Catherine McKinnell
MP for Newcastle upon Tyne North · Labour · United Kingdom
“The family of a terminally ill constituent contacted me in desperation last month after trying to resolve the pension issues of their family member since January. She died yesterday, with her pension still unresolved. Can the Minister be more specific for that family about what will be done to resolve this issue?”
“As the UK trade envoy to Italy, I thank the Secretary of State for confirming the GCAP funding in his statement. As MP for Newcastle upon Tyne North, I add my voice to those who want to see this as an opportunity to genuinely spread investment and opportunity that will build strength and resilience in our people right across the UK—they a…”
“This report is welcome, but that does not make its existence any less tragic. Far too many mothers and babies have been failed, including mothers like my constituent Amie, who late last year was turned away repeatedly, despite reporting reduced movements. Her baby Seren was born stillborn.”
“Failures to address these issues have significant effects, both on the public finances and on the most vulnerable people in society, and, indeed, they are issues that are often reflected in our constituency mailboxes. I was contacted recently by a young woman who had reported child sexual abuse to the police last year.”
“Her husband was the victim of an assault by the defendant, who had raped his wife. They were forced to wait four hours for the trial to begin. They were eventually told that the defendant would arrive and that the delay to his delivery was causing the delay, but it had a knock-on effect on additional days in court.”
“Friend has said, we need a court estate that is fit for purpose in order to maximise the use of these additional days. I too have visited my local court, in this instance Newcastle Crown court.”
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“The answer that I received from the Prime Minister was nothing, and I have little hope that it will be any more encouraging today. Those are really big questions, and that is without even mentioning long-term tariffs, access to the labour market, the state aid regime, access to fishing waters, regulations—across the whole economy but particularly on food—the priority given to sectors such as farming, financial services, and automotive, environmental and labour policy, data flows and privacy issues, intellectual property, access to diverse EU regulatory programmes, and much, much more. The Prime Minister has committed himself to doing all that in just 12 months or risking another no-deal cliff edge.”
“Both will require some sort of regulatory alignment, and the Prime Minister needs to decide what he is prepared to concede—on food, fisheries, labour and environmental provisions, just for starters. The Government must also decide what kind of say, if any, devolved Governments will have in respect of trade agreements. If the Scottish Government are excluded from negotiations, what will that mean for our Union? We have already seen and heard about the challenges posed to Northern Ireland by the proposals to place a border in the Irish sea, which was something that the Prime Minister promised not to do. Some time ago, immediately after the 2016 referendum, I asked what the Government would do to ensure that regional voices and concerns were heard as part of the Brexit negotiations.”
“During the election period I spoke to many voters, and I fully appreciated the desire expressed by some—whether they had voted leave or remain—for closure on Brexit. It was very clever electioneering to convey the impression that this was simply a small foreign policy issue that could be wrapped up relatively quickly so that Ministers could get on with bread-and-butter domestic issues. However, we are no longer electioneering. It is time for reality to bite, and the reality is that this Bill is just the start of years of uncertainty about our future. Rather than getting Brexit done, it gets Brexit begun. There are still so many issues to be resolved, and they are incredibly thorny ones. The most fundamental question is whether securing a United States or a European Union trade deal is more important to the Government.”
“The raft of contradictory statements by senior members of the Government has caused nothing but confusion and anxiety for businesses over the past 24 hours. Given that the Prime Minister does not even seem to understand or be able to be straight about the impact of the Brexit proposals on the future of £18 billion- worth of trade within our own country, why on earth would anyone trust him to negotiate our future trading relationships with the EU or the rest of the world?”
“I am sure that the Chancellor is correct that some parts of the economy will benefit from a number of the changes, but other parts of the economy, particularly in the north-east, will be heavily damaged by the plans that he is outlining and that are outlined in the deal. The north-east exports over 60% of its goods to the EU, and hurting that relationship will be hugely damaging to our region. He does not seem to be taking any account of the disparate regional impacts around the country.”
“Out of respect I did not want to interrupt the Chancellor’s speech, but is it in order for him to impugn the motives of my hon. Friend the Member for Bethnal Green and Bow (Rushanara Ali) in raising concerns on behalf of her constituents? Is it not unparliamentary for somebody holding his high office to do that, especially when he refuses to appear before the Treasury Committee to answer directly for his plans?”
