loving, supportive spouse and utterly devoted father—was erudite, kind, attentive, with a wickedly dry sense of humour. He bears little resemblance to the unsteady figure with unclear speech, alternating between bouts of aggression, anxiety and apathy, with whom I now share my home.”
“For all those reasons, it is a devastating diagnosis, because there is no cure, and there is only limited palliative care. Imagine for a moment the questions that go through somebody’s mind when a loved one gets the diagnosis. How long has my spouse or my parent got? What is going to happen when they can no longer look after themselves? Which of our children has it? Should we tell the rest of the family? Will my loved one’s personality change, so that they end up shouting at me or even assaulting me? In many ways that is probably the most difficult thing to cope with, because we are losing the person we love not just physically but emotionally. This horrible disease makes them no longer the person they once were, and there is nothing—absolutely nothing—we can do about it.”
“Huntington’s is a rare genetic neurodegenerative disorder that, over time, basically stops the brain working properly. It affects some 8,000 people in the UK, but around 32,000 people are living at risk of developing it for the simple but deadly reason that Huntington’s can be passed from generation to generation. This means that a diagnosis of Huntington’s does not just affect the person who has it; it also affects their children, who have a one in two chance of carrying the gene. There is a predictive genetic test to find out whether someone has the faulty gene that causes the disease, but I am told that on learning of, say, their parent’s diagnosis, the vast majority of people do not want to know and prefer to travel in hope.”
“I beg to move, That this House has considered Huntington’s disease. It is a great pleasure to serve under your chairmanship, Mr Robertson, and to see the Minister in her place. I thank all the Huntington’s disease organisations in England, Scotland, Wales and Northern Ireland for the vital work they do and for the help and expertise they have given me in preparing for this debate. Back in May I tabled early-day motion 72 on Huntington’s, and I am really grateful for the support it received from Members on both sides of the House. My colleague Jackie Baillie tabled a similar motion in the Scottish Parliament, which I am told secured record support. I should also declare that my interest in this subject is the direct result of knowing someone who has the disease.”
“Needless to say, people living with Huntington’s and their families face extraordinary challenges in their lives because the condition affects everyone who comes into contact with it: those experiencing symptoms and their families, those who have tested positive but do not yet have symptoms, and people at risk of developing it. Even those who test negative can suffer from survivor guilt, and in some cases might be ostracised by their families.”
“That is especially true when the family has no idea that Huntington’s exists in their family, and those living with it face a great deal of stigma and discrimination. It is not uncommon for a loved one to be wrongly accused of being drunk or on drugs due to their symptoms. The symptoms can start at an early age, and about 5% to 10% of sufferers experience them before the age of 20, although they usually appear between the ages of 30 and 50, and some 10% of sufferers develop them after the age of 60. The average survival time from first onset of symptoms is about 15 to 20 years.”
“I am profoundly grateful to my right hon. Friend for attending this debate, and I agree completely with what she has said. I will come to the question of the needs both of people who have the disease and of those who care for them. In short, those affected will lose the ability to walk, talk, eat, drink, make rational decisions and care for themselves. Partners and children are turned into carers, and children know that they themselves have a 50% chance of going through what they see unfolding in front of their eyes—a prospect that often results in self-harm, low esteem, low confidence, low mood, anxiety or depression. Professionals, and indeed families, can sometimes mistake Huntington’s for other conditions such as Parkinson’s or Alzheimer’s.”
“Sufferers eventually cannot hold down a job, their carer may have to give up their job to look after them, and all the while the bills mount. Income support and financial assistance to meet the cost of equipment and home adaptations is available, but it is limited and difficult to access. That is particularly the case for someone with Huntington’s who does not yet display physical symptoms, and is therefore incorrectly believed not to be symptomatic and not entitled to financial support. That means that people who display only the less visible symptoms—say, mental health or cognitive ones—cannot get the help despite their debilitating effect. That cannot be right.”
“A Huntington’s family member put it like this: “Huntington’s is a thief that slowly steals your body, energy, health, family, friends and the person you used to be.” Last year, a community survey undertaken as part of the Huntington’s Disease Alliance UK and Ireland Family Matters campaign—that is quite a title—found that 98% of carers felt that Huntington’s had negatively affected their loved one’s emotional wellbeing; 88% said the disease had changed their relationship forever; and 70% went so far as to say that the impact had been either extremely difficult or life ruining, saying, “It has ruined our lives.” The disease has a huge effect on family finances and on the ability to work of the person and those who care for them.”
“I say to my hon. Friend, which he is on this occasion, that I am grateful for his attendance today and I agree with every point he has made. I will discuss research towards the end of my speech. Young people who grow up in the shadow of Huntington’s face daunting choices about genetic testing and whether to start a family. Should a young person tell a new partner about the condition? When should they tell their partner? How will the partner react? Many young people care for relatives while worrying that they will get the disease themselves.”