“Do we ever suggest it should only have one? There are worrying rumours that the Government are planning to scrap HS2. It would make a mockery of the Prime Minister’s pledge to empower the north and do nothing to solve the problems on our network. If they scrap the investment in the north, will we really get it back in another form? I do not think so.”
“Figures from the Library show a 73% rise in delay minutes on the London North Eastern Railway route connecting Newcastle and London, and around 60% of that is due to Network Rail. The Government must commit additional funding for Network Rail as a matter of urgency so it can invest in the east coast main line and improve reliability. That is not enough though: we also need HS2 to go ahead. If we want to run more regional and local services, we need the capacity that HS2 will free up, and I am pleased to have had much support from business communities and stakeholders on this. I can understand why fellow northerners might look at the cost of HS2 and think that this money might be better spent elsewhere, but I have never seen this as an either/or choice. London has multiple infrastructure projects at any one time.”
“The details of the Government’s proposals on rail reform are still to be finalised, but simply changing the way train operating companies work will not improve our railways in the way we need. The east coast main line is a critical piece of national rail infrastructure. It is one of the country’s most strategically important transport routes, linking the north-east to London, the east of England, the east midlands, Yorkshire, the Humber, and the east and north of Scotland, but the line cannot cope with the demands upon it. Instead of being an asset, it is now holding back the communities and economies it serves. It does not have enough capacity for today’s growth in passenger and freight, let alone for the future.”
“The Chancellor is basically telling us to ignore the economics. How can the Government have any credibility when they announce their Budget next month? If the Treasury is not interested in the economics, who in government is? Economic analysis matters. It affects our constituents’ jobs, taxes, spending, prices, interest rates, wages, and imports and exports. Surely we should have the latest and best economic evidence as we make a decision of this magnitude. We must make this decision with our eyes wide open. It is the least the public deserve from us. As founder and co-chair of the all-party group on the east coast main line, I want to highlight the pressing need for investment in my region.”
“He ended his letter by saying: “trust in democracy and bringing an end to the division that has characterised this debate over the past three years is something that cannot be measured solely through spreadsheets or impact assessments, important though they”. What patronising drivel! This Government think they can take us for fools. The Chancellor does not think there is any need for an economic assessment. He tells us that the previous assessments do not apply, but he will not produce a new one. He says that the new deal is “self-evidently in our economic interest”, but it is not at all self-evident. The overwhelming evidence is that any Brexit would lead to a weaker economy compared with staying in the EU. If the Government had evidence to the contrary, they would produce it.”
“This Queen’s Speech is nothing but a wish list, setting out a programme for government that completely ignores the new reality that looms large over our economy: the big unknown that is the post-Brexit world. The Government’s withdrawal agreement marks the most profound peacetime transformation of the economy in our country’s history. That is why, in my brief but timely tenure as interim Chair of the Treasury Committee—I welcome and congratulate the newly elected Chair, the right hon. Member for Central Devon (Mel Stride)—I wrote to the Chancellor last week to ask the obvious question: what is the Treasury’s analysis of the economic impact? Unfortunately, the Chancellor’s reply flatly declined to provide any such analysis.”
“I absolutely recognise that people who voted for Brexit did not necessarily vote on economic lines. However, the Government are refusing to publish an impact assessment of this deal. The Prime Minister is expecting MPs to vote for something that we know will damage this country economically, without revealing the impact assessment. What do this Government have to hide?”
“The Prime Minister shakes his head, but every single Member represents people who voted leave and people who voted remain. Nobody voted for a wing-and-a-prayer, cake-and-eat-it, blindfold Brexit with no economic impact assessment of the biggest transformation of our economy in peacetime history. Does my right hon. Friend agree that this is a completely unacceptable way to bring forward this legislation? It is not fair on this House, and it is not fair on the people who will lose their jobs as a result.”
“This really adds to the weight of concern about the lack of time to properly scrutinise such issues in this debate.”
“I, too, noted that the Prime Minister referred to checks and declarations on GB-Northern Irish goods as being “transitory”. He also said that they would “melt away” unless a majority of Northern Ireland chose to retain them. I share the concerns of the hon. Member for Belfast South (Emma Little Pengelly) that that is not in fact correct and that perhaps there has been some confusion between the future decision relating to a single market and being in a customs union. Does it not highlight the challenge that we face that the Prime Minister appears to need additional time to consider the real implications of the decisions being taken that will have a significant impact not only on this country, but in particular on our trading relationship with Northern Ireland and on trade from Northern Ireland to the European Union?”
“The Chancellor has responded to the Treasury Committee’s request of three months ago for updated economic analysis of the free trade agreement that the Government are pursuing. He acknowledged that the current economic analysis does not correspond with previous Government analysis, but he has not indicated any commitment to provide updated economic analysis. He appears to think it is acceptable for MPs to vote blindly on a potential free trade agreement. He either has something to hide, or he thinks that it is acceptable for MPs to be left in the dark.”
“The Attorney General accepts that his legal advice was wrong—that the Government got this wrong. Whether in law or not, it was patently obvious to everybody watching that it was wrong to prorogue Parliament in that way. The United Kingdom Head of State was asked by the Prime Minister to agree to an illegal course of action based on incorrect advice. What does the Attorney General believe should be the consequences for those responsible?”
“On 10 September, the Treasury’s official account tweeted that beer, wine, spirits and cigarettes would all be duty-free for people travelling to the EU if we left without a deal. Does the Secretary of State seriously think that promoting cheap booze and fags is a good use of public money, or does he believe that the hundreds of thousands of people whose jobs could be affected by our exiting the EU without a deal should drown their sorrows to recover from the blow?”
“A no-deal Brexit, according to Government messaging, is something we can completely prepare for as long as we spend enough money on advertising, while at the same time so crucial and fundamental that it must be kept on the table as part of the negotiations. It cannot be both. Which is it?”
“In the north-east, children and young people will be off school today, and they may well be watching this spectacle, but forgive me for not encouraging them to have faith in the Prime Minister’s bluster and warm words, because the simple fact is that a no-deal Brexit puts at risk our 63% exports to the EU and therefore their families’ jobs. Will he rule it out today?”
“Will the Minister please confirm whether NHS England can use a budget exemption in these circumstances to deal with the very tiny number of children who are affected, and what will she do practically—and what has she done since last week—not just to urge but to get BioMarin round the table with NHS England and NICE to get a positive outcome for these families and these children?”
“Thank you, Mr Speaker, for granting this urgent question. I thank the hon. Member for North East Somerset (Mr Rees-Mogg) for securing it. The families of children with Batten disease have been left dangling for far too long, and the delay in a positive decision being arrived at—for what is a really obvious use of NHS funding, if we were to ask any taxpayer out there —is just too painful for many of them to bear. The stress and anxiety they are being caused is completely unacceptable. The Minister acknowledges that this is a dreadful disease, but it is a dreadful disease that has a treatment—a highly effective treatment. It does not just score 30 QALYs; it has been acknowledged that it scores way beyond that. NHS England is adhering to an arbitrary cap set by NICE.”
“I very much commend the hon. Gentleman for securing this hugely important and timely debate. Does he share my concern that we seem to be witnessing a bit of a blame game between NHS England, NICE and BioMarin? Does he agree that they just need to get round the table and resolve this issue one way or another, even if it requires the Minister to bring them together and knock some heads together to get them to come to a resolution? The rapid-acting nature of Batten disease means that my constituents Nicole and Jessica Rich and the other children who are affected just do not have the time for this wrangling to carry on.”
“Does the hon. Gentleman share my concern that the impact of rare conditions such as Batten disease is not just felt in the child’s physical health, but in their mental health and the mental health of their wider family? The system for judging what is value for money and how our NHS should spend its money needs to take a much broader approach when calculating the value of these medicines in those circumstances. It needs to get it right.”
“The hon. Gentleman gives a really powerful example. The whole of the community in Newcastle knows about Nicole and Jessica Rich and is doing everything it can to support them in this journey. This not only affects those two beautiful children; it also affects their family in a huge way, and the whole community. For that reason, I beg the Minister today to recognise that this is not only about reaching the right decision, but about doing it with urgency. Every day, there is an impact on their deteriorating health, and there is also the impact on the parents of supporting those children with a debilitating condition and living with the agony of not knowing what future lies ahead—whether the medicine that will save their children’s lives will be funded or not.”
“I thank you for your guidance on this issue, Mr Speaker. I wonder whether the Minister would accept that the legal action that is being discussed would be unnecessary if NHS England, the National Institute for Health and Care Excellence and BioMarin got around the table and resolved this issue. On the broader point, on 21 May I and a number of colleagues, including the hon. Member for North East Somerset, met the Secretary of State to discuss this issue. He has since written to me to say that he is “doing all he can within the legal constraints to resolve this” situation. I was therefore hoping that the Minister could clarify what exactly that means, and what progress is being made as a result of that meeting and the representations we have made today.”
“Does the Minister share my concern that one reason why NICE turned down Brineura is that there is not enough long-term evidence about the drug’s effectiveness? That does prompt the question, which I am sure people at home would wonder about: how can we secure that long-term evidence when the treatment is so new—yet so effective, in my view—but is not even available on the NHS in this country? How do we ever find enough evidence to match the criteria that NICE is looking for?”
“Does the Minister understand how deeply hurtful the situation is to those families who are receiving this treatment on compassionate grounds from the drug company and how difficult it must be for them to listen to this debate? Not only are the Government seeking to hide behind sub judice rules when in fact they should be giving the answers that those families deserve; they are also sending families round and round, suggesting that they make applications based on individual circumstances and that they appeal decisions, when they just want to care for their very sick children. Is there nothing more that the Minister can offer those families who are listening to this debate?”
“Shortly after the referendum on Europe, I asked the then Prime Minister David Cameron what would happen to the £726 million of European funding that we were due to receive in the north-east. He could not answer. We are now three years on and none the wiser about the supposed replacement—the shared prosperity fund. How can anyone have confidence in this Government and their handling of Brexit if they cannot give even that basic information to the region that is set to be the worst hit by any form of Brexit?”
“The hon. Lady and I work together closely on this issue as co-chairs of the all-party parliamentary group for children who need palliative care, and we hosted an incredibly moving discussion during Children’s Hospice Week at which we heard really powerful stories from parents who had recently lost children. I am sure she appreciates my concern that the hospice care that children receive is often needed not just at the end of their lives but throughout their lives in order to give them the best life possible in the time that they have, and that it is not funded on a sustainable footing. Children’s hospices must not be left to rely on the ability of local areas to fundraise for them. They must be put on a sustainable financial footing to give the children and their families the support that they need.”
“The hon. Lady is being generous with her time and is making an excellent speech. While she rightly makes the case for children’s hospices, does she agree that they are not the only vital care support that children and their families need? They also need care at home, which is often provided by charities such as the Rainbow Trust. It is a hugely important service, but CCGs and local authorities are too often not commissioning it, and one can only assume that that is due to funding restraints. Does she agree that local authorities and CCGs should be incentivised and supported to fund and make such services available?”
“I, too, thank the Minister for this announcement, which is very welcome, but I cannot pass up this opportunity to intervene, when NHS England is in the mode of looking to fund these services. The hon. Member for Sleaford and North Hykeham (Dr Johnson) gave as an example of children with life-limiting conditions those with Batten disease. A family in my constituency have two daughters with Batten disease. It has progressed in one, but the other is receiving totally innovative enzyme treatment that has stemmed any development of the disease. Yet at the moment NHS England is unwilling to fund this treatment for 13 children in England. So I just want to put on record that this is about not only supporting children with life-limiting conditions, but giving them access to the treatment that will prevent them from going down that road if we can.”
“I just want to make sure of something. The needs of the child who requires care and support in order for there to be that respite are often too great, meaning that local authorities feel it is not within their remit, yet the clinical needs do not necessarily meet the NHS thresholds, so many families just fall through the cracks in the requirements. That often results in really difficult family situations and sometimes in family breakdown, which is not in anyone’s interest at all. If the Minister can do anything to consider this issue holistically, across the local authority and the health service, to try to bring things together and close the gaps, that will change the lives of so many families up and down the country.”
“On new technology and saving lives, I met the Secretary of State last month to discuss making the innovative enzyme replacement therapy Brineura— the only treatment available for Batten disease—available on the NHS urgently. I have heard nothing since that meeting, and the wait is agonising for the families, so what will he do urgently to make this life-saving treatment available to children in England?”
“I suspect that my fellow Petitions Committee member shares my concern that families are being put in the terrible position of having not only to deal with a devastating illness and diagnosis, but fight for a treatment that they know is available and that other people across Europe and across the world are receiving. Whether it is cystic fibrosis, Batten disease or phenylketonuria, or PKU, it is wrong that families are wasting their precious energy, which they would like to channel into looking after their children, into fighting for a treatment that could solve many of those medical issues.”
“I congratulate my hon. Friend on making a powerful, important and positive speech about our region and its opportunities. She makes the case for the power of public investment and private sector partnership. Does she agree that it is not only large business that should invest in our region? So should small and medium-sized businesses, which are the lifeblood of our economy. For example, Sage, which is headquartered in my constituency, is working really hard to develop a strategy for a public-private partnership, so that through our public sector organisations, there is more support for growth, investment, productivity and exporting. However, it needs a clear industrial strategy to back that up.”
“The Act also required all other listed bodies such as local authorities to establish their own BSL plans. I look forward to hearing from the Minister whether her Government have made, or intend to make, any progress towards providing BSL with legal status on a UK-wide level. I recognise, however, that she might have difficulty in doing so, given that it remains somewhat unclear just who has overarching responsibility for promoting and protecting BSL within and across Government.”
“Back in 2014, the British Deaf Association published a detailed discussion paper and highlighted the “policy apathy about the shocking levels of linguistic exclusion we face as individuals and as a community”, and, “the shocking extent to which Deaf people are denied their civil rights.” The paper itself highlighted the good practice that takes place in Finland, New Zealand, Austria and Hungary and set out why our Equality Act 2010 was not working as intended for deaf people—an issue to which I will return. Of course, since that paper was published, the British Sign Language (Scotland) Act 2015 has been passed, requiring the Scottish Government to create a BSL national plan for Scotland to set out their strategy for promoting BSL. That was produced in 2017.”
“In 2009, the UK Government went on to ratify the UN convention on the rights of persons with disabilities, which states that Governments must uphold rights by “Accepting and facilitating the use of sign languages...in official interactions…and…Recognising and promoting the use of sign languages.” BSL, however, still does not have any legal or protected language status, despite many deaf organisations campaigning for that since the early 1980s.”
“BSL is a visual-gestural language with distinctive grammar using handshapes, facial expressions, gestures and body language to convey meaning.” Like spoken languages, sign language is not international and is not derived from the spoken language of a country. For example, the UK, Ireland and the US all have entirely separate sign languages, despite speaking the language of English in common. In 1988, the European Parliament passed a resolution on sign languages, proposing that every member state should recognise its own national sign language as the official language of deaf people in that country, which on 18 March 2003 the British Government did.”
“I am pleased that many local NHS organisations, including the Newcastle Hospitals NHS Foundation Trust, have marked Deaf Awareness Week. The key thrust of my argument, however, is that all public bodies should be aware of and provide for the needs of deaf people, including BSL users, not just one week of the year but 52 weeks of the year. As I will highlight, on far too many occasions that is certainly not happening. According to the British Deaf Association, the UK has about 151,000 users of British Sign Language, of whom 87,000 are deaf. That first figure does not include professional BSL users, such as interpreters and translators, unless they use it at home. As the BDA has described: “Sign languages are fully functional and expressive languages; at the same time they differ profoundly from spoken languages.”
“Members and the Minister are aware, Deaf Awareness Week aims to increase awareness and challenge perceptions of hearing loss and deafness, promote positive aspects of deafness, promote social inclusion and raise awareness of the huge range of organisations throughout the country that support deaf people and their family and friends. That includes the ITV SignPost team, which offers content production, access services and training from their base in Gateshead. Sadly, given the subject of the debate, there appears to be no reference to Deaf Awareness Week on the websites of the Department of Health and Social Care, NHS England or indeed the Department for Work and Pensions, the Department with overall responsibility for cross-Government disability issues.”
“I beg to move, That this House has considered access to NHS services for British Sign Language users. It is a pleasure to serve under your chairmanship this afternoon, Ms Ryan. I am pleased that we have the BSL interpreters here in the Chamber for the debate and that it will also be covered by simultaneous live BSL interpretation and subtitling on the parliamentlive.tv footage. I have been trying to secure a debate on this important subject for several months, because for some time now I have been raising the issues with the Government and a number of other organisations. This afternoon’s debate is timely as well, taking place just days after Deaf Awareness Week, which was from 6 to 12 May. As I am sure hon.”
“We need an app for quick easy access to book GP appointments.” Another stated: “I was in hospital for an operation and when I woke up the nurse came up to me and was talking to me, so I told her I was deaf but she was still talking to me! The staff gave me paper and pencil after my operation but I couldn’t write because I was hooked up to drips. I need an interpreter with me all the time!” Other concerns raised by Ellen and her friends include the use of BSL interpreters who are not fully qualified, and the constant stress and anxiety that deaf people feel before and during medical appointments because they do not know whether their communication needs will be met.”
“It was a day operation and the hospital only booked an interpreter for 2 hours, but he also needs an interpreter when he wakes up, so he knows what is happening.” Another explained: “I am sick of going to the doctor to make an appointment and when they send letters regarding the appointment and the dates I can’t make due to work, I have to get my Mam to ring them and rearrange the time or cancel. I would rather email or text because I hate bothering her to ring up all the time.” Another of Ellen’s friends commented: “I don’t want to ask my Mam to make an appointment when I’m 30, I would like to be independent now.”
“One commented: “I am trying to be independent but I am unable to do that because to make an appointment you have to ring up, which obviously I can’t do because I am deaf. So, I have to rely on my mother to ring them or make or cancel the appointment. The doctors do have a website to book an appointment online, but when I need to see a doctor as an emergency on the day, I can’t book an appointment online because the appointments are not available to book until after a week or two. I do understand that the NHS are trying to save money but as a deaf person I think it is important that doctors and hospitals book an interpreter to be with a patient the whole time while they’re at hospital or the doctors, in case something happens. For example, my partner who is also deaf, had a nose operation.”
“There is an increasing number of Deaf people asking for NHS funded Deaf focused BSL counselling, they report suicidal thoughts. Many of these people have tried interpreted counselling which was not suitable for them.” The establishment of this fund in Daniel MJ Webster’s memory is extremely powerful, and it is highly relevant that I raise his case during Mental Health Awareness Week. Does the Minister seriously think it is acceptable that the crowdfunding campaign should have to take place? On being informed that I had secured this debate, my constituent Ellen O’Sullivan took the trouble to share her wider concerns about access to NHS services for BSL users and to canvass the views of many of her deaf friends. I will share some of their experiences.”
“Following his death, the specialist counselling service Deaf4Deaf set up a crowdfunding page to establish the Daniel MJ Webster Deaf Mental Health fund, with a target of raising £50,000 to provide six emergency counselling sessions to 278 deaf people with severe mental ill health in the parts of England where the NHS does not fund that. Such support is vital because, as the crowdfunding page highlights: “The NHS regions who do not offer BSL counsellors use an interpreter with a counsellor. In general hearing counsellors do not understand the specific issues faced by Deaf people. Interpreted counselling involves a counsellor and interpreter in the room with the Deaf person as they talk about deeply personal issues. Many Deaf people give up after a few sessions because communication becomes difficult.”
“For many deaf people, this is far from hypothetical; it’s real life.” That scenario is bad enough in social situations, but the constant inability to communicate or be communicated with in one’s own language—and therefore access timely, appropriate and important healthcare, support or information—is particularly serious, as it can be a matter of life or death. My constituent Ellen O’Sullivan, who is deaf, recently contacted me about the tragic death of a young man from Essex, who ended his life last month. It is reported that, having been assessed as having severe mental health problems and requiring urgent attention, the man was referred to mainstream counselling with the provision of a BSL interpreter, instead of the specialist deaf-focused therapy requested by his GP.”